My Favorite Post of the Year!

Every New Year's I post a yearly review of everything that took place. It is surprising to see how much has happened and how much of a roller coaster ride life can be.

I'm ending this year with not-so-great doctor's visit with my lung function back in the 30s, but I truly believe in 2017 it will all get better. My lung function, health, and life in general. I am doing a lot of outpatient tests right now to see what it is going on in my lungs ( I had some stuff show up on my last CT scan). So in January I have another appointment to get a plan together. Whether it be an admission or home IVs, or something else. One day at a time, but for now let's look back on this year!

Here is 2016:

January & February

Fighting Insurance for Colistin because my lung function was low, which

is why I had to cancel my eye surgery.

March

I was the guest speaker at the Annual CF Meeting & honored

to receive an award "2015 Great Strides Partner of the Year"

(PICTURE: Myself, Red Dog CF Non-Profit, Colton Underwood, and CFF Peoria director Kellie)

April

I was admitted on my birthday. One week in hospital

and one week with home IVs.

Also, finally got my Colistin approved!

May

I switched back to my Peoria CF Clinic (after 5 years with Doc. B). Big decision.

My family & friends also hosted our Right Spice CFF passion fundraiser ($2,120)

June

The Princeton Walk raised over $13,000 and

we bought our first & forever home!

July

I started doing 5ks. Here is one I did with my sister.

I do ALS 5ks for my friend, Sean (who has ALS)

August

Celebrated our first year of marriage together.

September

I was finally healthy enough for my eye surgery

Also finally bought a medical alert bracelet for my Morphine allergy.

October

I started ORKAMBI

and I wrote my first guestblog for the National CF Foundation Website HERE!

November

Spent half the month in the hospital,

but my family celebrated Thanksgiving in my room with me!

December

I was thrilled to be released from the hospital in time for Christmas

and I guestblogged on the CFF Website HERE

(about our future & how CF affects our family planning.)

Hope everyone has a happy New Year!

Do you want to see all my yearly review posts from 2013-2015?
Then click here and just scroll it has all all 3 of them :-)

Comments

Today's BIG Appointment

I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec

Post- Surgery Appointment

Post Surgery Appt: As you prolly know, I had Laparoscopic Triple Hernia Surgery last Tuesday. Here was a picture of me devouring a piece of bread so I could go home afterward the surgery (4 hours post surgery and 20 mins post waking up from recovery). I was ready to go home! Today I had my post surgery check up. He said everything in the surgery went well and besides the finding the 3rd hernia there were no surprises. He pointed out where the staples/stitches (they are holding the mesh in place) are in me. I have two on each side at the end of the mesh (so 4 on top) and two down farther in my groin. Apparently, I just have one huge piece of mesh that runs the width and length of my whole abdomen/groin area. Bahaha. I am Inspector Gadget after all. He said a few more weeks before I can lift stuff or exercise. Also, he said the area where the staples are will hurt when bending or twisting. However, I only notice really when I twist or turn too fast. Overall, it was a nice appointment

Big Update Time & what I need!

Time Flies: I've been blogging about all these separate things I have going on in my life. My lung function drop, the hospital stay, my stomach/ GI issues, the surgery, the Princeton IL CF walk, my fight with insurance for my Cayston medication/machine, and soooo much more. So here's a bit of a catch up for everyone! Let me start at the very beginning: read my CF history in this brief post here . Now let's skip ahead to the last 6 months. From September 2014 - Feb 2015 I lost 3 CF friends ( it was really tough). In September my best friend with CF (from childhood & on) passed away from CF. I wrote a post about her journey, love for life, and how she was (& is) my inspiration to fund raise (read about Laura's Journey here ). Then in October I got my G-tube taken out/ fistula fixed and removed. YAY YAY YAY! The abdominal surgery was my 15th surgery, so I recovered pretty quickly. I'm beyond thrilled to say after 15 YEARS with a G-tube and needing to u

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