Skip to main content

How did I breathe at U of I?

How did I breathe at U of I:

At U of I, I had a couple of really bad semesters, where I didn't do what I should.  In 2009 I had high 60s for lung function, by April of 2010 I was in the 30s.  I would hang out with friends instead of do my meds, I'd skip meals to not have to take pills in front of people.  Between my skipping meals and not doing meds, I got pretty sick. I was on and off IV meds for 3 months.  (also note: I will doing Stand Up Comedy again this Friday, which I haven't done since those months at U of I ---> yay!)

I came home (lived in my hometown) that May and got back on track. I went back to U of I for my final semester there that fall and kept on track! My roomie Stacy helped me a lot. When I think about those months where I was really underweight, low lung function, and on IVs, I know I don't want to be there again. Not that it is completely in our control, there are ways our lung function can drop that isn't related to our doing meds, etc. Getting sick, scarring in our lungs from infections, certain infections we catch, etc.

Whenever, I have a hard time breathing for an extended period of time ( a couple days or more) I always remember U of I.This last week without meds, I started off not noticing too much. Yesterday it started to really hit me. I had more asthma attacks, coughing spells, whatever you call them. Today I noticed I'm out of breath in general more.

I have been out of my meds for a week (as of tomorrow). Long story short, my prescriptions ran out, by the time I got them printed, faxed, the dr sent the orders, the pharmacy confirmed and I could re-order it was 3 days later (Friday). And now they seem to be taking forever to ship. (and I'm waiting for my new vest, my old one broke a couple weeks ago). haha, go figure. I got nothing clearing out my lungs or helping me breath right now.

This week has been a little tougher, but now I'm really starting to notice how much harder it is to breathe and how much more often I'm coughing. Then I think back to a couple semesters I had a U of I. I got really off track for a while at U of I and I can't believe I was okay with that. I'm sooo looking forward to my meds arriving! Never thought I'd say that!!

So to those of you who donated towards our CF walk, I will be restarting my 2nd week of the CF Challenge. :-) And continue (I believe we have another 1.5 weeks after that already fundraised! Also, I got our brochures in the mail!





Comments

  1. Cheriz!!!

    I do not like the sound of not having those meds or the vest. Do you have a hil rom vest?

    They have awesome customer care so I would be surprised if it would take them that long to send a new one. I have received a new one basically overnight.

    Those meds are so important to you Cheriz and WE both know that. I hope they come in very soon for you my friend!

    ReplyDelete
    Replies
    1. I know, I'm soo glad they finally came! As far as the vest, Hil rom is talking to my insurance first ot make sure they will pay for the new one. My old one is from the early 90s. But I can jog, etc :-)

      Delete
  2. I like the valuable info you provide to your articles. I will bookmark your blog and check again here regularly. I’m somewhat certain I will be told many new stuff proper right here. Thanks!
    http://www.juegosfriv2017.live/football-tricks.html

    ReplyDelete

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

Oh the Joys of a Colonoscopy!

Colonoscopy, Fun: As you may remember from reading my October Posts (  Oct Post #1   &  2nd Oct Post ) that I was admitted a second time that month for Gastrointestinal issues. I was having stomach cramps and what was believed to be Antibiotic Associated Diarrhea. However, CT scan revealed my colon and intestines were inflammed.  After having a rough 2 months of GI issues, and cuting out most food (diary, meat, grease, carbonated beverages, and sugar). I finally am getting a Colonoscopy to see what in the world is going on! I'm been taking Probiotics, was on meds for both C. diff and AAD. I even added driking Kefir to add to the probiotics and good bacteria.  Only now am I seeing any changes, less stomach aches, etc. I add a 1/2 cup pf the Kefir to my smoothie, its not bad -yum! I really reccommend it and Probiotics (so talk to your doctor about it), it could really help you out! Read about Colonoscopies here! So I'm glad to be g...

Um..Need to clear my head.

I was having a good day, it was one of my babysitting girl's bdays! We went for ice cream, I hung out with a friend and watched "Game of Thrones". I really liked it and I'm hoping to watch more this wknd. Then I logged onto Facebook to see that my best friend Laura (with CF) is down in lung function, on oxygen at night and her doctor is putting her on the Transplant list. I have lots of thoughts going through my head the MAIN one is "Please let her get a Tx soon, heal well and fast, and live her full life, they way she deserves to! PLEASE, PLEASE, PLEASE!" I can't imagine how she must feel, I know I'm sad knowing she is at point she needs one, but HAPPY she will get on the list! Happy, Sad, Scared, Excited. How do I feel..? The worst part is knowing that she is pain. I just want to take all that away, give her some good n plentys (one of our fave candy), kiss her on the forehead, tell her I love her, and that before she knows it she will have...