Skip to main content

SummerTime

 Who Doesn't LOVE the Summer:

Summer is very much welcomed in our house! Andrew has more time off in the summer. I'm excited he graduates from college this December! Since the Fall of 2013 he has worked full-time while going to school full-time (35-45 hours at work & 12-15 credits per semester). This fall will be a little easier, he only has 2 classes & his Capstone Paper/project. However, he has been working on that this summer so he's ahead of the game. I've been enjoying spending more time with him this summer.


Last night we walked down to the lake and had a picnic dinner. Had to find a shady spot so I didn't get sunburnt, I burn fairly fast from daily antibiotics & fair skin. We got to use one of our wedding shower presents. My mom got us a lawn blanket that zips up, along with the shadowbox, and other items. We love to going to the band concerts & activities in the park. So the lawn blanket will get lots of use. We packed it all up in a picnic basket I got from an Aunt. We had slow roasted chicken (we had cooked all day), fresh sweet corn, tomatoes & cucumbers in vinegar, and some brownies.

Mom sent me home with the platter of brownies on Tuesday. She made them while I was visiting for my cousin's wedding. They are high calorie brownies. haha, as Andrew was plopping one in his mouth, I was like "heads up those are higher calorie." He was like "oh" haha. oh well, they are too good not to eat. Mom's Tip: Add Peanut Butter Powder to shakes & brownies for extra calories. Plus, it's tasty! I talked a lot about high calorie meals & tips in this post HERE!

Obviously, weight is an issue right now, since all those GI problems caused me to lose 10 lbs. My health isn't quite where it needs to be (as you may have read about in my last blog post). But, I'm on track to get it back.  Exercise is sooo important! I think I underestimated it in college. But I can see a BIG difference in my numbers & health when I work out. AND Summer is the perfect time to get involved outdoors, swimming, biking, jogging. I know my health always suffers slightly in the winter. I'm more of an outdoors person and really dislike working out in gyms.

That's one reason we choose to live where we do. We live in an apartment/Condo complex that has a pool and gym that we can use. This helps me out a lot. Its easy for me to use and not spend a lot of time driving to a local gym. We also live on the outskirts of our town, where there are trails that people can bike or walk.

I'm not super athletic, but I still enjoy walking, biking, etc. You don't need to be athletic to enjoy working out though. Its hard at first, but just take baby steps. I started out just walking around the block, now I'm doing 2 times that length and even added some bits of jogging throughout the walk. I shaved off a few minutes of my time.

Do what you need to in order to stay compliant with it. Working out with a friend always seemed to work for me. However, now that I live in a new town that is 1.5 hours away from everyone I know...I use an app on my phone to keep compliant. I have a work out app and a calorie counting app. I get soo busy sometimes I don't eat as much as I should. So now I keep track of my calories on this app and I make sure to hit 3,000 calories a day.

Whatever works for you, just stick with it! It may take time to see the results, so don't be discouraged. For example: in 2012 I went from walking 1 block to jog/walking a 5k. It took me from March- August to get there, so remember just keep trying!

 Enjoy this beautiful weather, look at that sky... anyone seen the Truman Show?? lol 

Keep you all posted on my CF appointment next Thursday, where Doc and I discuss Orkambi (check out the newest research and all about Orkambi here) :-)



Comments

Popular posts from this blog

A Simple Hug

I'm a hugging type person. In fact, I have a couple friends that aren't big on hugs or any kind of public displays of affection. However, they usually bring the bubble barrier (as I call it) down to hug me good bye. I'm also super extroverted and LOVE to hang out with friends.... Therefore, not being able to see my friends (with CF) in person drive me nuts. A lot of people (in society) don't realize that people with CF cannot be around each other. This is due to the bacteria we colonize in our lungs. It doesn't affect non-CF individuals. But, as we come in close proximity with other people with CF those bugs spread and continue to damage our lungs faster. We fight off the bacteria with antibiotics, but when I was younger we didn't have many options for antibiotics (especially nebulized). This meant we could not eradicate the bacteria and were stuck with it in our lungs for the rest of our life. The more bacteria we culture, the faster our lungs are damaged, t...

How theatre helped me more than you can know!

Theatre and the balance of my life Every person with Cystic Fibrosis has to figure out to balance the medical with the social. For years I had no clue. Currently, I'm in a show Hairspray, its really fun and a show I've always wanted to do. I'm being smart, no matter the time I get home I still do my meds, I still find time to do my jogging/exercise everyday and I eat extra/do extra stomach feeding to make up for calories burned. I've been sharing about my CF with cast members, when I need to and even the director knows. I watch my energy/blood sugar. AND even while doing the show I'm at my highest weight in 10 years and on Thurs at clinic (CF appt) I will find out if my lung function has gone up (hoping for 60%). So no worries..  I learned from my mistakes though. In the past I was stupid. When I was cast in   Urinetown, at the University of Illinois, I kept pushing too much at rehearsal and then even went out with cast members some...

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...