Skip to main content

Lung Function Results & Some Tests!

Clinic & Tests!


 Yep, today was my clinic appointment and my clinical trial appointment. Both in one day, saves me from taking multiple days off from work. It still can't tell if I'm on the placebo or real med yet... But the Clinical Trial is going well! My Clinical Trial only has 3 months left and then I'm done! Which means doc will be able to change my meds then:-) I know he's planning on taking me off the 5 mg of Prednisone. And I want to be taken off advair completely and my acid reflux pills to be "when needed" instead of everyday. I've gone without Advair before for almost a month and didn't notice a difference. My old Doc at the old clinic I went to put me on it, but I never thought it did much. We'll see...We also dicussed further my getting my stomach tube out. Why do I want it out? Find out in the post Tu-Be or Not Tu-Be (haha cheesy title, I know).  AND GUESS WHAT!!! He said I'm headed the right way! I haven't used it since October!!!!! And my weight is still increasing! I'm 108 lbs!!!! WHOO HOO! 108... I haven't been that since I was in High School! Highest weight in over 10 years!

 (Note: Weight Chart is on the -side this chart represents my over the last couple years...)

I do have to get a Dexa-scan (bone density exam) done. My last one was in 2003 and he just wants to make sure my bones haven't gotten worse. Also, I'm getting tested for Diabetes again. I've been borderline for a while and haven't been tested since 2011. I've been showing a few signs that could indicate diabetes, but could just something else too. So we will have to see. I'm not really worried though. Those two tests both need to be done in the next few weeks. I might go ahead and do the Dexascan next week on a day off.  I'll keep you all updated on those results too!

I told Doc about the CF walk and invited him. I asked him if he would come and talk about the importance of the fundraising, he said he'd check. If he could he would, but he thinks that might be mini-vacation he has planned with his son... So he might not make it. But he thought it was very awesome that the Princeton Community is coming together to support CF research and really wished he could be there. But hopefully, next year!

And Lastly, the biggest nerve racking thing: LUNG FUNCTION! Yipes. As you can see from the chart...

I've struggled in the past to bring it up! However, today I did 55% and doc was happy with that. Last clinic I was 53% and I average around 50s. In October (right after IV antibiotics) it jumped to 64% then slowly went back to 50s. So since starting with Doc B, I've brought it up from the 30s and kept in the 50s! I'm not letting it go down! No Way! So excited to feel like I'm back on track finally from being sick last fall!

Hopefully this will continue another upward trend! I'm hopeful, since I've been feeling pretty good and doing all my meds! Also if you want to help keep me accountable for doing my meds. Consider donating to to the GreatStrides (Princeton CF Walk Link- Donate or Join Here!) CF Walk. Because for every $250 our walk raises, I promise to do a full week of meds :-)

Well, I guess that's all for now! Hope you are as excited about my Clinic Results as I am. They aren't the best, but they are the right direction! Just gotta keep it up!
Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...
10 comments
Read more

The Proposal

Not the movie...but: That's right. We are engaged! I haven't posted in the last 6 days on purpose. We wanted to inform our family and a few friends before I share with the whole world (or whoever reads this blog...Lol). And since I share everything with you, I'm going to share with you Andrew's proposal ( which was absolutely perfect for us). We had been discussing marriage, buying a house, etc for over a year. We had even discussed engagements, rings, and proposals way back in Feb of this year. He knew my ring size and my thoughts on proposals. I think they should be thoughtful and geniune. That pretty much sums it up. Simple, sweet, and not too expensive. Picture on right: Selfie just after we got engaged! So months went by since our marriage discussion and then last Tuesday Dec 23rd Andrew proposed. Let me start at the beginning.  Monday Dec 22nd my friend, Stacey, came to visit for the night. Andrew said Stacey and I should get our nails done, you know a g...
8 comments
Read more