Skip to main content

Determination

I'm determined more than ever now! I had CF Clinic on Tuesday. If you didn't get to see our vlog that Andrew & I made afterwards, check it out on YouTube here!

So yes, we are pretty happy about the step up in lung function and my stable weight. It doesn't mean I can slack on meds or stop trying so hard. There is no break with Cystic Fibrosis. But a good clinic gives us hope. Andrew & I hang onto every good clinic we can. Especially since lately my health has been a yo-yo, always going up & down. I'm hoping to break that cycle and continue upward.

I want to work my hardest during my nebulizer treatments. Believe it or not, even though I do them all, I get os used to them that sometimes I forget to breath them in. I put them in my mouth and start chewing the mouthpiece and breathe through my nose. I don't even realize I'm doing it. It's a horrible habit. I'm also excited it is warm out again!

That means I can start walking (and trying to jog) more often. I am preparing for my first 5k of the year on April 22nd! AND it is a 5K for Cystic Fibrosis near where I live. If you live in Central Illinois make sure to check it out! More info is on their facebook page HERE!

I'm also going to get back involved with the PiYo class in town and even start working out as much as I can.

As Dr. K said "this is only step towards 60%" -which is the ultimate goal. Also he would like me to reach 115 pounds. I am hesitant, considering how short I am, but I made a bargain to gain it. He made a good point that I can gain muscle & gain it slowly. I do agree I need to be at my healthiest!

And I haven't forgotten about those surprises I said we have to announce soon!!  Keep tuned...

 For everyone celebrating Easter, I hope it is a beautiful Easter!

Labels

Labels:

Comments

  1. Ashley AshbeeApril 26, 2017 at 2:33 PM

    Hi Cheriz,

    Spring is so special to so many people and it's lovely to read how it has extra meaning for you. Congrats on the increase in lung function. I'm a big believer in celebrating health victories and I wish you many cooperative body days.

    I love to walk in this weather!

    Cheers,

    Ashley

    ReplyDelete
    Replies
    1. CherizMay 9, 2017 at 11:25 AM

      Thanks Ashley. I always celebrate even small achievements. I always try to find the positive and I'm loving the warmer weather!

      Delete

Post a Comment

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 
3 comments
Read more

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...
2 comments
Read more

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...
3 comments
Read more