Skip to main content

Fighting for Her Life!

Laura- Fight of Her Life:

See Laura's Link on the top right hand side of my blog! or go here!

Laura, is another CFer, like me! We met when we were really little. Before docs knew we couldn't be around each other. In fact, there was a group of us. We'd hang out all the time, go to CF camp together in the summer, etc. Some of my CF friends would even stay at my house over the summer and I stay over at theirs. Our little CF group consisted of (or at least my besties) were: Casey, Andrea, Kevin, Danny, and Laura! Sadly, I lost Casey at 10(both of us were age 10), Andrea passed away at 16, I was 11, Kevin was 18 (so was I), and Danny passed away when we were 24. I'm not posting this to depress anyone, but to tell you this is a horrible disease. Yes, It has given me many positives and in some ways I'm thankful for everything it has taught me. Also, I feel like I needed to post this, because most people that know me, see me as - Cheriz...The bubbly, fun-loving, positive girl, who never gets down about CF. BUT, CF is horrible, and makes us fight. We fight everyday. As we get older we fight harder. We develop more complications:

For example: My bone density is lower, I have CF related Arthritis, my liver doesn't function 100% anymore, I haven't gotten my lungs above 65% in over 10 years, I've developed resistance to many IV meds, I have more GI/Stomach Issues, develop hernias easily, and have been borderline Diabetic for a while. Laura has many complications, including she is diabetic and has really bad GI issues. She is below 18% lung function and is on oxygen 24/7. She is being evaluated for a Transplant (TX), but we are waiting! There are many costs (besides medical), living- for when her husband has to move to the city the TX hospital is located in. Also, food, gas money to get to post appointments. TRUST ME- its expensive! Let's try to help her out! Just click the link above or on the right upperhand side!

We have been best friends since we were little. We were told around 1997 (age 13) we couldn't be around each other. Docs discouraged our talking and seeing each other. With internet not being as widely used then, we lost touch for a few years. At age 18 we ran back into each other at the Docs office! We swapped phone numbers and addresses. We got skype, emails, etc and we have stayed very close ever since! She is my go-to person when I have CF issues, or I'm just in a "I hate CF mood". Because if I call her, she always cheers me up! Since we got back in touch, we only have seen each other once. At a CF Walk in 07. And we haven't since then. I have Psuedomonas and She has MRSA.  (read more about CF bugs and how they spread in this PDF- here!)

So we haven't seen each other since. It is so hard. It is unbelievably hard to not be able to be there with her! I get so frustrated at times with CF, I'm in Illinois and she is in Florida, I may not be able to see her. BUT this is what I can do! I can use my blog and online networks to help spread word!

Please help me spread word and donate to help her! I know I have done 3 fundraisiers in the last month, but please consider this! Its is beyond the most important one to me! I would swap our lungs if I could! PLEASE consider helping my best friend. She deserves to live a full life with her husband. They were married 2 months ago! And the day they got back from their honeymoon she was hospitalized. She has been fighting since! She is sooo strong! Keep Fighting Laura! I love you!  Here are some pics of Laura:

Laura and her Hubby: Joe at a CF event!



---------------------------------------------

Laura and her Dad!



---------------------------------------
Laura doing our ever loved Nebulizers!




-------------------------------------------
Laura Married Joe <3
in September of this year!







:-) Stay strong and fight girl! We are all supporting you! <3 you!
Click this link to see the video I made for Laura last year! It applies more than ever now!!!!

https://www.facebook.com/photo.php?v=10101666382188550&l=2130842238946450796
(Its through my Facebook)
 
Please feel free to leave Laura a comment below! Also, if anyone wants to send her snail mail to her hospital room, contact me. I have her address!

Comments

Popular posts from this blog

Clinical Trial, lung function test, and Crohn's diease

Clinical Trial, Clinic Today:   Clinical Trial 9am: Today, I went back to Dr. B's office for the clinical trial evaluation and start of trial. My last evaluation was a mess and I was not too happy with it ( Read about the first trial evaluation mess here! ) Luckily, we doubled today with my CF Clinic. It was a long day 9am-2pm in the office. BUT, good news is I'M ON THE TRIAL! It's not a new drug. I'm just doing the two meds like I always have (unless I get the placebo). I love being a part of clinical trials! The thought of helping drugs be approved that can help our health or even get approved by insurance easier! In the past I did a Clinical Trial for enzymes (that was a horrible clinical trial). I had to collect my stool in buckets and mail it to the lab...EW. But, it was to help us digest food better. AND now I'm on Zenpep, which is a fairly new enzyme and it does wonders for me! I did clinical trials also for Pulmozyme and Tobi too! So excited to get involv...

Starved Rock State Park

The fun way to get my exercise   :-) Sarah and I hiked at Starved Rock State Park today! I usually have to work or play practice, errands, or something. But I had nothing planned for this afternoon/evening! I asked Sarah if she wanted to go hiking at Starved Rock. We both are always prepared and packed bags with water, sunblock, and snacks. My bag also contained some bandaids (I'm lil accident prone) and of course my meds and inhaler (which I rarely ever use, even when I'm indeed needing it). We started by first heading into the trails towards Pontiac Canyon, then we walked over to the River Trail and enjoyed the veiw of the River. Once we  were almost to horsehoe bend we had to turn around (where it looks like I made a mistake with the higlighter). Which wasn't a mistake, we started to hear thunder and decided to head back towards the lodge. We had to back track probably .25 miles. But we took the hiking trails past 4 more canyon/spots...

A Simple Hug

I'm a hugging type person. In fact, I have a couple friends that aren't big on hugs or any kind of public displays of affection. However, they usually bring the bubble barrier (as I call it) down to hug me good bye. I'm also super extroverted and LOVE to hang out with friends.... Therefore, not being able to see my friends (with CF) in person drive me nuts. A lot of people (in society) don't realize that people with CF cannot be around each other. This is due to the bacteria we colonize in our lungs. It doesn't affect non-CF individuals. But, as we come in close proximity with other people with CF those bugs spread and continue to damage our lungs faster. We fight off the bacteria with antibiotics, but when I was younger we didn't have many options for antibiotics (especially nebulized). This meant we could not eradicate the bacteria and were stuck with it in our lungs for the rest of our life. The more bacteria we culture, the faster our lungs are damaged, t...