On Dating Someone with Cystic Fibrosis:
If you haven't read the first part: Cheriz's perspective on dating & having CF, or you just want to refresh your memory, check it out : Right HERE! And Now Andrew's perspective on dating someone with CF!
Well to start off, I will introduce myself formally. My name
is Andrew and I am dating Cheriz who, as all of you know, has Cystic
Fibrosis. I am 23 and am currently studying to be a high school history
teacher. I attend class full time and also work full time. We have been dating
for the last two years as of October 27th, and it has been two years
full of ups and downs, but I would not trade them in for anything in this
world. I do not consider myself a writer and actually am very self-conscious
about my writing; I do not even let Cheriz proof read my papers. The purpose of
this blog post to help spread the word that dating someone with CF is possible and actually is one of the best things that have happened
to me in my life!
Over the last two years of dating Cheriz we have had our ups
and downs, as is the case in any other relationship, but dating someone with CF
has different situations that I want to address. These are not meant to scare
away any would-be suitors of a person with CF, but it is something that you
need to be aware of. First of all, dating Cheriz keeps me on edge, quite a bit
actually. When she gets sick, I get nervous to the point where she constantly
tells me to relax or calm down, but it’s hard for me to do that at times. I
feel like I have to do something to help her, but there are aspects of CF that
I cannot help. I remember a few time she had these seizures. Now they are not
the typical seizures that you see in movies where they start shaking and
foaming at the mouth, but they are when she gets low on oxygen and cannot
function properly. She starts to alter her breathing patterns and acts like a
zombie. When this happened I felt helpless. I am always someone who tries to
help others and cannot stand to see someone in pain. I asked her after one
episode, what can I do? She told me that I cannot do anything to help her, just
be there for her. Ok so let me get this straight, I have to sit back and watch
you in pain and not do anything? Yes, that’s exactly what you have to do; hold
my hand and let me know you are there. Well that was something that was very
difficult for me to handle. That is one specific example, that not everyone
with CF goes through, but there will be times when they don’t feel good, their
lung function is low, or are in the
hospital and you want to do something about it but can’t. My best advice is to
just be there for them. Let them hold your hand and tell them that you love
them. I know it sounds simple and mushy, but it is the best thing for them.
Another thing to do is never blame yourself for when they
get sick. This is another part that is still hard for me to cope with. People
with CF have a lower immune system than those who are completely healthy, like
me. I am one of those people who hardly ever get sick; sure I have the sniffles
every now and then, but no big deal. Dating Cheriz makes me realize that the
simple sniffles I am experiencing can lead to her getting sick, and possibly
end up in the hospital. There have been numerous times when this has happened,
maybe not as serious as a hospital visit, but where she has been sick and her
lung function may go down or she may lose weight. Every time this happens, I
feel terrible, because I feel like I am the one that did this to her. Maybe if
I had not kissed her that one time, or maybe if I didn’t cuddle with her (which
is one of my favorite times with her…I know I’m sappy) she would have been
fine. Something you need to realize is that you are going to get your
significant other sick at some point in your relationship, especially if you
live with each other. The key is that you can’t blame yourself. Sure you are
going to feel sorry for it, but don’t let it run your every thought, because
otherwise it will drive you crazy, and make you sad, which no one likes!
Finally, there are things that may not be so pleasant about
dating someone with CF. Cystic Fibrosis is not the most attractive disease out
there. It is filled with a lot of coughing. Cheriz has coughed so much that she
has thrown up because of it or has coughed up mucus. She has coughed so much
that she has peed herself because of it. You get it; a lot of coughing equals
not so pleasant experiences. CF also affects the digestive track. Cheriz along
with many others who have CF have to take digestive enzymes in order for their
food to properly break down. This can lead to bowl issues such as diarrhea,
bloating, any in extreme cases intestines twisting and causing blockages.
Because of such bad digestive problems, the gas is horrendous. She gets stomach
aches frequently and doesn’t feel good due to intestinal issues. Cheriz can
clear a room so fast it’s crazy, but you know what, it does not bother me. Sure
it smells God awful, but I love her and they way I think of it, is well at
least she does not have a blockage! So yeah CF can be not so pretty, but these
are small factors that really should not prevent someone from dating them!
Now enough with the negatives, let’s move on to my
positives. I can say that I absolutely love Cheriz, and want to spend my life
with her! She is someone who I love to talk to (even though I don’t talk all
that often), someone I can tell anything. The issues that I talked about above
are meaningless when it comes down to it. There are things that I realize come
with dating someone with CF, and I don’t care about them because all I care
about is her. For example, in the morning Cheriz can at times be very tired and
exhausted due to her not being able to sleep very well. She wakes up coughing a lot. To help her out,
I get her meds ready for her, or
I help her with her therapies. Another small
thing I do for her is manual chest therapy. When she is doing her meds, I will
pound on her chest to help break up all the gunk in her lungs. Folks who are
dating someone with CF take note, this is something that can be very beneficial
to your significant other (plus it lets you get out your frustration or anger!
:P)! These are small things that I do for Cheriz, not because I have to, but
because I want to!
Looking into the future it is going to be hard, I know that.
There are times when we are going to have to make hard decisions, ones that
affect both our lives. There is possibly going to be a time when I may have to
realize that she may not be with me anymore, as sad it is to think about, it is
still something that I do ponder on from time to time. But let me ask you a
question, wouldn’t you rather be with the person you love for say 20 years than
be with someone you don’t love for 50 years? People don’t fall in love with
someone because it’s an easy option, they fall in love with someone because of
the person they are and the way they make them feel. Cheriz is always herself
around me, she does not hide her CF, and that is a compliment to me. I want her
to feel like she does not have to hide her CF in front of me; on the contrary,
I want her to embrace it. As much as I would like for her to miraculously get
rid of it, to stop her problems, it is not going to happen anytime soon. She
can use her CF in ways that can make her happy and help other as well. One way
is through this blog. Her blog lets people know what she and other CFers are
going through. It is a source of inspiration of those people and even to people
who do not have CF. Cheriz works so hard. Having CF is a full time job, and she
still manages to do lots of other things on top of it. I am proud of her and
love her all the more because of her CF.
So as a message to you who have CF, please do not fear a
life of loneliness and hundreds of cats (if you’re not allergic to them), there
are people out there that will not care about these issues, I’m living proof.
Just be yourself, and don’t be afraid to talk about your CF with someone who
you like or even with your significant other you may have now. Those of you who
are dating someone with CF, give it a chance. Do not let CF define who that
person is. They are great people who may be the person of your dreams, and you
don’t realize it yet. Cheriz is the girl of my dreams and I love her so much!
Remember: Being deeply loved by someone gives you strength,
while loving someone deeply gives you courage.
Ok now its cheriz again: I want to thank Andrew, for writing this blog for us and thank you for reading about relationships! If anyone has specific questions, just post them in comments on the blog or Facebook page and will answer them the best we can!
And don't forget to read Cheriz's perspective Part 1: "The difficulties of dating: right here!
And don't forget to read Cheriz's perspective Part 1: "The difficulties of dating: right here!
Thanks Andrew you have given me some things to remember and think about. My GF who has CF sent me this to have a read. Im still getting used to all of it and this post has helped.
ReplyDeleteNo problem, always remember that if you two work together it will all be good! The issues that Cheriz and I have at times are very small in the bigger picture! Thanks for reading and glad it helped!
ReplyDelete-Andrew