Skip to main content

CF isn't all tears and saddness. Get a Full Picture.

 CF and Laughing

Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF.

[Picture right:  Me ready for surgery in 2nd grade!]

Forgive my shoutouts (but I must recognize a few amazing people)

I have met some of the most amazing doctors: Chatrath, Dr. B
Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!)
Respitory Therapists: Jeannette, Lanell, and Don (you da Man)
And Cookie Marrow (Musical Therapist- She would sing to me all the time in hospital and once I even sang to her (she was in the hospital having surgery on her foot)).

AND patients. for example:
[Picture: Me and Tubes: Meet Jennifer Weber. Jennifer was in colllege back then, early 20s. While my CF friends and I were all 8-11 years old. None of us were on oxygen, and we asked her what the tubes were. She explained she had  to be on oxygen to breath and then we gave her the nickname "tubes"! She loved joking and made us laugh a lot. She has been fortunate and has received 2 double lung transplants over time! ]

Why would I ever wish I wasn't born with CF when I got to witness life changing stories everyday. Stories of love, hope and inspiration. I saw real struggles and obstacles. I saw people perservere and love life to the fullest!

I have met many amazing kids and young adults with many diseases and disabilities, while staying/living in the hospital. Therefore, I learned empathy at a very young age. I loved/love with all my heart. (Probably, why I was a little overbearing/protective/clingy with my little sister). Sounds cheesy, but its true. I learned to help other kids in the hospital and make friends with everyone. I was the kid, whose parents became parents to all the CFers in the hospital. I learned how to love from my parents and my CF. 

I owe a lot of my character and personality to my "stays" in the hospital. Don't get me wrong, the fact I haven't been in one since 2008 and haven't been on IV meds since 2010 (*fist pump*) doesn't mean I want to stop my upward trend in health. It just means I'm thankful for the positives CF has brought me. It has made me tougher, more independent, and mostly, more loving. For once, I stop to say thank you CF.



Labels:

Comments

  1. JohnAugust 22, 2012 at 7:59 AM

    Cheriz, I loved this post. I always have found a trend among CF patients well at least on the blogger front. CF has made us who we are. We are stronger, more mature, independent, the list goes on and on. I love this about our community.

    But I know all of us cannot wait for that day when this disease is cured!! Keep fighting on Cheriz and living your dreams!!!!

    ReplyDelete
  2. AnonymousJanuary 29, 2015 at 10:35 AM

    Thanks for a unique and positive perspective on CF.

    ReplyDelete

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Oh the Joys of a Colonoscopy!

Colonoscopy, Fun: As you may remember from reading my October Posts (  Oct Post #1   &  2nd Oct Post ) that I was admitted a second time that month for Gastrointestinal issues. I was having stomach cramps and what was believed to be Antibiotic Associated Diarrhea. However, CT scan revealed my colon and intestines were inflammed.  After having a rough 2 months of GI issues, and cuting out most food (diary, meat, grease, carbonated beverages, and sugar). I finally am getting a Colonoscopy to see what in the world is going on! I'm been taking Probiotics, was on meds for both C. diff and AAD. I even added driking Kefir to add to the probiotics and good bacteria.  Only now am I seeing any changes, less stomach aches, etc. I add a 1/2 cup pf the Kefir to my smoothie, its not bad -yum! I really reccommend it and Probiotics (so talk to your doctor about it), it could really help you out! Read about Colonoscopies here! So I'm glad to be g...
4 comments
Read more

Um..Need to clear my head.

I was having a good day, it was one of my babysitting girl's bdays! We went for ice cream, I hung out with a friend and watched "Game of Thrones". I really liked it and I'm hoping to watch more this wknd. Then I logged onto Facebook to see that my best friend Laura (with CF) is down in lung function, on oxygen at night and her doctor is putting her on the Transplant list. I have lots of thoughts going through my head the MAIN one is "Please let her get a Tx soon, heal well and fast, and live her full life, they way she deserves to! PLEASE, PLEASE, PLEASE!" I can't imagine how she must feel, I know I'm sad knowing she is at point she needs one, but HAPPY she will get on the list! Happy, Sad, Scared, Excited. How do I feel..? The worst part is knowing that she is pain. I just want to take all that away, give her some good n plentys (one of our fave candy), kiss her on the forehead, tell her I love her, and that before she knows it she will have...
2 comments
Read more