Skip to main content

Checking Off My List

Good News:

A Sigh of Relief. Finally. I had my eye surgery last week and I had my post- operation follow up appointment yesterday. All is going perfect with my eyes! I've been needing this surgery done for the last year, but had to cancel twice due to my getting sick right before surgery.

I had Strabismus surgery. Basically my eyes (mostly the right eye) wonder and can't follow along together. My eyes didn't work as a pair and my left eye took over my sight. So I had depth perception problems, bad night vision, and stopped reading books about a year ago. I was so happy that Wednesday I got to follow through with the surgery!

I have one more post operation surgery appointment next month, but Doc said they look perfect! Well, technically they are still bloody (in the surgery they snip the white part/muscles and stitch them tighter), but I love my bloody eyes more than my old ones and can't wait to read the stack of books waiting for me!!!!

My checklist is finally getting accomplished:
✔ eyes surgery
✔ medical alert bracelet

Yep, that's right!!!! I ordered a medical alert bracelet. Remember about a month ago I asked for opinions? Well, a friend of mine is a KEEP collective designer & through the month of September she is donating a portion of proceeds to the Peoria CF Walk! So I decided it was the perfect opportunity to order an alert bracelet & a CURE CF Bracelet.

I absolutely love them! The bands are reversible and I can move the plates & charms on either band, so it makes a total of 8 looks out of just these 2 bands I bought! If you would like to order anything in the next week through my KEEP online Social party (and have a portion of proceed benefit the CF Foundation), go this KEEP site here!

Why a medical alert bracelet? It was important for my family & friends to feel I was safe in case of an emergency (and myself). If I wasn't deathly allergic to Morphine, I wouldn't be so worried. The last time I was given morphine I went into anaphylactic shock and almost died. I think alerting people I have CF and not to give me morphine were my two priorities. I think being able to put the engraved plate on different bands will make it work with any outfit I wear.  I'm not a huge bracelet person, but these bands adjusted to any size, so they are comfortable.

✔ CF Peoria Walk Ready

October 1st is the Peoria Walk! I'm not sure how big my team will be this year! Last year we had quite a few more people join us. I help plan the Peoria walk, so it is VERY important to me! I'm very excited about the Live Music, Photo booth, and other fun activities at the Walk! But, the best reasons to attend would be:

 1. Andrew, my husband is the Guest Speaker.
 2. It raises money for the CF Foundation, bringing us closer to CURE every single day!

Please consider joining my team that day or donate to our link:
http://fightcf.cff.org/goto/CF2Peoria


Hoping to start Orkambi this month, insurance is still dragging feet. Also, big CF Fundraiser at Rips coming up!!! Follow my CF Facebook page or twitter for more updates!

Comments

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

Cystic Fibrosis Clinic Results. Not what I wanted, but...

My Results: I went down in lung function 2% points and lost  a couple more lbs. So I'm at 102. I was really disappointed with myself. I know that I have been doing  my meds and I have been doing my stomach feeding most nights too.  I have been making the right decisions and all my friends have been very supportive. I bring my nebulizers over to their houses to do them if we are hanging out, etc. It just wasn't enough this clinic. I really thought there would be a slight increase. However, I haven't been jogging since it is cold outside. And I know waitressing has been making it hard to gain weight. Plus, its winter. It is always harder for me to stay healthy in the winter. Dr. B was still pleased. He said "I should give myself a break, I have been doing everything he asked, I ran a 5K, and I'm still doing well." And that is true 2% increase isn't a huge decrease, only if I continue to decrease then there is a problem. Dr. B told me that I need to focus...