Skip to main content

Checking Off My List

Good News:

A Sigh of Relief. Finally. I had my eye surgery last week and I had my post- operation follow up appointment yesterday. All is going perfect with my eyes! I've been needing this surgery done for the last year, but had to cancel twice due to my getting sick right before surgery.

I had Strabismus surgery. Basically my eyes (mostly the right eye) wonder and can't follow along together. My eyes didn't work as a pair and my left eye took over my sight. So I had depth perception problems, bad night vision, and stopped reading books about a year ago. I was so happy that Wednesday I got to follow through with the surgery!

I have one more post operation surgery appointment next month, but Doc said they look perfect! Well, technically they are still bloody (in the surgery they snip the white part/muscles and stitch them tighter), but I love my bloody eyes more than my old ones and can't wait to read the stack of books waiting for me!!!!

My checklist is finally getting accomplished:
✔ eyes surgery
✔ medical alert bracelet

Yep, that's right!!!! I ordered a medical alert bracelet. Remember about a month ago I asked for opinions? Well, a friend of mine is a KEEP collective designer & through the month of September she is donating a portion of proceeds to the Peoria CF Walk! So I decided it was the perfect opportunity to order an alert bracelet & a CURE CF Bracelet.

I absolutely love them! The bands are reversible and I can move the plates & charms on either band, so it makes a total of 8 looks out of just these 2 bands I bought! If you would like to order anything in the next week through my KEEP online Social party (and have a portion of proceed benefit the CF Foundation), go this KEEP site here!

Why a medical alert bracelet? It was important for my family & friends to feel I was safe in case of an emergency (and myself). If I wasn't deathly allergic to Morphine, I wouldn't be so worried. The last time I was given morphine I went into anaphylactic shock and almost died. I think alerting people I have CF and not to give me morphine were my two priorities. I think being able to put the engraved plate on different bands will make it work with any outfit I wear.  I'm not a huge bracelet person, but these bands adjusted to any size, so they are comfortable.

✔ CF Peoria Walk Ready

October 1st is the Peoria Walk! I'm not sure how big my team will be this year! Last year we had quite a few more people join us. I help plan the Peoria walk, so it is VERY important to me! I'm very excited about the Live Music, Photo booth, and other fun activities at the Walk! But, the best reasons to attend would be:

 1. Andrew, my husband is the Guest Speaker.
 2. It raises money for the CF Foundation, bringing us closer to CURE every single day!

Please consider joining my team that day or donate to our link:
http://fightcf.cff.org/goto/CF2Peoria


Hoping to start Orkambi this month, insurance is still dragging feet. Also, big CF Fundraiser at Rips coming up!!! Follow my CF Facebook page or twitter for more updates!

Comments

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

Laura/Lara- two amazing gals

Laura and Lara Today, was a pretty normal day. Work, Meds, Jog, Blog. Instead of jogging, we walked 2.5 miles. (which I recorded in my spreadsheet and I will be doing data analysis later using all the variables I can come up with...) But here is the more EXCITING part of my day: I was asked a week ago to be a guestblogger for  Lara's Blog . She is climbing  Mt. Kilimanjaro to raise awareness & funds for CF in memory of her best friend Emma! I hope everyone goes to her blog and wishes her good luck! She posted my introduction and guestblog today!!! So check it out  Right HERE! Lara, Thank you for your hard work and dedication to helping find a cure for CF! AND then there is Laura ( a different Laura), she is my best friend. Laura has CF too (we met when we were really young)!!! I know she has been going through a tough time. But she is the one who got me invovled in CF awareness! My first CF fundriaser was in 2008 at a CF Walk that Laura to...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...