Skip to main content

De-Hospitalizing our Rooms..

De-Hospitalize your room:

Random fun story:
Here is one my favorite moments a friend has done for me:

I have one friend when I go to visit, they know to move the living room coat stand next to my bed, so I can use it as an IV pole to hang my stomach feeding on. It makes me smile.

-Also, note CFers, coat hangers sticking out of drawers, off doors, window sills, etc all work just as well! I ditched my IV pole years ago and couldn't be happier.

My room looks like a bedroom and less like a hospital now. Once I get my new vest machine that will be 1/3 the size of the one I have, then I will be REALLY happy. Plus, there is a company that makes decals/covers for the machines, so we can personalize them/change the color.

I keep pills and feeding pump pushed behind picture frames, and keep my therapy machine under my desk. My supplies I keep in the closet. I'm little bit of an organizational freak. I guess I sort of have to be, so that way I keep track of my meds, supplies, expiration dates. I run my house a little like a store.  Closer expiration dates move forward, new supplies put in back. Keep dates marked when they need to be ordered, etc.

With everything being organized though, it makes it easier to "hide" my medical crap. I don't mind people seeing it, I just to don't want to feel like I'm in the hospital in my own room.


Although: When I was like 11 or so, we did a badge for Girl Scouts; we had to make a movie about helping someone, etc. We did a movie where the Girl Scouts visited a sick kid in the hospital. The prop phones may have been plastic and fake, but we had some kick-ass medical equipment. Including IV, IV pole, oxygen mask and tubing, etc. Oh and guess who played the sick kid....haha of course.

So Medical stuff did come in handy for my theatrical side.

Now, to finsish making my headboard, so I can put it up! Then my room will have a lot more personality!





Comments

  1. Great post!! Right now my dining room table looks like a hospital with all my meds (oral and IV) and IV flushing "stuff".

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

My Clinical Trial Mess

A Clinical Trial Mess: Monday, I had an appointment for a clinical trial evaluation. Let me start out by saying, I always get  amazing care at my doctors...HOWEVER, this evaluation was done by a third party brought in to handle the research. The research nurse was a flibberty jibbet. She was nice, but kept just re-organizing her supplies, like she didn't know what to do. She seemed nervous. She mentioned she usually had another nurse with her. She took my weight, height, urine test, pre-med spirometry test (PFT-pulmonary function test) Next she decided to draw the blood, while waiting for the pft results to print. She got out the supplies and the sterile paper that she places it all on. She dropped te paper on the floor and proceeded to place the packaged needles and supplies on it.... So in my head I tell myself "Okay...( inhale control exhale my germfreak...) it's okay, it won't kill me..it only touches the bottom of my arm, not the actual place that she is dra...

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...