Skip to main content

First 5K is happening this time!

First 5K is scheduled

As you all know, I couldn't run in the 5K a couple weeks ago. I had a severe flare up of my "mummy disease." Dr. B is going to run a bunch of tests next time to see if it is a type of CFRA (Cystic Fibrosis related Arthritis).

Side Note: Apparently, CF thinks it is sooo special, it not only gives us secondary problems like Diabetes, Arthritis, Osteoperosis, BUT None of them are the normal type of condition, they are called CF-related "Arthritis, etc." Which means our Diabetes, etc doesn't act exactly like a common diagnosis of Diabetes. Go figure.

BUT I'm doing a 5K on September 8th! Yep, a month away! yipes! I better get jogging. I wasn't able to for the last 2.5 weeks do to not being able to move very well. But that is changing now! This weekend I will start jogging again. I need to do it more without headphones. Headphones aren't allowed on the route. Which means I will hear myself breathing heavy, wheezing, gasping,etc. Which might mean I will stop more often to cough or slow down to "catch my breath."

Good news is: I know plenty of show tunes and other songs I can kinda sing in my head while running. Maybe, I will come up with another trick. I wonder if we can wear ear plugs...

So September 8th, I'm jogging (and walking when my lungs feel on fire) a 5K! YAY! If anyone wants to come watch me! Just let me know! It starts at 8am at the Metro Center in Princeton.

Side Note: ALSO My Cystic Fibrosis Walk is coming up on October 6th, please consider joining my team or donating to the cause. I'm hoping to bring a huge team this year. The more people we have, the more money we raise, the more awareness we spread! Facebook group link: HERE!

CFers: I know I have talked about getting more active before, but if you aren't walking, jogging, biking, then give it a try. Start small, and work your way up. If I can bring my lung function from 38% in Jan 2010 to 61% Aug 2012, so can YOU! Keep at it, even if it is hard at first. It will pay off!

Comments

  1. Wow Cheriz! I think that your PFT improvement is off the charts!!!! So what have you been doing to increase it by over 20%?

    Good luck on your upcoming 5K!

    ReplyDelete
  2. Wish I had some great tip to share. But really, I've just been trying harder to gain weight, doing more of my therapies (I used to skip quite a few) I do albuteral 3x, hypertonic 2x, pulmo 1x, Cayston 3x a day and my vest for 30 minutes. I've been gaining weight, adding extra cans of feeding at night to my stomach pump, and have been working out/joggging to build muscle. I have a routine I follow. I'm also better about making sure I get more sleep. But yeah, I'm very happy with the results! Dr. B was beaming at my apt! and thanks!

    ReplyDelete

Post a Comment

Popular posts from this blog

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

Why I Hope this Hospital Stay is Different

Typically, I've been very stable as an adult. I'm very lucky for that stability. However, 2018 started out nowhere near where I wanted. I was admitted mid March for a virus. We aren't sure what virus I had (every test came back negative). However, I had a consistent fever over 102 the entire 5 days I was in the hospital. Once I was fever free for 24 hours and I started eating better, they let me return home. I was excited to leave and get back to my everyday life. But, considering now a month later (and re-admitted), I think I should of just done a two week tune-up last month while I was in already. Live and learn. As you know (I'm sure) I have been trying to get my lung function back up to around 55-60%. 60% is my goal and it really is the highest my lung function can get, due to all the permanent scarring. I started Orkambi in October 2016. At that time it was the newest gene-modifier drug on market for CF patients (with my mutations).  After going on Orkambi I droppe...