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Showing posts from March, 2016

Wearing a Mask to Clinic

Clinic  Numbers, my mask, and updates: First of all, since my last post A LOT has happened. My last post was about the Peoria Chapter Cystic Fibrosis Foundation Annual Meeting & Awards Night. Make sure to scroll down & read that post . Not only did I receive an award,but was honored to be the guest speaker, BUT I also learned some facts (that I had never heard of before) about the CF Foundation! Secondly, Last week I had the privilege to speak at a local High School assembly about my life with CF and thank the students for their fundraising efforts. The Illinois Valley Central High School raised over $17,000 in 45 minutes for the CFF! Alyssa Paldo from WMBD News covered the event. If you want to check out the video she posted on Facebook (hear about the students did it and even see me on the news, go HERE). Way to go Grey ghosts!  Okay, now to catch you up about my clinic and tell you about the mask I wore! I drove from my place an hour to my parent's place.

Honored and Excited

Tonight's Annual Peoria Chapter Dinner: Every year the Peoria Cystic Fibrosis Foundation hosts an Annual Dinner/Meeting. The latest and greatest news about the CF Foundation, research, and patient care is discussed. CF center reps, Pharmaceutical companies, CF Foundation Leaders, and Volunteers all come together for the same reason: to share and learn more about CF (ultimately to CURE it)! Tonight I was beyond excited and honored to be not only invited (only 1 CF person per indoor event is allowed, due to cross infection rules), but I was also asked to be the guest speaker tonight. If you would like to hear my speech, then head over to the  YouTube Video  of it   HERE .  I was very touched to receive the "Great Strides Partner of the Year" - Which typically goes to a Great Strides team, Corporate Sponsor; someone who pushes to make Great Strides grow and succeed every year. Which is what I try to do, but mostly I just loved being there. Connecting with others and sh

It's Hard to Stay Alive (Fragile, yet Strong)

Putting my sneakers on: Sorry, I haven't posted in a couple weeks! I have been pretty busy with work, which is GREAT! It's nice to see my client list build and to actually get a paycheck! YAY! The first paycheck I received was from my 1st closing! YAY! ( check HERE to see the picture) Since the last post, I've been really focusing on life. Yep, life. Just living. It can be hard work sometimes. I work, keep the house clean, maintain health, and even try to work out! But it's hard. These new kicks I got help motivate me though. Rock' em CF sends out new kicks to CFers that want to work out/jog/ and get in shape! I just filled out a form, had my doctor sign it, sent it off, and BAM- my new kicks arrived! Thanks Emily! Fragile, but Strong... Which is perfect timing, because I want to get stronger. Working out will help me gain muscle and improve my lung function. Win-win! This really helps strengthen my health, which is super important! As I get older, it get