Skip to main content

Weekend, gone for a few days!

This Weekend:

I will be gone tomorrow morning through Sunday, so I won't be able to blog and will have to find something equally entertaining to keep me occupied during my meds.

Today, I had a busy day; I ran errands, babysat this morning, judged theatre and interior design at the 4H fair this afternoon. I came home started packing and went back later to judge the fashion revue/show.

Of course, I come home to continue packing, but I want to pack all my clothes. I keep thinking, "oooh I might want this" or "oh, that's really cute!" Apparently, the fashion show, got my mind in fashion mode!


(packing and unpacking, packing and unpacking...)

Okay, I took out a lot of the clothes I didn't need. And I got everything into 2 bags. For a 2 night/3 day trip that sounds sad. But with Med stuff, I'm proud of my packing capabilities (Yay, for Girl Scouts).

bag on left: clothes (pjs, reg outfits, jogging outfits, cute outfit for going out), hair/tolietries (see my aussie hair spray!) pills in the mesh pocket, ipod, etc.

bag on right: big compartment: 8 cans of stomach feeding (which is why my bags weigh SO MUCH!), bags, feeding pump, tube and syringe (connector), med tape, therapy machine, accapella machine, altera therapy machine (for Cayston), nebulizer cups(4), and anything I left off the list! smaller compartment: shoes for wedding, shoes for regular, comfy cute shoes, and running shoes. (I got it down to 4 pair shoes and my flip flops that I'm wearing there!)


Just imagine, last fall when I went to Vegas I had to pack double the meds and feeding cans! Seriously, I can't imagine what a week long vacation would like (in luggage) for me! YIPES! I can barely manage my two bags, purse, and small cooler (for refrigerated meds)!

Yep, I'm all set! I'm so excited to spend the weekend with my friend, Dan! Spencer and Kayla's Wedding is Saturday, which will be lots of fun and really nice to see some friends from U of I! I haven't been to Quincy to visit Dan since Feb! At least I have a car this time, so I don't have to manage all the luggage at the train station :-)

So Everyone have A GREAT WEEKEND! and I will be back to blogging when I get back! :-) ps. keep my friend, Laura in your thoughts & prayers. She is still in the hospital, recovering well from surgery (had her port replaced), but still pretty sick!

Comments

  1. Warm Greetings!




    Today, I visit your website and after reading your blog i realize that it is very informative. I'm highly impressed to see the comprehensive resources being offered by your site.


    Thanks and Regards



    Motorised trademill

    ReplyDelete

Post a Comment

Popular posts from this blog

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...

Planning ahead (yay, for being organized).

Organization: it is a great thing! I'm doing another CF Walk in October! It's on the 6th at 9am. Why am I posting this now? In the past I wasn't organized. I would end up asking a couple friends to walk it with me. I didn't fundraise much, but I want that to change! I've had people tell me they would have walked if they knew about it. I'm blogging now, being more active on CF communities online, and there is no reason why I shouldn't invite others to do the walk. Everyone knows I have CF, why did I never invite more people?? No clue. So here I am inviting everyone to come and walk with my team! Here is the link the Facebook Event: Cheriz's CF walk FB event Also a link directly to my GreatStrides Walk page is on the upper lefthand side of the blog! I want to start to be more active in fundraising walks (along with 5ks). I'm planning on doing 2-3 CF walks a yr, and the ALS/PLS Walk every year! If you want to cheer me on at my first 5k i...

Why I Hope this Hospital Stay is Different

Typically, I've been very stable as an adult. I'm very lucky for that stability. However, 2018 started out nowhere near where I wanted. I was admitted mid March for a virus. We aren't sure what virus I had (every test came back negative). However, I had a consistent fever over 102 the entire 5 days I was in the hospital. Once I was fever free for 24 hours and I started eating better, they let me return home. I was excited to leave and get back to my everyday life. But, considering now a month later (and re-admitted), I think I should of just done a two week tune-up last month while I was in already. Live and learn. As you know (I'm sure) I have been trying to get my lung function back up to around 55-60%. 60% is my goal and it really is the highest my lung function can get, due to all the permanent scarring. I started Orkambi in October 2016. At that time it was the newest gene-modifier drug on market for CF patients (with my mutations).  After going on Orkambi I droppe...