Skip to main content

No IVs for me!

No IVs for me, thanks!

First off, Let's clap, BECAUSE it has been 2.5 years since I have needed antibiotics, oral or IV (other than my bi-weekly dose of zithromax). Literally, I have not been ill enough to see my doctor in 2.5 YEARS! That's amazing. I used to get really sick every couple months, but thank goodness, that hasn't been the case. Although I have been working my butt off these past two years to get healthier, guess it is working.

BUT...
I was really nervous Dr. B would throw me in the hospital because I've beeen sick for a week and lost quite a bit of weight. However, he is having me take Cipro instead! I'm taking the usual (for me that is) 1,500 mg daily for two weeks! If I'm not feeling better & eating better by Saturday, he is going to add prednisone;Which I have never taken before. My mother was on an extremely large dose after she went through Chemo for a while and seeing the side effects kinda freaked me out a bit, but my dose will be small. And I trust Dr. B will mske great choices, other CFers have discussed prednisone before online, but my old doctor never brought it up. Not sure why.

Anyway, I'm hoping I will feel better by Saturday and not have to add that to the already 20 some pills and 10 nebulizers ( and he wants me to to do 3-4 more a day, so 13-14 nebs) that I do each day. At least I'm done with Cayston and I'm on Tobi now.

Note: I do Cayston one month and Tobi one month. I alternate them, but Cayston is 3 times a day and requires a different neb machine. Its quicker to do the neb, but the cleaning and 3 x a day routine makes it harder to fit them in. With Tobi, I can do it before school and after I come home from whatever I'm doing. Which means I only have to take albuteral and hypertonic saline and that machine with me during the day, no traveling  refrigeration needed.

Since I haven't felt good lately, I have been slacking on cleaning, and I'm a VERY organized (neat freak if you will) person. My beds haven't been made in a week, my dirty clothes keeping piling up in my basket, and I haven't vaccumed, dusted, swept, ugh.  I want to get this done this week, so I can finish decorating for Christmas!

I have a TREE this year. Since I rent my duplex I wasn't sure if I could bring in a real one, so I bought a fake one last year on clearance! I'm sooo excited to put it up!

Comments

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...