Skip to main content

Research-CFers let's help out

Research: CFers lets help out!

 I was contacted to help encourage and find participants (CF patients) to take a survey for a Grad Student in South Carolina. Here is what she writes:


Hello,

My name is Margo Faust and I am currently a second year student in the genetic counseling program at the University of South Carolina School of Medicine.

As a part of my Masters’ thesis, I am conducting research on the use of social media by adults with cystic fibrosis as a support network.

Like many of you, I use social media in my everyday life and find it to be an integral part of the online community today. I am interested in seeing how adults with CF such as you use social media to gather information and support about CF.

I would like to invite you to participate in an online survey about your use of social media. This survey should take around 10-15 minutes to complete. At the end of the survey, you will be given the option to provide your contact information for a follow-up phone interview at your convenience. I would love the opportunity to talk with you briefly about the specific ways in which you find social media helpful in your day-to-day life.

To complete this survey please click the link below:

http://www.surveymonkey.com/s/CFsocialmediasurvey

Thank you for your time and consideration to participate in this survey. Your responses may help genetic counselors understand if adult CF patients seek emotional support and what online sites patients use. If you have any questions regarding this research, you may contact either myself or my faculty advisor, Andrea Sellers, MS, CGC, using the contact information below.

Margo Faust                                                               
Genetic Counselor Candidate                                                
University of South Carolina School of Medicine                  
USC Genetic Counseling Program                                         
Two Medical Park, Suite 208                                     
Columbia, SC 29203                                                   
margofaust@gmail.com                                                        


Andrea Sellers, MS, CGC
Faculty Advisor
University of South Carolina School of Medicine
USC Genetic Counseling Program 
Two Medical Park, Suite 208 
Columbia, SC 29203
Andrea.Sellers@uscmed.sc.edu

Just like her, I am also starting to do CF research. I will not be sending out any surveys for a while though. I'm still in the developing stage. I understand the importance of having a large sample to gather information from. 

 So if you have CF please consider taking her survey and sharing it with other CFers!

 Let's advocate for each other and help the CF awareness grow! Also, if you are interested to know more about other research being done check out http://www.cff.org/research/

Thanks everyone,
Cheriz

ps. Getting excited for Saturday's CF Walk!

Comments

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Post- Surgery Appointment

Post Surgery Appt: As you prolly know, I had Laparoscopic Triple Hernia Surgery last Tuesday. Here was a picture of me devouring a piece of bread so I could go home afterward the surgery (4 hours post surgery and 20 mins post waking up from recovery). I was ready to go home! Today I had my post surgery check up. He said everything in the surgery went well and besides the finding the 3rd hernia there were no surprises. He pointed out where the staples/stitches (they are holding the mesh in place) are in me. I have two on each side at the end of the mesh (so 4 on top) and two down farther in my groin. Apparently, I just have one huge piece of mesh that runs the width and length of my whole abdomen/groin area. Bahaha. I am Inspector Gadget after all. He said a few more weeks before I can lift stuff or exercise. Also, he said the area where the staples are will hurt when bending or twisting. However, I only notice really when I twist or turn too fast. Overall, it was a nice appoint...
10 comments
Read more

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...
3 comments
Read more