Skip to main content

Lil Updates: Laura, School, Medical Issues

Updates: Laura, School, Medical Issues:

My Lil Updates:

Medical Issues: The GI issues that have been keeping me from work, etc are getting better! ( Read about my GI issues here. ) I'm  going to see a GI doc tomorrow to figure out what all is going on. I know most people hate going to the doctor, but I'm always happy to go. I like to know what's going on and catch problems before they become bigger issues! So Wednesday I see the GI specialist and Thursday I go back to Dr. B's for the Evaluation for the Clinical Trial. The first meeting didn't go to well, so hoping this Thursday is better and I can start the trial! (read here about the clinical trial mess) So glad this will all be sorted out this week!


School: I'm officially Medically Withdrawing from the semester. I missed 4 weeks total in classes due to hospitalizations and IVs. The school has told me I'll be on the 3 year plan (going part time)...However, I'm not okay with that, because 3 years is too long for my program. Plus, If I have another medical problem in the next 3 years I'll be even farther behind. So I've decided I need a program that is more flexible. I think I found one, I can apply this spring and start in the summer or fall :-) We'll see. First, I need to get my appeal for tuition reimbursement.. I don't want to lose any money over this. (fingers crossed)

Laura: Laura has been in the hospital for the last month, She is currently receiving 4 IV meds, She has a lung infection, and her kidneys are responding negatively to the meds. They are watching her closely to make sure her kidneys aren't failing. And she is still in the process of evaluating her for a Transplant. She is very tired, on oxygen 24/7, and her lung function few days ago was 18%. I don't know a lot new, but I'm trying to keep informed. (here is the website to donate to help her out: Laura's TX costs!  (Laura and I's friendship goes way back, scroll down to the last post to read about it or click here)

I just wanted to keep you all updated!

Also: My mom is selling her products at a Craft Show this weekend in Naperville, IL.

At Our Savior's Celebration (Pre-School)
919 S. Washington
Naperville, IL 60540
Saturday November 23rd
9am-3pm  
$1 admission
                         Mom made this earwarmer and infinity scarf
           Her Minion Hat!          
                                                                             

Some Owl Hats!


















                                                                 Sock Monkey Hat!

These are just some of her items! If you want to see more go to her FB page:
Handmade by Peggy K (crochet and sewn items!)

And here is her blog: (She is new to the blogging world/ her Etsy Shop is running yet)
But she has couple really cute posts:
http://handmadebypeggyk.blogspot.com/
              


  Have a topic you want me to discuss further, feel free to leave me a comment!
Labels:

Comments

  1. AnonymousNovember 19, 2013 at 11:28 AM

    Thanks for all of the support while I get my business up and running. I can't wait to see you Saturday. I hope that Laura gets new lungs. I am so sad for her because I remember her as a little girl and she was always so sweet and loving to you.
    Love you,
    Mom

    ReplyDelete
  2. Amanda Cook FespermanNovember 19, 2013 at 5:17 PM

    I've done the medical withdrawal before. You should get your money back. Fingers crossed.

    ReplyDelete
  3. CherizNovember 20, 2013 at 9:09 AM

    Thanks! I'm hoping for a reimbursement, but it is so much paperwork and signatures.

    And Mom: I Know, its so hard. She is a fighter. Hopefully they get her listed soon! She is getting her package from me tomorrow!

    ReplyDelete

Post a Comment

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more