Skip to main content

Exciting News, even in a Hospital!

Exciting News: Even in the Hospital:

3 Exciting things!!


Yes, I know. exciting news in the hospital...Nope, I don't get to go home. Not yet. BUT, I'm excited to share some othe GREAT NEWS! First, of all since I was admitted last Thurirsday morning, I have gained weight. 1. because I don't have time to make food and eat at home as much as I need and 2. Who wouldn't devore a meal of roast beef, potatoes, veggies, fruit, and pudding at 6pm then order anothertray with shrimp and rice, and more dessert at 7pm?

1. So as of today I am 107.4 lbs!


This is the highest I have been in a very long time. To check out my weight and lung functions changes over the years click here- Clinic-My Health Page!

Only, down side...I need to buy new pants and running shorts, none of them fit me...I'm cheap and picky with clothes..so it may take a while. However, I'm sure a trip to Delia's will change my mind. Ps. for some reason Delia's usually fit, when others are too big. So maybe...


2. We were discussing the CF fundraisers And Andrew is going to be doing the CF Climb in November this year!

The CF CLIMB on November 10th is way to committ to the challenge of climbing the 58 floors in honor of everyone affected by CF. This events raises, just like GreatStrides, to provide research for CF and in hopes to find a cure!

I'm going to help them fundraise for the event, so if you'd like to donate, feel free to give the money to one of them, to me, or my mother by November 8th! :-) Sorry, no online link for the Climb. (checks can be made to CF Foundation)


AND 3. I got a Pulmonary Function Test Today (PFT) and I get to find out the results and discuss it with Dr. B tomorrow!

So here is to hoping my lung function goes back up. (currently 45%). So many good things. Weight, friends supporting me, fundraising for CF, keeping up in classes, getting healthy and hoping to get lung function back in the hospital!

YAY! Now, to eat my berry smoothie and wait for Andrew to get here. Well, after my 4 nebulizers and vest treatment of course....
Labels:

Comments

  1. AshleyOctober 16, 2013 at 1:16 PM

    I need to go to your hospital. My hospital's food was awful. I had my mom bring me every meal when she could and leave behind a cooler with snacks for when she wasn't there.

    Congratulations!!

    ReplyDelete
    Replies
    1. CherizOctober 16, 2013 at 8:38 PM

      I used to go to a different doc and hospital, and the food was bland and limited. Now, I'm in Chicago. Bigger Hospitals, means bigger bucks and better food :-) But yeah, I feel ya. At the old hospital, I had a doc who brought CFers pizza and take out. lol

      Delete

Post a Comment

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more