Skip to main content

Weekend Craziness

Sorry everyone!

Wow, what a crazy weekend or week I should say! First off, I want to apologize for my blog disappearing for 3-4 days! This will never happen again. I've solved this issue (and even switched companies from where I got my domain), so hopefully this won't ever be an issue again. It was beyond scary when I clicked "view my blog" and the link wasn't working. I have never taken classes on website management (hosting, designing, etc). I'm 100% self taught. It's crazy how much you can learn on websites, YouTube, and good ol' books from the library. However, when something shows an error (like my domain expiring without my knowledge) I tend to freak out a bit. I mean this blog, as much as I love it, I have put just as much work into it. Almost 3 years of my life's rambling are on this lil blog! So whew, glad I got it all sorted out and I'm so sorry to anyone who tried view it and was confused!

So It's back for good. I promise. Okay, in regards to other "craziness" from this weekend. Some of the craziness was good, like people visiting us. The crazy part was the fact my plans completely got changed last minute. I was supposed to visit with my family this weekend, but that got messed up. Which I was bummed about at first... which is why I'm very much looking forward to Christmas and having some time to spend with family & friends! This may be the most up to date picture I have of my family! It was taken 2 years ago (before I even started dating Andrew). Think this year we are in need of an updated one? I do!

But since we were free this weekend, we had a lot of other people visit and had a lot of fun. Friday, Andrew's Mom came to visit. My Uncles visited Saturday and they delivered the mattress I purchased on Black Friday for a super good price! I sooooo excited to get a new mattress, the one had was beyond old and it was affecting my joints (arthritis problems) and my sleep. Now, thanks to them hauling my new beautiful bed here, I have slept like a baby ever since!

Sunday, I was bummed I was unable to go to the Dream Factory Party (read about in post below). However, I've had allergy type problems for the last week or so. I really don't think it is a cold, but that Christmas Party would have kids with compromised immune systems there (cancer, cf, etc). No way, would I go even with the sniffles. So bummed I missed out, but I know all the kids had an amazing time! I really hope I can go next year!

And for the rest of my week: STUDYING! That's right I may have aced my final in the first Real state Class, but I have one more final (in my 2nd class) on Thursday. Then shortly after I'm taking the IL licensing exam. So lots to study! So excited for this career to start (in Jan of 2015). My struggle with finding a career that I will love and will allow me to manage my CF has been difficult. READ about it RIGHT HERE!

Also, if you enjoy this blog and want to learn more about me, my CF, or our fundraising efforts then click here to "like" my Blog's Facebook Page. I post all the new posts on that page too, so you can keep updated!

And again sorry everyone!

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

My Clinical Trial Mess

A Clinical Trial Mess: Monday, I had an appointment for a clinical trial evaluation. Let me start out by saying, I always get  amazing care at my doctors...HOWEVER, this evaluation was done by a third party brought in to handle the research. The research nurse was a flibberty jibbet. She was nice, but kept just re-organizing her supplies, like she didn't know what to do. She seemed nervous. She mentioned she usually had another nurse with her. She took my weight, height, urine test, pre-med spirometry test (PFT-pulmonary function test) Next she decided to draw the blood, while waiting for the pft results to print. She got out the supplies and the sterile paper that she places it all on. She dropped te paper on the floor and proceeded to place the packaged needles and supplies on it.... So in my head I tell myself "Okay...( inhale control exhale my germfreak...) it's okay, it won't kill me..it only touches the bottom of my arm, not the actual place that she is dra...
6 comments
Read more

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...
6 comments
Read more