Skip to main content

Update Time, getting close to clinic (pics too)

Update Time!

I have CF Clinic on November 17th and I'm very much excited about it! First of all, we always shop and eat out at one of my favorite places in Glenveiw! We (my uncles and I, or Ryan and I, or Mom and I- that is who I always go with) pretty much make it a whole day affair!

This Clinic will be extra exciting, since I will have stories to share. Snce my last Clinic I ran my FIRST 5k (and finished it- read about it here to read my blog about the 5K I did!)! So I'm taking Dr. B this picture in, along with a story about my journey (getting to point where I could run a 5K) to put in the newsletter!

AND I did the CF Walk with a TEAM this year (where we raised $1,200 -so proud of everyone!)! The coolest part about the walk, was seeing all my family and friends coming together, even lots of them hadn't met (friends from high school, youth group friend, theatre friends, family, and college friends)!


Also, I'm pretty proud that my weight has plateaued at 104 lbs. I'm trying to get it to 109 lbs. before clinic, and even though I haven't been able to put a single pound on in a couple weeks (since I started waitressing), AT LEAST it hasn't gone done a pound either.  I've had days I was so busy, I'd forget to eat all my meals &  about 2x  a week I skip my feeding at night (as a lil break from it) and I still don't lose weight. So that means my main weight is at 104 lbs and will most likely stay there now, until I can get past it and gain more.

Considering since 2003 I have struggled to keep it above 92 lbs. I'm very pleased! AND hopefully my upward trend in Lung Function will increase from 61% to 63%!

SOOOOO Excited! A lil nervous, but very excited! This Clinic has the potential to be amazing! :-) I almost don't want to wait the 2 weeks!

Comments

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...