Skip to main content

Exciting News, even in a Hospital!

Exciting News: Even in the Hospital:

3 Exciting things!!


Yes, I know. exciting news in the hospital...Nope, I don't get to go home. Not yet. BUT, I'm excited to share some othe GREAT NEWS! First, of all since I was admitted last Thurirsday morning, I have gained weight. 1. because I don't have time to make food and eat at home as much as I need and 2. Who wouldn't devore a meal of roast beef, potatoes, veggies, fruit, and pudding at 6pm then order anothertray with shrimp and rice, and more dessert at 7pm?

1. So as of today I am 107.4 lbs!


This is the highest I have been in a very long time. To check out my weight and lung functions changes over the years click here- Clinic-My Health Page!

Only, down side...I need to buy new pants and running shorts, none of them fit me...I'm cheap and picky with clothes..so it may take a while. However, I'm sure a trip to Delia's will change my mind. Ps. for some reason Delia's usually fit, when others are too big. So maybe...


2. We were discussing the CF fundraisers And Andrew is going to be doing the CF Climb in November this year!

The CF CLIMB on November 10th is way to committ to the challenge of climbing the 58 floors in honor of everyone affected by CF. This events raises, just like GreatStrides, to provide research for CF and in hopes to find a cure!

I'm going to help them fundraise for the event, so if you'd like to donate, feel free to give the money to one of them, to me, or my mother by November 8th! :-) Sorry, no online link for the Climb. (checks can be made to CF Foundation)


AND 3. I got a Pulmonary Function Test Today (PFT) and I get to find out the results and discuss it with Dr. B tomorrow!

So here is to hoping my lung function goes back up. (currently 45%). So many good things. Weight, friends supporting me, fundraising for CF, keeping up in classes, getting healthy and hoping to get lung function back in the hospital!

YAY! Now, to eat my berry smoothie and wait for Andrew to get here. Well, after my 4 nebulizers and vest treatment of course....
Labels:

Comments

  1. AshleyOctober 16, 2013 at 1:16 PM

    I need to go to your hospital. My hospital's food was awful. I had my mom bring me every meal when she could and leave behind a cooler with snacks for when she wasn't there.

    Congratulations!!

    ReplyDelete
    Replies
    1. CherizOctober 16, 2013 at 8:38 PM

      I used to go to a different doc and hospital, and the food was bland and limited. Now, I'm in Chicago. Bigger Hospitals, means bigger bucks and better food :-) But yeah, I feel ya. At the old hospital, I had a doc who brought CFers pizza and take out. lol

      Delete

Post a Comment

Popular posts from this blog

Planning ahead (yay, for being organized).

Organization: it is a great thing! I'm doing another CF Walk in October! It's on the 6th at 9am. Why am I posting this now? In the past I wasn't organized. I would end up asking a couple friends to walk it with me. I didn't fundraise much, but I want that to change! I've had people tell me they would have walked if they knew about it. I'm blogging now, being more active on CF communities online, and there is no reason why I shouldn't invite others to do the walk. Everyone knows I have CF, why did I never invite more people?? No clue. So here I am inviting everyone to come and walk with my team! Here is the link the Facebook Event: Cheriz's CF walk FB event Also a link directly to my GreatStrides Walk page is on the upper lefthand side of the blog! I want to start to be more active in fundraising walks (along with 5ks). I'm planning on doing 2-3 CF walks a yr, and the ALS/PLS Walk every year! If you want to cheer me on at my first 5k i...
Post a Comment
Read more

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...
6 comments
Read more

Why I Hope this Hospital Stay is Different

Typically, I've been very stable as an adult. I'm very lucky for that stability. However, 2018 started out nowhere near where I wanted. I was admitted mid March for a virus. We aren't sure what virus I had (every test came back negative). However, I had a consistent fever over 102 the entire 5 days I was in the hospital. Once I was fever free for 24 hours and I started eating better, they let me return home. I was excited to leave and get back to my everyday life. But, considering now a month later (and re-admitted), I think I should of just done a two week tune-up last month while I was in already. Live and learn. As you know (I'm sure) I have been trying to get my lung function back up to around 55-60%. 60% is my goal and it really is the highest my lung function can get, due to all the permanent scarring. I started Orkambi in October 2016. At that time it was the newest gene-modifier drug on market for CF patients (with my mutations).  After going on Orkambi I droppe...
2 comments
Read more