Skip to main content

How did I breathe at U of I?

How did I breathe at U of I:

At U of I, I had a couple of really bad semesters, where I didn't do what I should.  In 2009 I had high 60s for lung function, by April of 2010 I was in the 30s.  I would hang out with friends instead of do my meds, I'd skip meals to not have to take pills in front of people.  Between my skipping meals and not doing meds, I got pretty sick. I was on and off IV meds for 3 months.  (also note: I will doing Stand Up Comedy again this Friday, which I haven't done since those months at U of I ---> yay!)

I came home (lived in my hometown) that May and got back on track. I went back to U of I for my final semester there that fall and kept on track! My roomie Stacy helped me a lot. When I think about those months where I was really underweight, low lung function, and on IVs, I know I don't want to be there again. Not that it is completely in our control, there are ways our lung function can drop that isn't related to our doing meds, etc. Getting sick, scarring in our lungs from infections, certain infections we catch, etc.

Whenever, I have a hard time breathing for an extended period of time ( a couple days or more) I always remember U of I.This last week without meds, I started off not noticing too much. Yesterday it started to really hit me. I had more asthma attacks, coughing spells, whatever you call them. Today I noticed I'm out of breath in general more.

I have been out of my meds for a week (as of tomorrow). Long story short, my prescriptions ran out, by the time I got them printed, faxed, the dr sent the orders, the pharmacy confirmed and I could re-order it was 3 days later (Friday). And now they seem to be taking forever to ship. (and I'm waiting for my new vest, my old one broke a couple weeks ago). haha, go figure. I got nothing clearing out my lungs or helping me breath right now.

This week has been a little tougher, but now I'm really starting to notice how much harder it is to breathe and how much more often I'm coughing. Then I think back to a couple semesters I had a U of I. I got really off track for a while at U of I and I can't believe I was okay with that. I'm sooo looking forward to my meds arriving! Never thought I'd say that!!

So to those of you who donated towards our CF walk, I will be restarting my 2nd week of the CF Challenge. :-) And continue (I believe we have another 1.5 weeks after that already fundraised! Also, I got our brochures in the mail!





Comments

  1. Cheriz!!!

    I do not like the sound of not having those meds or the vest. Do you have a hil rom vest?

    They have awesome customer care so I would be surprised if it would take them that long to send a new one. I have received a new one basically overnight.

    Those meds are so important to you Cheriz and WE both know that. I hope they come in very soon for you my friend!

    ReplyDelete
    Replies
    1. I know, I'm soo glad they finally came! As far as the vest, Hil rom is talking to my insurance first ot make sure they will pay for the new one. My old one is from the early 90s. But I can jog, etc :-)

      Delete
  2. I like the valuable info you provide to your articles. I will bookmark your blog and check again here regularly. I’m somewhat certain I will be told many new stuff proper right here. Thanks!
    http://www.juegosfriv2017.live/football-tricks.html

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

My Clinical Trial Mess

A Clinical Trial Mess: Monday, I had an appointment for a clinical trial evaluation. Let me start out by saying, I always get  amazing care at my doctors...HOWEVER, this evaluation was done by a third party brought in to handle the research. The research nurse was a flibberty jibbet. She was nice, but kept just re-organizing her supplies, like she didn't know what to do. She seemed nervous. She mentioned she usually had another nurse with her. She took my weight, height, urine test, pre-med spirometry test (PFT-pulmonary function test) Next she decided to draw the blood, while waiting for the pft results to print. She got out the supplies and the sterile paper that she places it all on. She dropped te paper on the floor and proceeded to place the packaged needles and supplies on it.... So in my head I tell myself "Okay...( inhale control exhale my germfreak...) it's okay, it won't kill me..it only touches the bottom of my arm, not the actual place that she is dra...

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...