Research: CFers lets help out!
I was contacted to help encourage and find participants (CF patients) to take a survey for a Grad Student in South Carolina. Here is what she writes:
Just like her, I am also starting to do CF research. I will not be sending out any surveys for a while though. I'm still in the developing stage. I understand the importance of having a large sample to gather information from.
So if you have CF please consider taking her survey and sharing it with other CFers!
Let's advocate for each other and help the CF awareness grow! Also, if you are interested to know more about other research being done check out http://www.cff.org/research/
Thanks everyone,
Cheriz
ps. Getting excited for Saturday's CF Walk!
I was contacted to help encourage and find participants (CF patients) to take a survey for a Grad Student in South Carolina. Here is what she writes:
Hello,
My
name is Margo Faust and I am currently a second year student in the genetic
counseling program at the University of South Carolina School of Medicine.
As
a part of my Masters’ thesis, I am conducting research on the use of
social media by adults with cystic fibrosis as a support network.
Like
many of you, I use social media in my everyday life and find it to be an
integral part of the online community today. I am interested in seeing how
adults with CF such as you use social media to gather information and support
about CF.
I
would like to invite you to participate in an online survey about your use of
social media. This survey should take around 10-15 minutes to complete. At the
end of the survey, you will be given the option to provide your contact
information for a follow-up phone interview at your convenience. I would love
the opportunity to talk with you briefly about the specific ways in which you
find social media helpful in your day-to-day life.
To
complete this survey please click the link below:
Thank you for your time and
consideration to participate in this survey. Your responses may help genetic
counselors understand if adult CF patients seek emotional support and what
online sites patients use. If you have any questions regarding this research,
you may contact either myself or my faculty advisor, Andrea Sellers, MS, CGC,
using the contact information below.
Margo Faust
Genetic Counselor Candidate
University of South Carolina School
of Medicine
USC Genetic Counseling Program
Two Medical Park, Suite 208
Columbia, SC 29203
Andrea Sellers, MS, CGC
Faculty Advisor
University of South Carolina School of Medicine
USC Genetic Counseling Program
Two Medical Park, Suite 208
Columbia, SC 29203
Andrea.Sellers@uscmed.sc.edu
Faculty Advisor
University of South Carolina School of Medicine
USC Genetic Counseling Program
Two Medical Park, Suite 208
Columbia, SC 29203
Andrea.Sellers@uscmed.sc.edu
Just like her, I am also starting to do CF research. I will not be sending out any surveys for a while though. I'm still in the developing stage. I understand the importance of having a large sample to gather information from.
So if you have CF please consider taking her survey and sharing it with other CFers!
Let's advocate for each other and help the CF awareness grow! Also, if you are interested to know more about other research being done check out http://www.cff.org/research/
Thanks everyone,
Cheriz
ps. Getting excited for Saturday's CF Walk!
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