Skip to main content

Xanadu, Insurnace and Some Denny's

Xanadu!

The musical Xanadu opened last night! The audience was smaller than what we had hoped for, but with all the flooding and bridges closed.... What  can you do? Xanadu has a great cast. I have loved seeing all of them. When it's over It will be bittersweet.

I will miss seeing everyone and spending time with them. I could use the time to catch up on homework, work extra shifts, or spend it doing meds. This last week has been particularly frustrating as the company my Dad works for got bought and our insurance changed. So of course they started denying my meds. I got almost all of it figured out yesterday. But now they said they need a couple more days to straighten out everything with the pharmacy (apparently my CF pharmacy wasn't in contract with them...ugh) So after we looked up stuff on line and I called a couple people, waited on hold for a couple hours, and rationally discussed (lol) everything over the last two days. We have come to an understanding. Except my TOBI and CAYSTON.  I will be excited to get my hypertonic saline back. I ran out of it over a week ago. I haven't had Vitamin D in a couple days either. My lungs are getting pretty crappy from lack of hypertonic and time to do my vest. I've been slacking on doing the Vest...

After the last number in the show we do an encore dance and it is a little too much for my lungs, which is sad. When I had really good lung function I could dance for hours. So I need to work on my lungs hard core. Cuz last night I didn't even get to greet people in the line. I was coughing too much/ having a mini asthma attack :-( So I hope that doesn't happen when my family comes.

Last night we celebrated a good friend's Bday at Dennys. He's getting old.. haha j/k Matty. But it was nice and really fun. Been a while since the whole group went out! Here is a pic of Alicia and I at Denny's. As you can see I'm still sporting the Mohawk I wear in the show! :-)

Well, sorry I haven't been blogging as much! Today, I got up early though ran errands, came home did meds, changed, and now I'm getting ready to head out the door for work. :-)

LOOKING FORWARD TO ANOTHER GREAT PERFORMACE OF XANADU tonight @8pm at St. Bede, in Peru, IL Tickets $15

Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Sunny Days!

Since my last Cystic Fibrosis clinic, which you may have read about on my Facebook page , I have been working on a couple goals... both medical and personal. And boy do I love this summer weather! Summer weather combines one medical and one personal goal!! EXERCISE + MORE FAMILY TIME! I'm not one to enjoy extreme heat (90+), but have really LOVED the nice days outside with the family this summer! Sun (+sunblock LOL), freezie pops, flip flops, YES PLEASE! We have even spent some time at the lake this summer! Our kiddo(s) LOVE(S) the water and so does Andrew! I don't enjoy being IN the water as much as I like being ON the water. We have spent a dozen days this summer at our two favorite park/splashpads as well! Even days spent at home are usually in the kiddie pool. We are enjoying this weather and getting some exercise too! WALK! I try to talk advantage and do some walking when its nice out and I feel good. My Physical Therapist at clinic said it needs to be 15 mins of full acti...
2 comments
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more