Cheriz: My life with Cystic Fibrosis

Not the movie...but: That's right. We are engaged! I haven't posted in the last 6 days on purpose. We wanted to inform our family and a few friends before I share with the whole world (or whoever reads this blog...Lol). And since I share everything with you, I'm going to share with you Andrew's proposal ( which was absolutely perfect for us). We had been discussing marriage, buying a house, etc for over a year. We had even discussed engagements, rings, and proposals way back in Feb of this year. He knew my ring size and my thoughts on proposals. I think they should be thoughtful and geniune. That pretty much sums it up. Simple, sweet, and not too expensive. Picture on right: Selfie just after we got engaged! So months went by since our marriage discussion and then last Tuesday Dec 23rd Andrew proposed. Let me start at the beginning.  Monday Dec 22nd my friend, Stacey, came to visit for the night. Andrew said Stacey and I should get our nails done, you know a g...

Don't Forget To Fight: I'm not the toughest person, but I'd say my Cystic Fibrosis has done a great job of toughing me up. I mean that in a good way. I have endured a lot of needles, surgeries, pain, doctors, and more. But because of these experiences (some I'd call traumatizing) have made me realize that I can face anything. I'm not afraid to work hard for what I want and I know how to deal with anything life might throw at me. Well right now, life is pretty good. I haven't been on IVs at all this year, only in the hospital for 1 night (for my stomach tube surgery) AND (other than post surgery weight loss) my weight has been stable and slightly increasing ( very slowly). Overall, it has been a pretty stable year. Granted I couldn't work a lot of the year do to my stomach hole leaking issues, then the surgery, plus I've had some weeks where my intestines were acting up (tiny blockages, etc). Still this is a big improvement from 2013 (Here's a rev...

Sorry everyone! Wow, what a crazy weekend or week I should say! First off, I want to apologize for my blog disappearing for 3-4 days! This will never happen again. I've solved this issue (and even switched companies from where I got my domain), so hopefully this won't ever be an issue again. It was beyond scary when I clicked "view my blog" and the link wasn't working. I have never taken classes on website management (hosting, designing, etc). I'm 100% self taught. It's crazy how much you can learn on websites, YouTube, and good ol' books from the library. However, when something shows an error (like my domain expiring without my knowledge) I tend to freak out a bit. I mean this blog, as much as I love it, I have put just as much work into it. Almost 3 years of my life's rambling are on this lil blog! So whew, glad I got it all sorted out and I'm so sorry to anyone who tried view it and was confused! So It's back for good. I promise. Ok...

Happy, so much to celebrate: Yes, my clinical trial that I was all set to do the screening for tomorrow has been postponed until Jan 7th. The Clinical Trial Reps want Doc to wait until Jan 7th, so I'll have had a full month off between the closing date of the last trial and beginning of this trial. Which will be 2 months from my last experimental (or placebo) drug, giving it a decent amount of time to get out of my system. Which makes sense, but I understand considering the waiting period between the drug & closing date AND the length of time between the opening/screening and first dose is lengthy enough Doc thought it would still fit protocol. But he is right, better safe than sorry. So even though that Clinical Trial got postponed I'm still rather cheery. Why? Well, quite a few reasons! 1. I gained a few of those much needed pounds back over Thanksgiving! YAY!!!! Holidays are the perfect time to gain weight, whew. Thank goodness for Thanksg...