Skip to main content

Update on my Mummy Disease

My Mummy Disease Update:

My ankles are sore, but otherwise It's almost gone! I have two big spots left on my feet, but otherwise the spots have cleared up. I can't decide if I want them to stay away for good, or (this sounds bad) hope they come back next weekend, since I have CF clinic on Saturday! If they did come back Dr. B could see them in person. But, I don't want to deal with them anymore...ugh.

I had them July 19-21st ish, then they disappeared. Re-appeared at night on the 28th, disappeared the next day and re-appeared Friday, August 3rd. Why won't they go away for good!

I'm sorry to everyone I missed this weekend. However, the weekend turned out better than I thought, my parents drove me to my sister's apt in Peoria today. So I got to see where she lives,etc.

I'm very proud of her, she worked very hard in school at Augustana (Music Ed Major- Majoring in both Choir and Band, K-12 certified) and it paid off. After sending out only 5 job applications and doing 3 interveiws, she got offered a job the following day at one of them. BAM, Job!

I'm actually trying to find more jobs. I want to save some more money for Grad School. I hope to go to Grad school next year. I'm debating on applying this Jan or Fall semester.

We'll see. I'm glad my mummy disease is gone for now. I think if Doctors find out it's not really CF-related Arthritis, we should name it "Mummy Disease," hahaha!

Anyway that was my weekend and hopefully I will do okay at Clinic Saturday and Mummy disease will retire from my system for good! :-)

oh and I will be jogging tomorrow night!
Labels:

Comments

Post a Comment

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

I'm Back and Ready to Blog

I'm Back from Vacation and Ready to Blog! Yep, I'm officially home! I was gone for the last 5 days. That is probably the longest gap in my blogs in months. I was super busy before I left on Wednesday!! I had class(30 mins away), job interview, and errands to run before heading to my uncles.   I stayed the night there, since we headed out at 4am for the airport on Thursday. We arrived in Buffalo, NY and checked into our hotel! Then we headed off to Canada to view the falls from the Canadian side. We spent the whole day on there, walking, taking pics, doing different attractions. We went on the Maid of the Mist (on the boat you feel like your right under the falls) and we got soaked, it was such phenomenal views of the falls though (especially the horseshoe)! Then Friday we drove to Lockport, NY and took a tour of the Erie Canal (35-lock Canal). It was really neat hearing about the history and traveling up and down the canal. Being right up close to the gates, it felt a ...
Post a Comment
Read more