Cheriz: My life with Cystic Fibrosis

30th Bday Party Bowling for CF: Thank you to everyone who made this 30th Birthday Party happen! It was sooo much fun and we raised $400 for a great cause! The $400 is going towards Team CF2's Princeton Great Strides Goal! The party was from 7pm and lasted until 10pm. Which was perfect, by 10pm I was exhausted anyway. But it was so worth it. I actually bowled a decent game the first round. I had Andrew bowl my 2nd game though, since I was so tired. I got to spend some time catching up with close friends & seeing some family. Plus, I bowled I the first Ball of the night AND got A STRIKE! That's right me, Miss I-Never-Get-Over-70-If-That!!!! The whole night worked out really well,  I split up the 28 bowlers onto 4 lanes! I had reserved and planned on 30, whew. We had around 10 people who came to visit but didn't bowl and they all still donated $10 or more too. Hope the cake I bought was yummy enough for $10!  lol. But really, it was exactly what I pictured for my 30th an...

Yay, I'm Pretty Happy!  You prolly (I always type prolly instead of probably, because that is how I always pronounce it) know that I had my Cystic Fibrosis Clinic today. Well, Doc B hates when I call it clinic (because its impersonal and he is proud of the fact he has a Private Practice for CF), but eh it's clinic in my mind. It's always a really long day when I have my appointment in the morning, since I have to get up at the crack of dawn to get all my morning meds done in time. I woke up at 5am and did my 4 nebulizers & vest. Shopping & lunch always follows doc appointments too... of course ;-) Pic: So here I am getting ready.  I was a little nervous since I was in the hospital in January and was on IVs for 3 weeks (read about my Home IVs HERE ), then got sick again in February & April and back on antibiotics (oral). I had no clue how my numbers would look. I've been working hard. BUT, with my lung function around 48% in January, 40% in February, th...

My Fabulous Weekend: So many things made me smile this weekend and it was a FULL weekend! Friday, we headed to Peoria to see "annie" which my sister music directed. I'm so proud of her, she is simply an amazing music teacher, choir director, band director, and music director!  You can tell how much they love her, considering how many scream "Hi Miss K" and wave to her!The show was really good, I'd never have thought the kids were 5th-8th grade. Picture Right: me & my sister!  Plus, I bought a ton of concessions at intermission, the mom who does their concession stand is a caterer! I had homemade fudge, chocolate dipped strawberries, Annie themed sugar cookie, and of course Andrew got his popcorn! He's crazy about his Popcorn!!! We stayed at my sister's Friday night, since she lives in between our place and Champaign! It was convenient staying there, since it made our trip to Champaign's Great Strides Walk shorter the next morning! ...

One day at a Time:  So I can finally say I'm not sick anymore (yay!!), I've been feeling better each day. So I was super happy I got to keep this weekend's plans (even though it was a simpler weekend than last one). I was very bummed I had to cancel my 30th Birthday party & Easter Plans, but that's part of CF. You never know when you will get sick. (if you have no clue what I'm talking about read this past post ) I'm pretty sure I've spent every single holiday in the hospital at some point. Easter (twice), my Birthday, Christmas, Halloween, Valentines Day... Hmmmm. Maybe I've never been in the hospital during Thanksgiving. But it's just part of having CF, you can't help when you get sick.  I'm sooo glad I started feeling better this week! Because yesterday was the Dekalb Great Strides Walk! This is one of the 6 walks my team does throughout the year. Why do more than 1? Because not all my family & friends live near one location,...

The Weekend Cancelled: Yesterday was my 30th Birthday. Crazy huh, to think 30 years... dang. I kinda love it. However, it didn't end up quite like I had planned it. I had been having Arthritis problems in the last few weeks ( as you may have read in my last post ). I didn't even realize I was sick until it hit me all of the sudden. I had temps for two weeks around 99.5, but that's common with my arthritis. So it didn't occur to me until later Thursday Night... I spiked a 102.2 fever, was coughing a ton, my lungs felt really tight & crappy. My breathing was faster. I ended up calling Doc B on Friday morning. He told me I needed to stay home & rest, drink plenty of fluids, and he put me on Augmentin & TamiFlu (to be safe). Saturday & Sunday I just got worse with my temperature not going down with tylenol or ibuprofin. I had to cancel my plans to go to the Bridal Expo, cancel my Bday Party, and we couldn't go home to see our families on Easter.  M...

My Body is Older than My Age: I may be only turning 30 years old on Monday, but I certainly feel like I'm turning 90 instead. Why? well, lots of components affect how my body feels. Whether I'm fighting a little infection (which is quite often) to when I'm run down, and especially when my CF-related arthritis is flaring up. Which it has lately. I have better days, then I have bad arthritis days. Luckily, it wasn't too bad on Monday. Mom, Ada (my sister), and I went shopping in Schaumburg. We had scheduled this planning trip at Christmas, it was a day to treat Mom w/ lunch & shopping with her girls.  We took her to Pilot Pete's Restaurant. It's got a aviator  feel, since its in a private airport. The back wall at the restaurant is full of large windows, so you can watch 2 person planes take off and land while your eating. We saw a couple take off and land. Plus, the food was delicious & large portions. YUM! In the lobby area: they had these fun a...