Skip to main content

Family, Flyers, and Fantastic Things!

Happy, Happy, Happy!


 Why am I so happy. Well, first off so many great things have been happening! I got some good news at my last clinic, I'm excited about being at a healthy weight. And I've been at a healthy weight long enough that my doc gave me permission to schedule the surgery to get my stomach tube out! I've had it since I was 14 and I'm ready for it go! YAY! Also, I've done 2 CF great strides walks in the last month! Of the 4 walk sites I do (with members of our team) these are my smallest and yet we raised $362 at the two walks, with only a few walkers. AND the Princeton Walk I've been working on all year, is really coming together! We have already raised $1,500 in online donations and have 50+ people signed up! I received quite a bit of help from the Princeton Area too! Goldie Currie, with the Bureau County Republican, wrote us a great story (and it made it on the front page)!





It starts on page 1 and continued on page 3. It has so much amazing information in there, I'm really impressed with the story she put together. I've also sent off information to other surrounding area papers, church bulletins, and newletters!

(If your church or community would put in the news, commet below and I'll send you a press release I wrote)

I'm hoping that helps boost our number of particpants and amount we raise. I'm really hoping for 100 participants and all together raise at least $5,000 (but really would love $10,000 -which is 100 people raising an average of $100 each).

I got 15 flyers put up around Princeton yesterday, and Wal-Mart confirmed that they will be letting me know what they can donate for the walk on June 1st. So that will be done too!

Everything for walk has been coming together very nicely. I just need to get more walkers invovled.

Also, medically I'm doing welll. I'm finally getting more stable hours open-6 at work. Which makes medications a lot easier to schedule.

I've got everything settled for when Andrew and I move to Sycamore/Dekalb! I've enjoyed being in Bensenville, but with all the traffic, my commute to work, etc. UGH. Plus, we will be saving a bundle by swtiching schools! So glad that is all set!

Satruday, was the Naperville walk and I had a great time. Its a rather big walk site. Last year the Naperville Walk alone raised $200,000 for CF research! That's amazing! After the walk, my team all went for lunch and got to just spend some nice time together. Andrew had to work after that, but I get to spend the rest of the day with Ryan (a best friend of mine). We had sooo much fun shopping, of course now I fell in love with- yet another- couch set! I have a weakness for furniture.... lol It was such a nice day and tonight I get to go out to eat with my uncles (who are in the area tonight). So once I'm off of work I get to see both of them. Plus, yesterda\y I saw parents and sister! It's my sister's students' concert andwas my parent's 30th Anniversary! So we are going to celebrate it as a family.

I have to work the next 5 days, BUT these past weekends have been so amazing and I'm so thankful. I know the past couple posts have be more "informative" about CF stuff (like meds costs talked about in the post below). However, I wanted to take the time to just tell everyone how great everything finally seems to going really well. I'm on a roll, hopefully, tomorrow I can get my surgeon's consultation appointment made too! Keep you all posted. Oh and enjoy the "selfies" mom and I took at the concert...

We decided they described our day:
                                                      We forgot the cups for the punch....


                                        Sent Dad and Andrew for cups and the concert is great!
                                           

Oh man, it's over.... 


Yep, that's what we do when we have free time.



Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more

Sunny Days!

Since my last Cystic Fibrosis clinic, which you may have read about on my Facebook page , I have been working on a couple goals... both medical and personal. And boy do I love this summer weather! Summer weather combines one medical and one personal goal!! EXERCISE + MORE FAMILY TIME! I'm not one to enjoy extreme heat (90+), but have really LOVED the nice days outside with the family this summer! Sun (+sunblock LOL), freezie pops, flip flops, YES PLEASE! We have even spent some time at the lake this summer! Our kiddo(s) LOVE(S) the water and so does Andrew! I don't enjoy being IN the water as much as I like being ON the water. We have spent a dozen days this summer at our two favorite park/splashpads as well! Even days spent at home are usually in the kiddie pool. We are enjoying this weather and getting some exercise too! WALK! I try to talk advantage and do some walking when its nice out and I feel good. My Physical Therapist at clinic said it needs to be 15 mins of full acti...
2 comments
Read more