Skip to main content

Weekend, gone for a few days!

This Weekend:

I will be gone tomorrow morning through Sunday, so I won't be able to blog and will have to find something equally entertaining to keep me occupied during my meds.

Today, I had a busy day; I ran errands, babysat this morning, judged theatre and interior design at the 4H fair this afternoon. I came home started packing and went back later to judge the fashion revue/show.

Of course, I come home to continue packing, but I want to pack all my clothes. I keep thinking, "oooh I might want this" or "oh, that's really cute!" Apparently, the fashion show, got my mind in fashion mode!


(packing and unpacking, packing and unpacking...)

Okay, I took out a lot of the clothes I didn't need. And I got everything into 2 bags. For a 2 night/3 day trip that sounds sad. But with Med stuff, I'm proud of my packing capabilities (Yay, for Girl Scouts).

bag on left: clothes (pjs, reg outfits, jogging outfits, cute outfit for going out), hair/tolietries (see my aussie hair spray!) pills in the mesh pocket, ipod, etc.

bag on right: big compartment: 8 cans of stomach feeding (which is why my bags weigh SO MUCH!), bags, feeding pump, tube and syringe (connector), med tape, therapy machine, accapella machine, altera therapy machine (for Cayston), nebulizer cups(4), and anything I left off the list! smaller compartment: shoes for wedding, shoes for regular, comfy cute shoes, and running shoes. (I got it down to 4 pair shoes and my flip flops that I'm wearing there!)


Just imagine, last fall when I went to Vegas I had to pack double the meds and feeding cans! Seriously, I can't imagine what a week long vacation would like (in luggage) for me! YIPES! I can barely manage my two bags, purse, and small cooler (for refrigerated meds)!

Yep, I'm all set! I'm so excited to spend the weekend with my friend, Dan! Spencer and Kayla's Wedding is Saturday, which will be lots of fun and really nice to see some friends from U of I! I haven't been to Quincy to visit Dan since Feb! At least I have a car this time, so I don't have to manage all the luggage at the train station :-)

So Everyone have A GREAT WEEKEND! and I will be back to blogging when I get back! :-) ps. keep my friend, Laura in your thoughts & prayers. She is still in the hospital, recovering well from surgery (had her port replaced), but still pretty sick!

Labels:

Comments

  1. AnonymousJuly 27, 2012 at 6:05 AM

    Warm Greetings!




    Today, I visit your website and after reading your blog i realize that it is very informative. I'm highly impressed to see the comprehensive resources being offered by your site.


    Thanks and Regards



    Motorised trademill

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

My Clinical Trial Mess

A Clinical Trial Mess: Monday, I had an appointment for a clinical trial evaluation. Let me start out by saying, I always get  amazing care at my doctors...HOWEVER, this evaluation was done by a third party brought in to handle the research. The research nurse was a flibberty jibbet. She was nice, but kept just re-organizing her supplies, like she didn't know what to do. She seemed nervous. She mentioned she usually had another nurse with her. She took my weight, height, urine test, pre-med spirometry test (PFT-pulmonary function test) Next she decided to draw the blood, while waiting for the pft results to print. She got out the supplies and the sterile paper that she places it all on. She dropped te paper on the floor and proceeded to place the packaged needles and supplies on it.... So in my head I tell myself "Okay...( inhale control exhale my germfreak...) it's okay, it won't kill me..it only touches the bottom of my arm, not the actual place that she is dra...
6 comments
Read more

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...
6 comments
Read more