Skip to main content

Happy Dance

Yay, I'm Pretty Happy! 

 You prolly (I always type prolly instead of probably, because that is how I always pronounce it) know that I had my Cystic Fibrosis Clinic today. Well, Doc B hates when I call it clinic (because its impersonal and he is proud of the fact he has a Private Practice for CF), but eh it's clinic in my mind. It's always a really long day when I have my appointment in the morning, since I have to get up at the crack of dawn to get all my morning meds done in time. I woke up at 5am and did my 4 nebulizers & vest. Shopping & lunch always follows doc appointments too... of course ;-)

Pic: So here I am getting ready. 

 I was a little nervous since I was in the hospital in January and was on IVs for 3 weeks (read about my Home IVs HERE), then got sick again in February & April and back on antibiotics (oral). I had no clue how my numbers would look. I've been working hard. BUT, with my lung function around 48% in January, 40% in February, then 56% in March, and back down to 50% on my birthday (that's right Doc appt & sick on my 30th bday), I had no CLUE where I would be today.

I've been feeling a lot better, more energy, slowly walking and doing more. So I'm building my endurance back up so I can exercise more. I've been working hard at eating more & keeping on top of all my meds. I've even been doing extra when I feel cruddy or wheezy. So I was hopeful. I wanted to be back to my baseline.

AND I was... I'm back to my average 55% lung function and my weight is even back up to 103 lbs. So I want to keep that up too!!!

Doc is super impressed I'm following up with GI doc to work out my stomach/ intestinal issues. Plus, I'm calling the Rheumatologist again (from 2013) to see how my blood work looks (long story). But, I need to know since my CFRA is getting worse (or whatever it is)!

I'm very much looking forward to this weekend. I'm celebrating my (rescheduled) birthday with some close family & friends ( my party is a mini CF Walk fundraiser). Plus, I'm getting my wedding dress altered and mom & I are doing some wedding errands! I'm putting up the CF Walk flyers around town & doing some CF Walk errands too!

Busy and productive weekend, but it's gonna be a fun one! And today was amazing, not only did I spend a great day with Uncle Brian & my mom, BUT I found out on I'm on the right track healthwise. Like I said in this previous post : it's like Babysteps) and it takes time! But I can do it, if I keep focused.

Doc B talked about new clinical trials I could do too, so I'll update more about that as I get the info!

So everyone do a happy dance, because even though I still have a lot of work ahead of me, I'm heading the right direction!

Oh and HAPPY EARTH DAY
(from a past Geology Major)!


Labels:

Comments

Post a Comment

Popular posts from this blog

Post- Surgery Appointment

Post Surgery Appt: As you prolly know, I had Laparoscopic Triple Hernia Surgery last Tuesday. Here was a picture of me devouring a piece of bread so I could go home afterward the surgery (4 hours post surgery and 20 mins post waking up from recovery). I was ready to go home! Today I had my post surgery check up. He said everything in the surgery went well and besides the finding the 3rd hernia there were no surprises. He pointed out where the staples/stitches (they are holding the mesh in place) are in me. I have two on each side at the end of the mesh (so 4 on top) and two down farther in my groin. Apparently, I just have one huge piece of mesh that runs the width and length of my whole abdomen/groin area. Bahaha. I am Inspector Gadget after all. He said a few more weeks before I can lift stuff or exercise. Also, he said the area where the staples are will hurt when bending or twisting. However, I only notice really when I twist or turn too fast. Overall, it was a nice appoint...
10 comments
Read more

The Stork Came!

It finally happened!!! The Stork came to our house!! We had 3 kids placed with us (on August 4th) Friday afternoon. Luckily, Andrew was able to take off Friday-Monday (Aug 4th-7th) to be home as we all adjust the first few days. He then worked 8th-12th, but we needed him back home more until the kiddos started school. So took a full second week off, because it was really rough ! Big thanks to Culvers & Phil for allowing us time we needed. I love having kids in the house, but it's a lot of appointments for these kiddos at first. . For privacy reasons, I will never use their names or post pictures of them.  I have made fake names for these posts. When they called I was a little nervous to take 3 kids at once, especially since I have Cystic Fibrosis. We had agreed on only 2 originally. But, the lady explained the 3 of them really needed somewhere. Most foster parent's don't take sibling groups and it is really rare to find one that will take three, so our hearts wanted to ...
8 comments
Read more

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...
6 comments
Read more