Skip to main content

First 5K is happening this time!

First 5K is scheduled

As you all know, I couldn't run in the 5K a couple weeks ago. I had a severe flare up of my "mummy disease." Dr. B is going to run a bunch of tests next time to see if it is a type of CFRA (Cystic Fibrosis related Arthritis).

Side Note: Apparently, CF thinks it is sooo special, it not only gives us secondary problems like Diabetes, Arthritis, Osteoperosis, BUT None of them are the normal type of condition, they are called CF-related "Arthritis, etc." Which means our Diabetes, etc doesn't act exactly like a common diagnosis of Diabetes. Go figure.

BUT I'm doing a 5K on September 8th! Yep, a month away! yipes! I better get jogging. I wasn't able to for the last 2.5 weeks do to not being able to move very well. But that is changing now! This weekend I will start jogging again. I need to do it more without headphones. Headphones aren't allowed on the route. Which means I will hear myself breathing heavy, wheezing, gasping,etc. Which might mean I will stop more often to cough or slow down to "catch my breath."

Good news is: I know plenty of show tunes and other songs I can kinda sing in my head while running. Maybe, I will come up with another trick. I wonder if we can wear ear plugs...

So September 8th, I'm jogging (and walking when my lungs feel on fire) a 5K! YAY! If anyone wants to come watch me! Just let me know! It starts at 8am at the Metro Center in Princeton.

Side Note: ALSO My Cystic Fibrosis Walk is coming up on October 6th, please consider joining my team or donating to the cause. I'm hoping to bring a huge team this year. The more people we have, the more money we raise, the more awareness we spread! Facebook group link: HERE!

CFers: I know I have talked about getting more active before, but if you aren't walking, jogging, biking, then give it a try. Start small, and work your way up. If I can bring my lung function from 38% in Jan 2010 to 61% Aug 2012, so can YOU! Keep at it, even if it is hard at first. It will pay off!

Comments

  1. Wow Cheriz! I think that your PFT improvement is off the charts!!!! So what have you been doing to increase it by over 20%?

    Good luck on your upcoming 5K!

    ReplyDelete
  2. Wish I had some great tip to share. But really, I've just been trying harder to gain weight, doing more of my therapies (I used to skip quite a few) I do albuteral 3x, hypertonic 2x, pulmo 1x, Cayston 3x a day and my vest for 30 minutes. I've been gaining weight, adding extra cans of feeding at night to my stomach pump, and have been working out/joggging to build muscle. I have a routine I follow. I'm also better about making sure I get more sleep. But yeah, I'm very happy with the results! Dr. B was beaming at my apt! and thanks!

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

Updates Galore!

Big News, Big Times, Big Change: I had my post hospital Doctor's appointment on April 21st and it went well. I posted a video on my CF facebook page. My weight is back on track, heading up. Also, my lung function was around 55%, so that's almost my baseline. I got to take my needle out that night. OH BOY!! I loved being needle free! Whoohoo no more IVs!!!!! In the last week I have been super busy with a few different things. 1. Work. I have a new client AND I had all my post licensing webinars & exams this last week! 2. More CF Foundation Volunteer work. I held a presentation in my home town, where I discussed CF, the different mutations & severity of classes, as well as fundraising for great strides. I talked about the history of the CF foundation, care centers, and more about our local IL CF fundraisers. Overall, it wasn't a big turn out, so I was a little bummed. My hometown has always supported my CF cause, so it was disappointing not to have a good numb...