Skip to main content

Determination

I'm determined more than ever now! I had CF Clinic on Tuesday. If you didn't get to see our vlog that Andrew & I made afterwards, check it out on YouTube here!

So yes, we are pretty happy about the step up in lung function and my stable weight. It doesn't mean I can slack on meds or stop trying so hard. There is no break with Cystic Fibrosis. But a good clinic gives us hope. Andrew & I hang onto every good clinic we can. Especially since lately my health has been a yo-yo, always going up & down. I'm hoping to break that cycle and continue upward.

I want to work my hardest during my nebulizer treatments. Believe it or not, even though I do them all, I get os used to them that sometimes I forget to breath them in. I put them in my mouth and start chewing the mouthpiece and breathe through my nose. I don't even realize I'm doing it. It's a horrible habit. I'm also excited it is warm out again!

That means I can start walking (and trying to jog) more often. I am preparing for my first 5k of the year on April 22nd! AND it is a 5K for Cystic Fibrosis near where I live. If you live in Central Illinois make sure to check it out! More info is on their facebook page HERE!

I'm also going to get back involved with the PiYo class in town and even start working out as much as I can.

As Dr. K said "this is only step towards 60%" -which is the ultimate goal. Also he would like me to reach 115 pounds. I am hesitant, considering how short I am, but I made a bargain to gain it. He made a good point that I can gain muscle & gain it slowly. I do agree I need to be at my healthiest!

And I haven't forgotten about those surprises I said we have to announce soon!!  Keep tuned...

 For everyone celebrating Easter, I hope it is a beautiful Easter!
Labels:

Comments

  1. Ashley AshbeeApril 26, 2017 at 2:33 PM

    Hi Cheriz,

    Spring is so special to so many people and it's lovely to read how it has extra meaning for you. Congrats on the increase in lung function. I'm a big believer in celebrating health victories and I wish you many cooperative body days.

    I love to walk in this weather!

    Cheers,

    Ashley

    ReplyDelete
    Replies
    1. CherizMay 9, 2017 at 11:25 AM

      Thanks Ashley. I always celebrate even small achievements. I always try to find the positive and I'm loving the warmer weather!

      Delete

Post a Comment

Popular posts from this blog

My Dad Deserves More Than 1 Day!

Happy Fathers' Day to ALL the Fathers out there! I wanted to post a list to why I'm sooo thankful for my dad (its faster, bit more fun, and I gotta get ready for my Dad's Cookout still)!!! Top 15 (10 isn't enough..lol) reasons Dad should get more than a day of celebration: 15. He loves meeting people, making friends, and is quite social. 14. When something goes wrong, he is the person that can say the right thing to make me smile :-) 13. Is always honest. 12. Few yrs ago, he gave me HIS car, (so i could get back and forth to work/play practices) He rode his bike to work and back (he enjoys it too tho) 11. Best Sense of Humor! 10. He never complains, ever! 9. Growing up my Dad worked 6am-3pm at one job and 4:30-10pm at another. 8. Dad still managed to go to 99.9% of my performances 7. He is the least judgemental person ever, he talks to & helps everyone! 6. He is a pro at making doctors, insurance companies, & hospitals do ...
3 comments
Read more

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...
5 comments
Read more

A Simple Hug

I'm a hugging type person. In fact, I have a couple friends that aren't big on hugs or any kind of public displays of affection. However, they usually bring the bubble barrier (as I call it) down to hug me good bye. I'm also super extroverted and LOVE to hang out with friends.... Therefore, not being able to see my friends (with CF) in person drive me nuts. A lot of people (in society) don't realize that people with CF cannot be around each other. This is due to the bacteria we colonize in our lungs. It doesn't affect non-CF individuals. But, as we come in close proximity with other people with CF those bugs spread and continue to damage our lungs faster. We fight off the bacteria with antibiotics, but when I was younger we didn't have many options for antibiotics (especially nebulized). This meant we could not eradicate the bacteria and were stuck with it in our lungs for the rest of our life. The more bacteria we culture, the faster our lungs are damaged, t...
2 comments
Read more