Skip to main content

CF Doesn' t Own Me & Celebrating!

CF: A part of me:

Some Celebrations are this weekend:
First of all, Happy Birthday to my Dad!  I think my Dad is absolutely Amazing!!! Please take a minute to read all about why he is a phenominal father in this past father's day blog post! Also you can read about a funny story with a simple example for how dad is always there to save the day in this lil past post here!


So besides my Dad's Bday being today, Andew and I put up Christmas/Had a Holiday Dinner yesterday! We put up the Christmas Tree, some decorations, listened to Christmas Music and did some baking!  Here are some of our Christmas/Holiday Pictures!

       Our Tree

-------------------------------------------
Media Center



--------------------------------------
Above the Couch



-------------------------------------------
Our Hallway Closet Doors :-) Haha!




We used a Clean/New Stomach Syringe for the Turkey! Seriously, supplies double as so much! What other supplies do you use for other things? We used to squirt colored water out of the syringes to color the snow too!


I'm still working on a fun dinning room table set and coffee table centerpiece!
 
To see last years Christmas Photos: click here
 
Okay, now back the part in the title "CF Doesn't Own Me", this is why I feel it is important to state that:

I've notcied in the last couple of weeks, that I post a lot of CF related posts on my Facebook. Which is okay, since CF is such a huge part of my life. BUT, I try not to post more than once a day. But sometimes there are some really cool news about Clinical Trials, or CF Walks, or even related to my personal health. But I don't always post about it, in fear I will be posting too much. Or not everyone I'm FB friends with wants to read about CF all the time. Plus, I blog usually 2-3 a week, so that is quite a few posts too! I had a group on Facebook where people could find tips on fundraising for walks and photos from the walks, and get new info! But it isn't a page, therefore I can't post in it (and have it go on regular newsfeed and it won't generate an audience. The whole point of starting a page would be to share about the Princeton Walk, other CF Walks I'm doing, and how family, friends, and the community can get involved. Pages are easier to work with, in that anyone can share them, invite others to them, and keep updated! So I've decided to make a page. Feel free to join the page to stay updated! If you are already in the group, feel free to stay in it or leave. I will be posting everything on the page now, and less often in the group. 

Click here to join/ "like" it!
https://www.facebook.com/CherizCFPage?ref=hl#!/CherizCFPage


Updates: Updates on Laura: She got a blood transfusion, and was released to go home on meds & oxygen. So she is still figuring out what to do and how to fight (read about Her fight here!) ,  I'm still waiting to see if I get the tuition back from school, and my Colonscopy is scheduled for Dec 13th. So waiting... I'll keep you all up to date! Oh, and I updated the "MY CF HISTORY page on my blog Read The Updated Page here!

Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Sunny Days!

Since my last Cystic Fibrosis clinic, which you may have read about on my Facebook page , I have been working on a couple goals... both medical and personal. And boy do I love this summer weather! Summer weather combines one medical and one personal goal!! EXERCISE + MORE FAMILY TIME! I'm not one to enjoy extreme heat (90+), but have really LOVED the nice days outside with the family this summer! Sun (+sunblock LOL), freezie pops, flip flops, YES PLEASE! We have even spent some time at the lake this summer! Our kiddo(s) LOVE(S) the water and so does Andrew! I don't enjoy being IN the water as much as I like being ON the water. We have spent a dozen days this summer at our two favorite park/splashpads as well! Even days spent at home are usually in the kiddie pool. We are enjoying this weather and getting some exercise too! WALK! I try to talk advantage and do some walking when its nice out and I feel good. My Physical Therapist at clinic said it needs to be 15 mins of full acti...
2 comments
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more