Skip to main content

De-Hospitalizing our Rooms..

De-Hospitalize your room:

Random fun story:
Here is one my favorite moments a friend has done for me:

I have one friend when I go to visit, they know to move the living room coat stand next to my bed, so I can use it as an IV pole to hang my stomach feeding on. It makes me smile.

-Also, note CFers, coat hangers sticking out of drawers, off doors, window sills, etc all work just as well! I ditched my IV pole years ago and couldn't be happier.

My room looks like a bedroom and less like a hospital now. Once I get my new vest machine that will be 1/3 the size of the one I have, then I will be REALLY happy. Plus, there is a company that makes decals/covers for the machines, so we can personalize them/change the color.

I keep pills and feeding pump pushed behind picture frames, and keep my therapy machine under my desk. My supplies I keep in the closet. I'm little bit of an organizational freak. I guess I sort of have to be, so that way I keep track of my meds, supplies, expiration dates. I run my house a little like a store.  Closer expiration dates move forward, new supplies put in back. Keep dates marked when they need to be ordered, etc.

With everything being organized though, it makes it easier to "hide" my medical crap. I don't mind people seeing it, I just to don't want to feel like I'm in the hospital in my own room.


Although: When I was like 11 or so, we did a badge for Girl Scouts; we had to make a movie about helping someone, etc. We did a movie where the Girl Scouts visited a sick kid in the hospital. The prop phones may have been plastic and fake, but we had some kick-ass medical equipment. Including IV, IV pole, oxygen mask and tubing, etc. Oh and guess who played the sick kid....haha of course.

So Medical stuff did come in handy for my theatrical side.

Now, to finsish making my headboard, so I can put it up! Then my room will have a lot more personality!





Comments

  1. Great post!! Right now my dining room table looks like a hospital with all my meds (oral and IV) and IV flushing "stuff".

    ReplyDelete

Post a Comment

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...