Cheriz: My life with Cystic Fibrosis

Need Some Feedback.       May has almost come to an end. I love May, nice weather, summer starts, AND its Cystic Fibrosis Awareness Month! A lot of the CF walks are in may and its a great time to raise funds and awareness for CF! However, I'm also excited that it will be June soon! June 28th is the Princeton Cystic Fibrosis Walk. I've helped organize other events in the past. Whether for school or other non-profits I've volunteered at, but this CF Walk is a little different. It is the first time, I've put together a City event. Or put together an event that is so near and dear to my heart. I'm so thankful that I had so many people sign up so quickly. Pretty much everyone family member I have on my mom's side signed up the first day. And I've have had some family and friends help me (giving me ideas, helping me recruit, etc). But, Its the first time I didn't have a committee or team behind me to help execute the ideas and actually plan the event. I lo...

Happy, Happy, Happy! Why am I so happy. Well, first off so many great things have been happening! I got some good news at my last clinic, I'm excited about being at a healthy weight. And I've been at a healthy weight long enough that my doc gave me permission to schedule the surgery to get my stomach tube out! I've had it since I was 14 and I'm ready for it go! YAY! Also, I've done 2 CF great strides walks in the last month! Of the 4 walk sites I do (with members of our team) these are my smallest and yet we raised $362 at the two walks, with only a few walkers. AND the Princeton Walk I've been working on all year, is really coming together! We have already raised $1,500 in online donations and have 50+ people signed up! I received quite a bit of help from the Princeton Area too! Goldie Currie, with the Bureau County Republican, wrote us a great story (and it made it on the front page)! It starts on page 1 and continued on page 3. It has so much a...

My Vitamins & Pills: Well, I had my last Clinic on May 8th and it was pretty good (I even got some super amazing news from Doc)! Feel free to read all about it  By scrolling below this post or just click here!  As you can see I'm super excited, 15 years is a long time to have a stomach tube! It will be amazing after I get it out! However, the only negative thing I have come to find out is my Vitamin D is dropping again. I've had lots of issues with this in the past, at least this time my number is only 50% below what it should be. About a year ago it was practically non-existant. I've written 3 short blog entries before about my Vitamin D levels in the past:  Check them all out by clicking here!  And this is the poster I made to explain the CF problem that is "lack of vitamin D"  I'm doing another 2 week "burst" (that's what doc calls it) of 50,000 units daily of Vitamin D! If you read my previous posts, you see that is an extremely...

Visitors and Some BIG News: Starting with Tuesday : Tuesday was Andrew's Birthday, YAY! We both had the day off (We asked it off months ago) and I planned the entire day out! For Lunch we went to Montana Ted's, where Andrew got his Bison Burger! He likes Buffalo, me eh... it's okay. I tried it, but I prefer my ham and turkey. I'm not a big burger person though, so that might have something to do with it. Then we went shopping. I know that sounds funny.  He doesn't care for shopping... BUT...he does if its at Golf Galaxy, and buying movies and an X-Box game at Target ( it wasn't original plan, but found some good clearence buys) :-) Then we went to Hollywood Palm's Movie Theatre for dinner. It's a dine while you watch your movie, type of movie theatre. We looked at it online in the parking lot before going in (to kill a few minutes). And we saw pictures of each of the theatre veiwing rooms. We both said we hoped we'd end up in the Wizard of Oz Roo...

Champaign Walk's Outcome: As you know I went to Champaign last night through this morning for the CF Fundraiser. First of all kudos to my friend Alex, for hosting a CF fundraiser the night before the walk. We had a great turnout, ate lots of pizza, and had a great time! The owner of the restaurant even donated $20 to our team! This was the first fundraiser that another person has held for me (or our team). An I know of two other non-CF fundraisers that are not walks (an put on by people other than me. Which is awrsome! Love the motivation everyone has this year! I thought last year was amazing, but it seems everyone is really stepping up their game this year! And I love Champaign- Urbana (well, mainly Urbana)... I lived there for 5 years (and attended U of I). It was a great lil city. It was so environmentally friendly. Lots of people ride the bus, ride buses or walk everywhere. Plus, I even got to show Andrew where I lived and took him to the gigantic famers market (Which fi...

Mail It In May! May is here! Yay, it's getting warm out and May is also National Cystic Fibrosis Awareness, so please also check out my   May Day Post from 2013! Many great things going on in May! I love being able to share about CF Awareness month, it's a great way to  promote fundraising! May 1st always brings back memories too though. Memories of my Grammer (Grandma Allicks). I spent a lot of my childhood with her, she was an amazing lady that loved painted toe nails, purses, beanie babies, and most of all her family! I wrote about why May Day always reminds me of her, This week is Andrew's Birthday and lots of CF events! Starting with tonight in Champaign, I I have the pizza fundraiser my friend Alex is hosting. ( He's in the pic on the right with Sarah and Stacey, they did the last Champaign walk with me!)  Then tomorrow is the Champaign CF Walk. I still have a ways to go to reach my goal, thanks to those who have donated in person though!) Feel free to...