Update Time, getting close to clinic (pics too)

Update Time!

I have CF Clinic on November 17th and I'm very much excited about it! First of all, we always shop and eat out at one of my favorite places in Glenveiw! We (my uncles and I, or Ryan and I, or Mom and I- that is who I always go with) pretty much make it a whole day affair!

This Clinic will be extra exciting, since I will have stories to share. Snce my last Clinic I ran my FIRST 5k (and finished it- read about it here to read my blog about the 5K I did!)! So I'm taking Dr. B this picture in, along with a story about my journey (getting to point where I could run a 5K) to put in the newsletter!

AND I did the CF Walk with a TEAM this year (where we raised $1,200 -so proud of everyone!)! The coolest part about the walk, was seeing all my family and friends coming together, even lots of them hadn't met (friends from high school, youth group friend, theatre friends, family, and college friends)!

Also, I'm pretty proud that my weight has plateaued at 104 lbs. I'm trying to get it to 109 lbs. before clinic, and even though I haven't been able to put a single pound on in a couple weeks (since I started waitressing), AT LEAST it hasn't gone done a pound either. I've had days I was so busy, I'd forget to eat all my meals & about 2x a week I skip my feeding at night (as a lil break from it) and I still don't lose weight. So that means my main weight is at 104 lbs and will most likely stay there now, until I can get past it and gain more.

Considering since 2003 I have struggled to keep it above 92 lbs. I'm very pleased! AND hopefully my upward trend in Lung Function will increase from 61% to 63%!

SOOOOO Excited! A lil nervous, but very excited! This Clinic has the potential to be amazing! :-) I almost don't want to wait the 2 weeks!

Comments

Today's BIG Appointment

I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec

Post- Surgery Appointment

Post Surgery Appt: As you prolly know, I had Laparoscopic Triple Hernia Surgery last Tuesday. Here was a picture of me devouring a piece of bread so I could go home afterward the surgery (4 hours post surgery and 20 mins post waking up from recovery). I was ready to go home! Today I had my post surgery check up. He said everything in the surgery went well and besides the finding the 3rd hernia there were no surprises. He pointed out where the staples/stitches (they are holding the mesh in place) are in me. I have two on each side at the end of the mesh (so 4 on top) and two down farther in my groin. Apparently, I just have one huge piece of mesh that runs the width and length of my whole abdomen/groin area. Bahaha. I am Inspector Gadget after all. He said a few more weeks before I can lift stuff or exercise. Also, he said the area where the staples are will hurt when bending or twisting. However, I only notice really when I twist or turn too fast. Overall, it was a nice appointment

Theatre and Life...how to fit in CF?

Fitting CF into my life: Cystic Fibrosis won't be hard to fit into my schedule right now. As I just finished my job watching my babysitting kids for the year. I'm currently job hunting and taking classes on Mondays at the local community college (as a pre-req for Grad programs/and for fun). Mulan Jr, just ended today. We had two shows. Back-to-back performances are harder, since I had a busy day before the shows, I didn't get a chance to do my meds before the shows. Therefore, I end up bringing my therapy machine along. Yep, sitting in the light booth and doing my meds, while watching people take their seats. [Note: I turned my therapy machine off when the house lights had to go out.] Its not that hard to fit them in. You just have to be willing to do them sometimes in unexpected places and be willing to have others find out about it. I had two people in the light booth with me, neither knew I had Cystic Fibrosis, but neither were bothered by the nebs. So bottom line

Cheriz: My life with Cystic Fibrosis

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