Skip to main content

Giving a Speech & Walking with Friends!

Champaign Walk's Outcome:


As you know I went to Champaign last night through this morning for the CF Fundraiser. First of all kudos to my friend Alex, for hosting a CF fundraiser the night before the walk. We had a great turnout, ate lots of pizza, and had a great time! The owner of the restaurant even donated $20 to our team! This was the first fundraiser that another person has held for me (or our team). An I know of two other non-CF fundraisers that are not walks (an put on by people other than me. Which is awrsome! Love the motivation everyone has this year! I thought last year was amazing, but it seems everyone is really stepping up their game this year!

And I love Champaign- Urbana (well, mainly Urbana)...
I lived there for 5 years (and attended U of I). It was a great lil city. It was so environmentally friendly. Lots of people ride the bus, ride buses or walk everywhere. Plus, I even got to show Andrew where I lived and took him to the gigantic famers market (Which fills a huge section of the mall parking lot). The farmers market and library were only blocks from my house. I'd walk there every Saturday and buy some produce, and check out some movies or books for the week. It's the simple things in life :-) I loved it. It was nice taking a step back in time and even catching up with some good friends.

I got to hang out with Alex and meet all his closest friends on Friday, then I had another friend (U of I time) come to the walk too. It was amazing catching up with Alex and John! I hadn't seen John since 2010! The walk was more of a success than I thought. Most people I know are donating to the Princeton Walk, so I figured we'd raise like $10-$20 a person for this walk and only have a walk team
of 2 other people (and Andrew and I). But we had 3 people come (and then us two) and we raised $252 for the walk.

I was one of the two guest speakers for the event. They had a mother discuss the new treatments and clinical trials. Then I discussed a overveiw of my life, etc. It's in the video I posted on youtube below:
Click here to see me give the speech or watch it below

For a more detailed history of my life with CF (Read my CF history summary here!)

It was so nice to go back to Urbana, take a walk down memory lane and I'm very happy with our turnout Here to the Naperville Walk (May 17th)! Also, make sure to scroll down and read about the awesome in the mail fundraiser idea I got from a couple friends (Or click here)
And I'm very happy with the amount we fundraised! We have another Walk in 2 weeks in Naperville, feel free to join us or donate:

So much is happening this week, Andrew's Birthday, Mom visiting, my last clinical trial appointment, and a BIG Clinic (where we discuss getting my stomach tube out!!!! FINALLY after 15 years)

So stay tuned for the updates :-)


Comments

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...

Craft Show and Work.

Craft Show This Saturday is the Craft Show! Mom and I will be selling our stuff there! It's at Liberty Village in Princeton from 11am-2pm! Please come and see all the booths! There will be 20 booths, kid's bouncy houses, games, prizes, raffles, etc. Proceeds from raffles, etc help give the residents of Liberty Village Christmas gifts and a Chirstmas Celebration! I'm excited to do this craft show, I remember going to them when I was younger! I loved it! Mom would take me along and I really enjoyed spending the day with her and looking at all the crafts! Mom is selling lots of hats, some purses, pouches, a couple blankets, teddy bears, etc. I will be doing my usual picture frames, notecards, etc. I will also be selling Michelle's My Bubble Products! To see some products: A Few of Mom's products -> Click Here!     Michelle's My Bubble products -> Click Here!      My mom said she is going to set aside a portion of her profits to ...

Blog Around the World

Linking Blogs Around the World: Last week I was contacted by my friend Kymberly at  Peas in a Pod Creations  to participate in the Blog Around the World Posts.   Pic: Me, Kym (the Bride), and here sister, Stephanie!   While Kymberly doesn't have Cystic Fibosis, her blog is an outlet for her beautiful quilts and other sewn, knitted, or quilted projects. Kym and I not only were best friends in high school, but we were next door neighbors. (like she said in her blog post) We lived exactly 18.7 feet from each other and some summers we spent literally the whole day 9am-9pm together hanging out! So of course I was thrilled for her to invite me to do this posting challenge.This is a great way for bloggers, like myself, to share our favorite blogger pages that we visit. Here are the ?s that came along with the post. What am I working on? How does my work differ from others in the same genre? Why do I create/Write? How does my writting process work? Hopefully, if you a...