Skip to main content

De-Hospitalizing our Rooms..

De-Hospitalize your room:

Random fun story:
Here is one my favorite moments a friend has done for me:

I have one friend when I go to visit, they know to move the living room coat stand next to my bed, so I can use it as an IV pole to hang my stomach feeding on. It makes me smile.

-Also, note CFers, coat hangers sticking out of drawers, off doors, window sills, etc all work just as well! I ditched my IV pole years ago and couldn't be happier.

My room looks like a bedroom and less like a hospital now. Once I get my new vest machine that will be 1/3 the size of the one I have, then I will be REALLY happy. Plus, there is a company that makes decals/covers for the machines, so we can personalize them/change the color.

I keep pills and feeding pump pushed behind picture frames, and keep my therapy machine under my desk. My supplies I keep in the closet. I'm little bit of an organizational freak. I guess I sort of have to be, so that way I keep track of my meds, supplies, expiration dates. I run my house a little like a store.  Closer expiration dates move forward, new supplies put in back. Keep dates marked when they need to be ordered, etc.

With everything being organized though, it makes it easier to "hide" my medical crap. I don't mind people seeing it, I just to don't want to feel like I'm in the hospital in my own room.


Although: When I was like 11 or so, we did a badge for Girl Scouts; we had to make a movie about helping someone, etc. We did a movie where the Girl Scouts visited a sick kid in the hospital. The prop phones may have been plastic and fake, but we had some kick-ass medical equipment. Including IV, IV pole, oxygen mask and tubing, etc. Oh and guess who played the sick kid....haha of course.

So Medical stuff did come in handy for my theatrical side.

Now, to finsish making my headboard, so I can put it up! Then my room will have a lot more personality!





Comments

  1. Great post!! Right now my dining room table looks like a hospital with all my meds (oral and IV) and IV flushing "stuff".

    ReplyDelete

Post a Comment

Popular posts from this blog

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

My Dad Deserves More Than 1 Day!

Happy Fathers' Day to ALL the Fathers out there! I wanted to post a list to why I'm sooo thankful for my dad (its faster, bit more fun, and I gotta get ready for my Dad's Cookout still)!!! Top 15 (10 isn't enough..lol) reasons Dad should get more than a day of celebration: 15. He loves meeting people, making friends, and is quite social. 14. When something goes wrong, he is the person that can say the right thing to make me smile :-) 13. Is always honest. 12. Few yrs ago, he gave me HIS car, (so i could get back and forth to work/play practices) He rode his bike to work and back (he enjoys it too tho) 11. Best Sense of Humor! 10. He never complains, ever! 9. Growing up my Dad worked 6am-3pm at one job and 4:30-10pm at another. 8. Dad still managed to go to 99.9% of my performances 7. He is the least judgemental person ever, he talks to & helps everyone! 6. He is a pro at making doctors, insurance companies, & hospitals do ...

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...