Skip to main content

Sick Update

Just a Lil Update:


 If you haven't read my last blog, you may want to do that so you know what I'm talking about (read it here!).  As you know I had a lot going on last week with the clinical trial, picnic, and then getting sick. Monday I called Doc and got some oral antibiotics prescribed. I'm now on (month's worth of) Cipro and doing a two week round of inhaled (neb) Tobi. As you know I've always done Tobi my whole life on and off every other month switching it out for Cayston. Since doing this clinical trial a month and half ago I've been off antiobitic nebs to test the effectiveness of the new drug. Now, it just so happens I had been doing great since off the nebs. Even on Thursday of last week I had a high lung function that hasn't dropped at all soince been taking off the nebs. But unfortunately, I caught something over the weekend and got sick.

Of course the first thing that comes to my mind is "Oh no, I hope this doesn't hurt the trial if I'm getting the real drug". But I gotta remember that we get sick and 6 months is a long trial and things happen. They take all that into account. So phew. I love this trial. In fact, even though I'm sick, I'm already starting to feel better. I only have been doing Tobi nebulizers and oral cipro antibiotic pills for 3 days now. I've been sick for 5 and usually it lasts a lot longer and I end up needing IV infusions to battle. So hoping this is a quick turn around!

My immune system may suck and I catch everything, but at least right now my body is fighting this without IVs. Cipro is pretty heavy duty stuff though and inhaling Tobi for the first time in almost 2 months is really making a difference.

ONLY downside is the Cipro. I'm very allergic to 3 of the main antibiotics that they use to fight psudeo (psudeomonas aeruginosa) infections in CFers. Keflex, Levaquin, Bactrum. Yep so pretty much every big antibiotic they use to fight I can't take. So I take Cipro which is related to Levaquin, but I can tolerate it. I've had some minor problems in the past. 1 time I had a small rash for a few days. This time I'm getting headaches. And the headaches suck!!!!

But I can stick it out for a while until my lungs are better. I can tell the Cipro is working, I just gotta deal with the headaches until I'm better. 23 more days (hopefully once I'm better we can discuss stopping the med early). I'm not ready to call Cipro quits and have to find a new way to treat the infections, because honestly I'm limited with what the docs have left that they can do without those antibiotics. And who wants to exhaust all their options (I'm only 29).

So I apologize ahead of time to everyone I'm not very responsive to, my lack of communication, and everything else. I'm trying to get better, keep up with my meds, my homework/classes, and deal with some headaches. But I'm doing it without the hospital and that's the main thing.

Pic: Is from last time I was in the hospital in 2013 (November). Andrew's always right there for me, love him!

So a big thank you to Andrew! Who not only works full time, goes to school full time, but has been doing all the errands for me and taking care of me. In the last 2 years we have been together, he has dealt with so much. Actually (click here to see what he's gone through), I posted a year in reveiw with pictures and it shows the best and worst that we went through last year! He nevers gets upset, he just always wants to help me. He is simply amazing and I'm so lucky!

So I'll keep y'all posted on how I'm doing and keep those fingers crossed my allergic reactions don't get worse and I continue to improve!




Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...
8 comments
Read more

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more