Skip to main content

Happy Dance

Yay, I'm Pretty Happy! 

 You prolly (I always type prolly instead of probably, because that is how I always pronounce it) know that I had my Cystic Fibrosis Clinic today. Well, Doc B hates when I call it clinic (because its impersonal and he is proud of the fact he has a Private Practice for CF), but eh it's clinic in my mind. It's always a really long day when I have my appointment in the morning, since I have to get up at the crack of dawn to get all my morning meds done in time. I woke up at 5am and did my 4 nebulizers & vest. Shopping & lunch always follows doc appointments too... of course ;-)

Pic: So here I am getting ready. 

 I was a little nervous since I was in the hospital in January and was on IVs for 3 weeks (read about my Home IVs HERE), then got sick again in February & April and back on antibiotics (oral). I had no clue how my numbers would look. I've been working hard. BUT, with my lung function around 48% in January, 40% in February, then 56% in March, and back down to 50% on my birthday (that's right Doc appt & sick on my 30th bday), I had no CLUE where I would be today.

I've been feeling a lot better, more energy, slowly walking and doing more. So I'm building my endurance back up so I can exercise more. I've been working hard at eating more & keeping on top of all my meds. I've even been doing extra when I feel cruddy or wheezy. So I was hopeful. I wanted to be back to my baseline.

AND I was... I'm back to my average 55% lung function and my weight is even back up to 103 lbs. So I want to keep that up too!!!

Doc is super impressed I'm following up with GI doc to work out my stomach/ intestinal issues. Plus, I'm calling the Rheumatologist again (from 2013) to see how my blood work looks (long story). But, I need to know since my CFRA is getting worse (or whatever it is)!

I'm very much looking forward to this weekend. I'm celebrating my (rescheduled) birthday with some close family & friends ( my party is a mini CF Walk fundraiser). Plus, I'm getting my wedding dress altered and mom & I are doing some wedding errands! I'm putting up the CF Walk flyers around town & doing some CF Walk errands too!

Busy and productive weekend, but it's gonna be a fun one! And today was amazing, not only did I spend a great day with Uncle Brian & my mom, BUT I found out on I'm on the right track healthwise. Like I said in this previous post : it's like Babysteps) and it takes time! But I can do it, if I keep focused.

Doc B talked about new clinical trials I could do too, so I'll update more about that as I get the info!

So everyone do a happy dance, because even though I still have a lot of work ahead of me, I'm heading the right direction!

Oh and HAPPY EARTH DAY
(from a past Geology Major)!


Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

My Body Can't Keep Up

I turned 34 in April this year! I love celebrating my birthday each year and seeing more wrinkles and gray hair appear. I LOVE that I am building this beautiful life with my family. I just wish my body could keep up... Being born with cystic fibrosis meant some challenges throughout my life. I never knew when CF would throw me a curve ball. I missed a lot of holidays in the hospital growing up and sometimes my body tells me to stop. The last few months have been more rough for my CF-related Arthritis. And today isn't any different, despite it being Father's Day! Dad & Andrew I had wonderful plans to go home to see my Dad today, then come back home in time to make some dinner for my family when Andrew gets off work around 5 or 6pm tonight. I had a lot of great plans to celebrate my husband and Dad for Father's Day- They deserve it. But, I woke up with frozen/stiff joints and spots all over. I can barely move, let alone walk or drive today. So all those plans went out the...
4 comments
Read more

The Stork Came!

It finally happened!!! The Stork came to our house!! We had 3 kids placed with us (on August 4th) Friday afternoon. Luckily, Andrew was able to take off Friday-Monday (Aug 4th-7th) to be home as we all adjust the first few days. He then worked 8th-12th, but we needed him back home more until the kiddos started school. So took a full second week off, because it was really rough ! Big thanks to Culvers & Phil for allowing us time we needed. I love having kids in the house, but it's a lot of appointments for these kiddos at first. . For privacy reasons, I will never use their names or post pictures of them.  I have made fake names for these posts. When they called I was a little nervous to take 3 kids at once, especially since I have Cystic Fibrosis. We had agreed on only 2 originally. But, the lady explained the 3 of them really needed somewhere. Most foster parent's don't take sibling groups and it is really rare to find one that will take three, so our hearts wanted to ...
8 comments
Read more