Skip to main content

Live near Princeton? Like Culvers? Wanna Cure CF?

Culver's in Princeton:


Some fun stuff and exciting news! I came home (to my hometown) on the train on Tues! I decided to spend a lot of time with my family! I got to hang out with my Mom and Uncle Brian on Wed! We went for dinner with my Uncle Dan! We walked through the mall afterwards and I found a new pair of dress pants that I LOVE! And I really needed them. Haha, since October I've been around 108 lbs. I'm not having any trouble recently keeping weight on! I eat 3 big meals a day, and maybe one late night snack (high calorie healthy smoothie or I splurge and have a hot cocoa). I try to be good with sugars/carb though due to my "maybe being diabetic." I go next week for my bone density scan and then the week after my diabetes test! But ever since October, my weight is not nearly as much of an issue! Sadly, I out grew most of my pants. I have one pair of jeans that fit nicely, and one that are tight! My 2 pair of dress pants did not come near to buttoning though, so I've been using safety pins at work to keep them on for the last 3 months. I'm now a medium-large in tops too, no larger an extra small. Its crazy!!!! 95-110 lbs really put some curves on me! Whenever I come home I eat out more too, so of course I've put more on in the last few days too!

So what's this about Culvers? Well, great news!!!! Culvers in Princeton is doing a 10% fundraiser night in Princeton for the CF Foundation (as part of our Princeton Walk efforts). Here's the deal: In order of us to get 10% of what you purchase at Culver's between 5-8pm on JUNE 28th, you NEED to bring a lil card (I have) to show you are there for THE FUNDRAISER! So I will pass them out at the walk! And I will be bringing them to Princeton (in two weeks) and I will place them at different stores, places around town to pick them up as well!!! So if you can't make it to the walk or know other who cant, but you want to eat at Culvers to help! Go to one of locations (I'll post them later) and get some cards for you and your friends. I'm so excited Culvers is willing to do this!  Princeton could really make a great impact on CF research that weekend! I got some more contacts to talk to about donations and sponsors too! I turned in more donation letters/forms at places too, including Wal-Mart, etc. So hopefully, I will hear back in the next couple weeks, before I come home for my birthday!

I've loved getting involved over the years with Great Strides! My first walk was in 2008 (Champaign & Peoria), then I did Champaign 2 other years and Peoria in 2012 & 2013. I did Hollowayville, IL in 2013.

In 2008, I only raised a couple hundred. Over all the walks and fundraiser with CF Foundation over the years since 2008, I (and my AMAZING TEAM) have raised over: $5,000 and this year I hope to raise more than double that! 

Let me know if you want to help out or donate at the Great Strides (button/link) on the upper left hand side! And I will keep everyone updated on my test results in the next couple weeks!

SOOO EXCITED! Get ready for some Culvers on June 28th between 5-8pm. Make sure to contact me for the fundraiser card so the 10% goes to CF Foundation!

Labels:

Comments

Post a Comment

Popular posts from this blog

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...
5 comments
Read more

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...
8 comments
Read more

A Hospital at Home

Coming home from the hospital takes a balance..... Wait.... Did I just say home from the hospital??? That's right!  I get to leave Wednesday the 18th, after 8 days in the hospital. It was a logistical thing. I have a super important court date on for "Shoes (our AMAZING foster son) soon." So Doc knew before he admitted me that I would be leaving by that day... So what does this mean for me and my health??? Well, I need to make sure I continue the same treatment schedule I would in the hospital. So 4 sets of nebs a day. 8am, noon, 4pm, 8pm. Which means I finish my course of IVs at home. I will be on IV's at least until 27th (so 1.5 weeks left). I came into the hospital on Tuesday the 10th, but we didn't realize until Friday the 13th that my Psuedomonas is resistant to all of the antibiotic options for IVs except one med. So on the 13th we switched to Avycaz, which is a newer, hard hitting antibiotic that was brought to market less than 3 years ago. We were hoping I...
2 comments
Read more