Skip to main content

No IVs for me!

No IVs for me, thanks!

First off, Let's clap, BECAUSE it has been 2.5 years since I have needed antibiotics, oral or IV (other than my bi-weekly dose of zithromax). Literally, I have not been ill enough to see my doctor in 2.5 YEARS! That's amazing. I used to get really sick every couple months, but thank goodness, that hasn't been the case. Although I have been working my butt off these past two years to get healthier, guess it is working.

BUT...
I was really nervous Dr. B would throw me in the hospital because I've beeen sick for a week and lost quite a bit of weight. However, he is having me take Cipro instead! I'm taking the usual (for me that is) 1,500 mg daily for two weeks! If I'm not feeling better & eating better by Saturday, he is going to add prednisone;Which I have never taken before. My mother was on an extremely large dose after she went through Chemo for a while and seeing the side effects kinda freaked me out a bit, but my dose will be small. And I trust Dr. B will mske great choices, other CFers have discussed prednisone before online, but my old doctor never brought it up. Not sure why.

Anyway, I'm hoping I will feel better by Saturday and not have to add that to the already 20 some pills and 10 nebulizers ( and he wants me to to do 3-4 more a day, so 13-14 nebs) that I do each day. At least I'm done with Cayston and I'm on Tobi now.

Note: I do Cayston one month and Tobi one month. I alternate them, but Cayston is 3 times a day and requires a different neb machine. Its quicker to do the neb, but the cleaning and 3 x a day routine makes it harder to fit them in. With Tobi, I can do it before school and after I come home from whatever I'm doing. Which means I only have to take albuteral and hypertonic saline and that machine with me during the day, no traveling  refrigeration needed.

Since I haven't felt good lately, I have been slacking on cleaning, and I'm a VERY organized (neat freak if you will) person. My beds haven't been made in a week, my dirty clothes keeping piling up in my basket, and I haven't vaccumed, dusted, swept, ugh.  I want to get this done this week, so I can finish decorating for Christmas!

I have a TREE this year. Since I rent my duplex I wasn't sure if I could bring in a real one, so I bought a fake one last year on clearance! I'm sooo excited to put it up!
Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec
20 comments
Read more

Post- Surgery Appointment

Post Surgery Appt: As you prolly know, I had Laparoscopic Triple Hernia Surgery last Tuesday. Here was a picture of me devouring a piece of bread so I could go home afterward the surgery (4 hours post surgery and 20 mins post waking up from recovery). I was ready to go home! Today I had my post surgery check up. He said everything in the surgery went well and besides the finding the 3rd hernia there were no surprises. He pointed out where the staples/stitches (they are holding the mesh in place) are in me. I have two on each side at the end of the mesh (so 4 on top) and two down farther in my groin. Apparently, I just have one huge piece of mesh that runs the width and length of my whole abdomen/groin area. Bahaha. I am Inspector Gadget after all. He said a few more weeks before I can lift stuff or exercise. Also, he said the area where the staples are will hurt when bending or twisting. However, I only notice really when I twist or turn too fast. Overall, it was a nice appointment
10 comments
Read more

Theatre and Life...how to fit in CF?

Fitting CF into my life: Cystic Fibrosis won't be hard to fit into my schedule right now. As I just finished my job watching my babysitting kids for the year. I'm currently job hunting and taking classes on Mondays at the local community college (as a pre-req for Grad programs/and for fun). Mulan Jr, just ended today. We had two shows. Back-to-back performances are harder, since I had a busy day before the shows, I didn't get a chance to do my meds before the shows. Therefore, I end up bringing my therapy machine along.  Yep, sitting in the light booth and doing my meds, while watching people take their seats. [Note: I turned my therapy machine off when the house lights had to go out.] Its not that hard to fit them in. You just have to be willing to do them sometimes in unexpected places and be willing to have others find out about it. I had two people in the light booth with me, neither knew I had Cystic Fibrosis, but neither were bothered by the nebs. So bottom line
2 comments
Read more