Cheriz: My life with Cystic Fibrosis

Go with the Flow: Adapt is my advice to any bride-to-be. Not everything will be exactly as you planned it, but it you go with the flow, the day will still be perfect in your eyes. Since I have Cystic Fibrosis I'm pretty used to adapting. I get sick quickly, have arthritis flare ups, have to change meds, fight insurances, etc. Trust me adapting should be my middle name. I think that is one life lesson CF taught me early on, and if REALLY helps with wedding planning! I talked in my last post about how much I loved our Wedding. I did love it, every single aspect. I was beyond thrilled with the businesses that helped make it perfect. I tried to keep everything local and spread the love to smaller hometown businesses. Our caterer, Flowers, Decorations, Venue, Favors, etc were all local. #SupportLocal The week before the wedding was chaotic, not because of the wedding, but we were in the middle of moving! Andrew had taken a promotion at the new store and we were moving 2.5 hours ...

We Took Our Vows: Sunday, August 16th, Andrew and I said "I do." People asked me all weekend if I was getting nervous and now that we are married people ask how married life is going. Well, here is what I have been telling everyone.  No, I wasn't nervous about the wedding or marrying Andrew. I was slightly nervous I'd fall flat on my face in 2 inch heels walking down the aisle (which was grass). But, why would I be nervous to get married to Andrew. I've never had a doubt in my mind about him. I knew I wanted to marry him. We were  ready to be husband and wife and you just know when you are ready. So no, I wasn't nervous. And now that we are married I'd have to say life is similar to it was before we were married. People say "oh things change after you're married." But they didn't for us. I'm not sure if that's because we are open with each other, or have been through a lot early on in our relationship. Read this past post ab...

Just Boxes Everywhere: There are boxes taking over the apartment.  So even though I still have more to pack and very little time left, I decided to get out and go for a morning walk! I missed my morning walks the last 3 days from packing so much and sleeping in a little (til 8:30). So I didn't jog at all or try to push it. I need energy for more packing and moving of boxes today! I did 1 mile over a nice 20 minute leisurely stroll around the lakes. It was pretty nice out too! And of course now I'm doing meds while blogging :-) One of my favorite combos! I really want to be at my healthiest when I marry Andrew (read my "getting healthy plan" post here ).  Getting married and moving all in the next two weeks. Crazy, looking back at myself in 2012 before I met him, I had no plans of getting married or even finding a boyfriend at the time. I really had always seen my CF as a road block in relationships. But Andrew has proved me wrong. Read his post about dating me , ...

What a Month: Not only have I started an uphill climb in health (read last post), but I had to make some decisions for my health (like whether or not to start Orkambi). I'm been really focusing on my meds, working out, and gaining weight! Also this month Andrew & I are getting married and I'm going to be starting a new job, once we are settled. And by settled, I mean MOVED! That's right we are moving. Ha, again. This is the 3rd move in 3 years, but thankfully this next move should be where we settle. Andrew is getting a nice promotion with a management title at a brand new store. The store he will be working at has its grand opening the day after our wedding. Since it is a brand new store he really felt it was an opportunity he couldn't turn down, since there will be more openings for him to move up with, plus steady hours in a location close to our families. I'm not super thrilled about moving a third time, but I understand each time we have moved there hav...

My Big Doc Appointment: Okay, there is a lot to tell. So let's start with my working out & calorie counting. I know that sounds weird, but I forget to eat sometimes and like low calorie food. I don't care for greasy foods, sweets, or eating out. I'd rather have pickles, grapefruit, baked fish, and veggies at home.. Hence my problem. Low cal foods. So I count my calories. I have an app on my phone that helps me keep track and it subtracts what I have eaten from my goal. I set a goal at 3,000 a day. While I don't always make it to my goal, it sure beats the typical 800 calorie days I used to typically have... I also have been walking (with some jogging bits here and there) every single day my legs permit me. So since the 22nd I have done this for all except 2 days (where my legs were too sore). Those were my resting days. The last 3 days I have done a whole mile and I keep shaving time off. Today's mile was 15 minutes!!! Picture: As soon as we got home from...

 Who Doesn't LOVE the Summer: Summer is very much welcomed in our house! Andrew has more time off in the summer. I'm excited he graduates from college this December! Since the Fall of 2013 he has worked full-time while going to school full-time (35-45 hours at work & 12-15 credits per semester). This fall will be a little easier, he only has 2 classes & his Capstone Paper/project. However, he has been working on that this summer so he's ahead of the game. I've been enjoying spending more time with him this summer. Last night we walked down to the lake and had a picnic dinner. Had to find a shady spot so I didn't get sunburnt, I burn fairly fast from daily antibiotics & fair skin. We got to use one of our wedding shower presents. My mom got us a lawn blanket that zips up, along with the shadowbox, and other items. We love to going to the band concerts & activities in the park. So the lawn blanket will get lots of use. We packed it all up in a pic...

Gotta Keep Chugging: 2015 as year has been amazing, but also difficult at the same time. I love the achievements, happy memories, and celebrations that have or are happening. For example: I turned 30 years old in April. If you don't remember, check out the photo album from it on my CF Facebook page . We turned my birthday party into a Bowling CFF fundraisier, raising $400 for our Great Strides Walk! In June, I also hosted & organized Princeton's 2nd CF Walk (first official Great Strides Walk) and we raised over $22,000 for the CF Foundation. And of course, ANDREW & I ARE GETTING MARRIED in August!!! As promised here are a few more photos from our wedding shower- It was a beautiful shower, THANK YOU! It has been an amazing year!!!! But, it has its rough patches too. I've had lots of GastroIntestinal Issues, was on IV meds that I didn't respond too, was on steroids and over 11 nebulizers a day for a long time... And I only saw a slight increase in my...