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Showing posts from April, 2019

Not ONLY my Lungs

Yes, I have Cystic Fibrosis. Yes, It's mostly known for the damage done to our lungs. But, it's not JUST a LUNG DISEASE. To be honest, when I was younger I had more serious GI (stomach) issues than serious lung issues. I've had many, many surgeries where part of my intestines were removed (I only have 60-70% of my intestines left). I have/had liver struggles, bone/joint issues, reproductive issues, and more. Also, I have mild cerebral palsy ( diagnosed at age 3). For my CP, I did lots of physical therapy, wore a leg brace for 10+ years, and see an eye specialist. I had surgery on both my eyes to cut and tightened my eye muscles a couple years ago. So, yes... while overall I struggle the most with my lungs, it changes day- to-day. Some days I do my meds and have no issues. Some days I have stomach issues, some days my joints hurt, sometimes my allergies are causing me to cough a lot. It just depends. One issue I have never "officially" had diagnosed is my Arthri

A Birthday Treat

Born 12 weeks early and diagnosed with cystic fibrosis shortly People didn't think I'd live past 5 and tomorrow I turn 34 years old. BOOM BABY! I wear my age, gray hair, and wrinkles proudly (yes, even the wrinkles). Hats off to all the medication for keeping me alive. And OF COURSE... my parents, doctors, family, and friends. Research and fundraising has really helped some AMAZING, life prolonging drugs come to market. I have a large support system that helps and volunteers. I'm so thankful!! Heaven knows I needed that support system when I became a foster mom. Especially since I went from zero kids to three specialized (needs) kids. All three of whom I LOVE completely and will do anything for in the future. But, I needed help when I was sick, run down, and tired. As I said in a previous post last mont, " It's a challenge to be foster parents, it's not a challenge to love them" (Blog post: Thinking of Fostering ). I know most parents are guilty of s