Skip to main content

A Birthday Treat


Born 12 weeks early and diagnosed with cystic fibrosis shortly People didn't think I'd live past 5 and tomorrow I turn 34 years old. BOOM BABY!





I wear my age, gray hair, and wrinkles proudly (yes, even the wrinkles). Hats off to all the medication for keeping me alive. And OF COURSE... my parents, doctors, family, and friends. Research and fundraising has really helped some AMAZING, life prolonging drugs come to market. I have a large support system that helps and volunteers. I'm so thankful!!





Heaven knows I needed that support system when I became a foster mom. Especially since I went from zero kids to three specialized (needs) kids. All three of whom I LOVE completely and will do anything for in the future. But, I needed help when I was sick, run down, and tired. As I said in a previous post last mont, " It's a challenge to be foster parents, it's not a challenge to love them" (Blog post: Thinking of Fostering).





I know most parents are guilty of spending money on their kids and not nearly enough on themselves, I'm guilty of that. And I think my life has been so busy and full (see post: Finding some ME TIME) that I haven't gone shopping for myself in WAY too long. Even worse, I haven't bought new clothes that fit since my (AWESOME) weight gain! Yes, as a person with CF, I'm easily malnourished, so I'm encouraged to gain weight all the time. So when I'm busting out of my jeans, I'm proud. But yipes, I need to shop.





Theatre Snacks & Enzymes




I had told Andrew for my birthday I wanted to get a new piece of clothing, spend the day with my family, and see the movie "Five Feet Apart" in the theatre at some point. (on an afternoon on a weekday- less crowds).





WELL, last week we made plans to have my family come over and we went to see "Five Feet Apart" on Tuesday. I posted a review video on my Blog's Facebook page HERE. I really did enjoy the movie, but I think it's important to discuss a lot of the topics, so please check out the video at the link. But, the cool and unexpected shock came last week, when a local shop: Seventh Street Boutique decided to give an outfit giveaway for a foster parent in the area. Lots of ladies were nominated and I was showered with love as lots of family & friends. I wasn't drawn as the winner of the outfit & accessories! But, the boutique felt the emotions behind all the nominations that I & one other local friend received, that we also will get a free article of clothing: either Shirt, Pants, or dress!









Andrew and I went to pick out my piece of clothing TODAY as an early birthday treat and as a way to start the weekend!





Seventh Street Boutique has tons of clothing and accessories! Lots of styles and everything I tried on was comfy too! I was impressed by the range of sizes. Small to plus sizes and lots variety! I highly recommend stopping in and seeing what they have in stock. I mean cute, stylish, affordable, and gives back to community! What's not to love?!





speaking of LOVE...









I LOVE my new DRESS!?!?! I plan to wear it on Easter with the earrings that my babysitting kid made me back when she was like 8 years old!





As far as my birthday plans... Looking forward to spending the day with my family, simple & sweet. Just how I like it!





(PS> I have a birthday fundraiser going on for Cystic Fibrosis Foundation CF Walk: LINK TO DONATE! )


Labels:

Comments

Post a Comment

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more