Cheriz: My life with Cystic Fibrosis

I need a Hair cut & my experience with Horror Films. I got up super early to finish a paper that was due, but had to be at the school by 8:00am, so I left my house at 7:20. I had been up since 5 working on my paper and I knew I wouldn't have time to do my hair. So I just let it dry naturally. Yipes! Bad idea. My hair is short (here I will take a picture real quick of me holding out a piece of the longest parts). And you get to see my nebulizer treatment, I used the mask today, cuz the mouth piece didn't get washed last night with the first batch of med cups. Its in the batch to be washed this morning. And I'm lazy. So I decided to just use the mask. I know it looks pretty cool. Back to my point. My hair has grown out quite a bit since I had it cut at the end of July! The problem is I can't decide what to do with my hair now. I'm getting bored of it being short, but I like how it looks short. I look more my age with short hair. When I have long hair, peopl...

Day 1: Success (sort of) No, I won't continue to count the days I do well. haha. I would get annoyed and frustrated the first day I mess everything up. I know people who count the number of days in a row that they do all their meds. I will say this once. It is almost completely impossible for me to do ALL the meds and treatments the Doctors have recommended. So I don't keep tally and just try to do the best I can. When I get really behind and can tell my breathing sucks and my weight is dropped (like lately) that is when I kinda start fresh and overhaul my daily routine. This happens at least once every 6 months. Please don't misunderstand my following list. I don't mind doing everything and I'm not complaining. But, I want you to see my life through my eyes and understand why sometimes I get behind on med stuff and have to "reboot" my routine. For example: In the mornings I have to unhook to my feeding machine. I take over 15 pills, 2 inhalers, 4 ne...

College and Choices Undergraduate was an easy choice for me. I only applied to two schools. I knew I wanted to go to the University of Illinois. I loved it. Honestly, I fell in love with the town, the school, and the people. If they had a Grad Program that fit me, I'd apply in a heartbeat. Sadly, they don't. U of I at Springfield has a program that fits what I want to do. I'm going into Public Administration (either City Management or Non-Profit), however, location wise, I'd rather move closer to Chicago. So now I'm looking at schools in Chicago/Burbs, Northern, etc.  I figured I'd better start now, if I get too busy with work, classes, and other activities... Plus, midterms are coming up and my deadlines for real estate homework is soon. And before I know it the deadlines will be here and time has flown by. a Not-so-FUN-FACT: did you know there are some cities/states that don't have Cystic Fibrosis Clinics (and some the ratings and reveiws aren...

Tonight's Weddings! Today/Tonight I had two weddings. My cousin's was first. It was in Peoria and it had a nice break between the wedding and reception. Which was the perfect amount of time for a Starbucks Stop. YUM! Then my family went to my cousin's reception. We then left to drive an hour and 10 minutes to the next wedding. Of course, Ada and Mom drove in  Ada's car from Peoria (Mom stayed in Peoria for 2 days visiting my sister) and I drove Dad to the reception, cuz Mom had their van. It was weird us driving our parents and in seperate cars. But it is nice having one-on-one chat time with Dad. At my cousin's wedding, there were soooo many family members I wanted to catch up with!I talked a lot(shocker...I know...LOL). However, I tend to lose my voice quite often (1. when I talk too much and don't have enough sleep, and when I start a nebulizer-TOBI). Of course, today I did all 3. I stayed up late last night with some friends, then started the nebul...

I tend to joke I'm an Xmen (since I have mutated DNA) and that my weird medical devices are my inspector gadget parts. Go-go-gadget automatic IV Line. Convenient? I'd say so.The next day I have off from work that I don't have school I am going to make my appointments for that day. I just hope it is within the next few weeks. You may remember me blogging a couple weeks ago about some problems I have been having with my mediport (automatic IV line that is in my chest) and my g-tube (my stomach feeding tube). Well I need to have a surgeon look at the G-tube to see what size I need to put in. Dr.B thinks the one I have may not be the right size.  Which, I'm not looking forward to changing it again, BUT I get the new style tube (the mini) which is smaller and thinner, so it is easier to hide under a bandaid. I'm looking forward to not taping gauze around my G-tube anymore. Its really hard to hide that sometime and it is impossible in swimsuits. Plus, scraping off ta...

My 5K I ran my first 5K on Saturday. I finished and that was my goal. I've been jogging over the summer, but stopped in August when I was having my "mummy disease" AKA CFRA (CF-related Arthritis). Then I went on vacation, came home and I decided to start again. So I signed up for a 5K. But I didn't get around to jogging at all before the ACTUAL 5K. Which meant sunday my legs were sore..lol Oh well, I did it, I still am in awe that I was able to finish. I had to walk the two hills (both up and down them), the hills were too much for me. But that's okay. I walked more than I had been earlier in the summer. Which means I need to get back on track. Now, my doc has me on a new med that is supposed to help more with my CFRA. I'm really hoping this new med can control it so I can continue to jog. It took me a long time to work up to a 5K. I walked a mile in Feb every day. Then added another mile, then eventually my friend and I were walking 2.5 miles 3 times a...

My Job, Classes, and the upcoming 5K: First of all, I started a new job the other night. I now work at a local restaurant. I was hired as a server, but right now I'm hostess mostly. I really enjoy the work.  I love interacting with people, I've always been outgoing and this fits my personality very well. Why did I never think of it before? I have a 2nd interveiw for another job that is full time, BUT I'm not sure what will happen there. They aren't willing to work around my classes and I need those classes as pre-reqs for Grad School. Soooo. I'm going to the 2nd interveiw anyway, because they want me to (even though they stated this about the classes). I won't drop the classes. Even though I have no clue where I want to go for Grad School (or if I want to do online), I KNOW I want to do Grad School. And I need those classes! Which brings me to my 2nd topic. Wow, going back to classes after graduating is..weird. This time around I talk more in class, don'...

I'm Back from Vacation and Ready to Blog! Yep, I'm officially home! I was gone for the last 5 days. That is probably the longest gap in my blogs in months. I was super busy before I left on Wednesday!! I had class(30 mins away), job interview, and errands to run before heading to my uncles.   I stayed the night there, since we headed out at 4am for the airport on Thursday. We arrived in Buffalo, NY and checked into our hotel! Then we headed off to Canada to view the falls from the Canadian side. We spent the whole day on there, walking, taking pics, doing different attractions. We went on the Maid of the Mist (on the boat you feel like your right under the falls) and we got soaked, it was such phenomenal views of the falls though (especially the horseshoe)! Then Friday we drove to Lockport, NY and took a tour of the Erie Canal (35-lock Canal). It was really neat hearing about the history and traveling up and down the canal. Being right up close to the gates, it felt a ...