Skip to main content

Update Time, getting close to clinic (pics too)

Update Time!

I have CF Clinic on November 17th and I'm very much excited about it! First of all, we always shop and eat out at one of my favorite places in Glenveiw! We (my uncles and I, or Ryan and I, or Mom and I- that is who I always go with) pretty much make it a whole day affair!

This Clinic will be extra exciting, since I will have stories to share. Snce my last Clinic I ran my FIRST 5k (and finished it- read about it here to read my blog about the 5K I did!)! So I'm taking Dr. B this picture in, along with a story about my journey (getting to point where I could run a 5K) to put in the newsletter!

AND I did the CF Walk with a TEAM this year (where we raised $1,200 -so proud of everyone!)! The coolest part about the walk, was seeing all my family and friends coming together, even lots of them hadn't met (friends from high school, youth group friend, theatre friends, family, and college friends)!


Also, I'm pretty proud that my weight has plateaued at 104 lbs. I'm trying to get it to 109 lbs. before clinic, and even though I haven't been able to put a single pound on in a couple weeks (since I started waitressing), AT LEAST it hasn't gone done a pound either.  I've had days I was so busy, I'd forget to eat all my meals &  about 2x  a week I skip my feeding at night (as a lil break from it) and I still don't lose weight. So that means my main weight is at 104 lbs and will most likely stay there now, until I can get past it and gain more.

Considering since 2003 I have struggled to keep it above 92 lbs. I'm very pleased! AND hopefully my upward trend in Lung Function will increase from 61% to 63%!

SOOOOO Excited! A lil nervous, but very excited! This Clinic has the potential to be amazing! :-) I almost don't want to wait the 2 weeks!
Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

My Clinical Trial Mess

A Clinical Trial Mess: Monday, I had an appointment for a clinical trial evaluation. Let me start out by saying, I always get  amazing care at my doctors...HOWEVER, this evaluation was done by a third party brought in to handle the research. The research nurse was a flibberty jibbet. She was nice, but kept just re-organizing her supplies, like she didn't know what to do. She seemed nervous. She mentioned she usually had another nurse with her. She took my weight, height, urine test, pre-med spirometry test (PFT-pulmonary function test) Next she decided to draw the blood, while waiting for the pft results to print. She got out the supplies and the sterile paper that she places it all on. She dropped te paper on the floor and proceeded to place the packaged needles and supplies on it.... So in my head I tell myself "Okay...( inhale control exhale my germfreak...) it's okay, it won't kill me..it only touches the bottom of my arm, not the actual place that she is dra...
6 comments
Read more