Skip to main content

Happy Dance

Yay, I'm Pretty Happy! 

 You prolly (I always type prolly instead of probably, because that is how I always pronounce it) know that I had my Cystic Fibrosis Clinic today. Well, Doc B hates when I call it clinic (because its impersonal and he is proud of the fact he has a Private Practice for CF), but eh it's clinic in my mind. It's always a really long day when I have my appointment in the morning, since I have to get up at the crack of dawn to get all my morning meds done in time. I woke up at 5am and did my 4 nebulizers & vest. Shopping & lunch always follows doc appointments too... of course ;-)

Pic: So here I am getting ready. 

 I was a little nervous since I was in the hospital in January and was on IVs for 3 weeks (read about my Home IVs HERE), then got sick again in February & April and back on antibiotics (oral). I had no clue how my numbers would look. I've been working hard. BUT, with my lung function around 48% in January, 40% in February, then 56% in March, and back down to 50% on my birthday (that's right Doc appt & sick on my 30th bday), I had no CLUE where I would be today.

I've been feeling a lot better, more energy, slowly walking and doing more. So I'm building my endurance back up so I can exercise more. I've been working hard at eating more & keeping on top of all my meds. I've even been doing extra when I feel cruddy or wheezy. So I was hopeful. I wanted to be back to my baseline.

AND I was... I'm back to my average 55% lung function and my weight is even back up to 103 lbs. So I want to keep that up too!!!

Doc is super impressed I'm following up with GI doc to work out my stomach/ intestinal issues. Plus, I'm calling the Rheumatologist again (from 2013) to see how my blood work looks (long story). But, I need to know since my CFRA is getting worse (or whatever it is)!

I'm very much looking forward to this weekend. I'm celebrating my (rescheduled) birthday with some close family & friends ( my party is a mini CF Walk fundraiser). Plus, I'm getting my wedding dress altered and mom & I are doing some wedding errands! I'm putting up the CF Walk flyers around town & doing some CF Walk errands too!

Busy and productive weekend, but it's gonna be a fun one! And today was amazing, not only did I spend a great day with Uncle Brian & my mom, BUT I found out on I'm on the right track healthwise. Like I said in this previous post : it's like Babysteps) and it takes time! But I can do it, if I keep focused.

Doc B talked about new clinical trials I could do too, so I'll update more about that as I get the info!

So everyone do a happy dance, because even though I still have a lot of work ahead of me, I'm heading the right direction!

Oh and HAPPY EARTH DAY
(from a past Geology Major)!


Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...
3 comments
Read more

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more