Skip to main content

Last week and all that jazz

Last week:

Sorry, I haven't blogged in a week! Last week was Thanksgiving! Which is my favorite holiday, I love it. This thanksgiving was really fun (like usual), I got to see all my family and I went to 3 different thanksgivings all together! I worked during the morning on Thankgiving and was very happy to see that there was still lots of food left for me at the church when I got there!

 Last week on Wed and Saturday nights (sat night was at a CF Fundraiser). I got to see a lot of good friends I haven't seen in a while. It was nice catching up with everyone and I had a lot of fun. It makes me realize how much I miss seeing everyone! I was going to blog about something different, but this blog is about my CF and that includes when I'm sick or anything goes wrong, and of course when things go amazing. So here is my new topic for today:

 I kind of noticed that over the last week I have been coughing more. I figured it was due to weather being weird and the cold, etc, maybe running around to much, not sleeping enough.

But I think I have gotten worse over the last few days. I wasn't coughing as much today, but its getting harder to breathe. So guess, I will give it a few more days and then if I'm not better I will have to break down and call Dr. B. However, He told me when he first accepted me as a patient he won't order me my antibiotics and IVS to go straight to my house, like my old doctor did. I didn't have to go see my old doctor, I know when I have pnuemonia/ a lung infection and he would let me start IVS at my house.

Dr. B says he wants to always see me to make sure its nothing major and then he will hospitalize me for at least 2 or 3 days before releasing me to do my IVS at home (which itsnice to know he really wants to make sure and he really cares, I can't blame him at all. I admire that, but ugh. hospital.) So I don't want to call him. cuz:

1. I have school, work, social life that I can't just drop for 3 days to chill in a hospital. 2. I don't have my awesome roommates to take them out of the fridge for me before they leave for work, etc. That is the hard part about IV meds at home, the hours which I have to do them. There is little time to sleep and the scheduling horrible. I'm usually on Tobra 12 hours apart and another anitbiotic every 8 hours. So scheduling looks something like this(which I think is pretty standard for most CFers):

5am: wake up take IV med out of fridge
6m: hookup Tobra & take out Pipra Med
7am un hook Tobra and hook up Pip
8am: un hook Pip
2pm: take Pip out of frdige
3pm: hook up pip
4pm: unhook
5:take Tob out
6: hook up Tob
7:un hook tob
10pm: take out Pip
11pm:hook up Pip
midnight: unhook pip and go to sleep.
but wake up at 5am....

 And fit 10 nebulizers a day, plus go to classes and extra cirriculars (I'd take off work, but make no money) and for at least 2 weeks. How did I do it in the past. I used to go on IVS 3 times a year growing up and 2times a year in college. But it has been 2 years since and to be honest I'm not sure how I did it at U of I. I was on IVs constantly doing Urinetown. I had classes everyday and 4 hours rehearsals. How did I do that? No idea. Anyone remember? or CFers tips? I know I can do it, but tips wouldn't hurt :-)

Maybe I should buy a bigger calendar :-)

Hopefully, I can beat this on my own doing all my meds and everything and it doesn't become more serious. I have fought off stuff myself before. So it could be one of those amazing moments and I won't have t call Dr. B at all. We'll see what the end of the week brings! Hopefully in a few days I will be reporting some great news on my blog that tah-dah I'm doing great! Only time will tell.

Hope you all had a wonderful thanksgiving! I really did!

Comments

  1. Sorry to hear about the oncoming illness. Drink lots of fluids and wear cute scarves when you go outside. Hope to hear you're better soon.

    ReplyDelete

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

Exciting News, even in a Hospital!

Exciting News: Even in the Hospital: 3 Exciting things!! Yes, I know. exciting news in the hospital...Nope, I don't get to go home. Not yet. BUT, I'm excited to share some othe GREAT NEWS! First, of all since I was admitted last Thurirsday morning, I have gained weight. 1. because I don't have time to make food and eat at home as much as I need and 2. Who wouldn't devore a meal of roast beef, potatoes, veggies, fruit, and pudding at 6pm then order anothertray with shrimp and rice, and more dessert at 7pm? 1. So as of today I am 107.4 lbs! This is the highest I have been in a very long time. To check out my weight and lung functions changes over the years click here- Clinic-My Health Page! Only, down side...I need to buy new pants and running shorts, none of them fit me...I'm cheap and picky with clothes..so it may take a while. However, I'm sure a trip to Delia's will change my mind. Ps. for some reason Delia's usually fit, when others are t...