Skip to main content

My Favorite Post of the Year!

Every New Year's I post a yearly review of everything that took place. It is surprising to see how much has happened and how much of a roller coaster ride life can be.

I'm ending this year with not-so-great doctor's visit with my lung function back in the 30s, but I truly believe in 2017 it will all get better. My lung function, health, and life in general. I am doing a lot of outpatient tests right now to see what it is going on in my lungs ( I had some stuff show up on my last CT scan). So in January I have another appointment to get a plan together. Whether it be an admission or home IVs, or something else. One day at a time, but for now let's look back on this year!

Here is 2016:
January & February
Fighting Insurance for Colistin because my lung function was low, which
is why I had to cancel my eye surgery.




March
I was the guest speaker at the Annual CF Meeting & honored
to receive an award "2015 Great Strides Partner of the Year"

(PICTURE: Myself, Red Dog CF Non-Profit, Colton Underwood, and CFF Peoria director Kellie)


April
I was admitted on my birthday. One week in hospital 
and one week with home IVs.
Also, finally got my Colistin approved!



May
I switched back to my Peoria CF Clinic (after 5 years with Doc. B). Big decision. 
My family & friends also hosted our Right Spice CFF passion fundraiser ($2,120)



June
The Princeton Walk raised over $13,000 and
we bought our first & forever home! 



July
I started doing 5ks. Here is one I did with my sister.
I do ALS 5ks for my friend, Sean (who has ALS)



August
Celebrated our first year of marriage together. 



September
I was finally healthy enough for my eye surgery
Also finally bought a medical alert bracelet for my Morphine allergy.



October
I started ORKAMBI
and I wrote my first guestblog for the National CF Foundation Website HERE!



November
Spent half the month in the hospital, 
but my family celebrated Thanksgiving in my room with me!


December
I was thrilled to be released from the hospital in time for Christmas
 and I guestblogged on the CFF Website HERE 
(about our future & how CF affects our family planning.)


Hope everyone has a happy New Year! 

Do you want to see all my yearly review posts from 2013-2015?
Then click here and just scroll it has all all 3 of them :-)


Comments

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...