Skip to main content

My Favorite Post of the Year!

Every New Year's I post a yearly review of everything that took place. It is surprising to see how much has happened and how much of a roller coaster ride life can be.

I'm ending this year with not-so-great doctor's visit with my lung function back in the 30s, but I truly believe in 2017 it will all get better. My lung function, health, and life in general. I am doing a lot of outpatient tests right now to see what it is going on in my lungs ( I had some stuff show up on my last CT scan). So in January I have another appointment to get a plan together. Whether it be an admission or home IVs, or something else. One day at a time, but for now let's look back on this year!

Here is 2016:
January & February
Fighting Insurance for Colistin because my lung function was low, which
is why I had to cancel my eye surgery.




March
I was the guest speaker at the Annual CF Meeting & honored
to receive an award "2015 Great Strides Partner of the Year"

(PICTURE: Myself, Red Dog CF Non-Profit, Colton Underwood, and CFF Peoria director Kellie)


April
I was admitted on my birthday. One week in hospital 
and one week with home IVs.
Also, finally got my Colistin approved!



May
I switched back to my Peoria CF Clinic (after 5 years with Doc. B). Big decision. 
My family & friends also hosted our Right Spice CFF passion fundraiser ($2,120)



June
The Princeton Walk raised over $13,000 and
we bought our first & forever home! 



July
I started doing 5ks. Here is one I did with my sister.
I do ALS 5ks for my friend, Sean (who has ALS)



August
Celebrated our first year of marriage together. 



September
I was finally healthy enough for my eye surgery
Also finally bought a medical alert bracelet for my Morphine allergy.



October
I started ORKAMBI
and I wrote my first guestblog for the National CF Foundation Website HERE!



November
Spent half the month in the hospital, 
but my family celebrated Thanksgiving in my room with me!


December
I was thrilled to be released from the hospital in time for Christmas
 and I guestblogged on the CFF Website HERE 
(about our future & how CF affects our family planning.)


Hope everyone has a happy New Year! 

Do you want to see all my yearly review posts from 2013-2015?
Then click here and just scroll it has all all 3 of them :-)


Comments

Popular posts from this blog

My Dad Deserves More Than 1 Day!

Happy Fathers' Day to ALL the Fathers out there! I wanted to post a list to why I'm sooo thankful for my dad (its faster, bit more fun, and I gotta get ready for my Dad's Cookout still)!!! Top 15 (10 isn't enough..lol) reasons Dad should get more than a day of celebration: 15. He loves meeting people, making friends, and is quite social. 14. When something goes wrong, he is the person that can say the right thing to make me smile :-) 13. Is always honest. 12. Few yrs ago, he gave me HIS car, (so i could get back and forth to work/play practices) He rode his bike to work and back (he enjoys it too tho) 11. Best Sense of Humor! 10. He never complains, ever! 9. Growing up my Dad worked 6am-3pm at one job and 4:30-10pm at another. 8. Dad still managed to go to 99.9% of my performances 7. He is the least judgemental person ever, he talks to & helps everyone! 6. He is a pro at making doctors, insurance companies, & hospitals do ...

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

A Simple Hug

I'm a hugging type person. In fact, I have a couple friends that aren't big on hugs or any kind of public displays of affection. However, they usually bring the bubble barrier (as I call it) down to hug me good bye. I'm also super extroverted and LOVE to hang out with friends.... Therefore, not being able to see my friends (with CF) in person drive me nuts. A lot of people (in society) don't realize that people with CF cannot be around each other. This is due to the bacteria we colonize in our lungs. It doesn't affect non-CF individuals. But, as we come in close proximity with other people with CF those bugs spread and continue to damage our lungs faster. We fight off the bacteria with antibiotics, but when I was younger we didn't have many options for antibiotics (especially nebulized). This meant we could not eradicate the bacteria and were stuck with it in our lungs for the rest of our life. The more bacteria we culture, the faster our lungs are damaged, t...