Skip to main content

I'm not a Mummy anymore!

I'm not a Mummy anymore!

A couple posts ago I discussed how once in a while my joint gets so stiff I feel like a mummy (like I had been wrapped up so tight I can't move). Last night, the spots on my legs reached there worst point (in the last 4 days). However, I saw Dark Knight Rises and then had people over at my house, so I basically sat around most of the time (which is good). The spots started to go away around midnight and by 4am (when I woke up briefly) they were gone. I decided to get a bit of jogging in, incase they came back. I did a mile, then slept again. I, off and on, napped and did website work all day.

I slept so much today that now I'm awake at 11:30pm. However, after I blog this I'm going to try and sleep, so I can get back to my regular routine.

I'm so glad that I can move again. My CF-related Arthritis makes CF hard to fight. When I can't move, I'm more prone to skipping meds, not getting up to eat, not jogging, and most nights fail to make my stomach feeding.

I need to figure out at a way to keep up with my health routine while I have my arthritis flare ups. I know some CFers take pain meds, but I don't want to have to rely on pain meds. I had my share of pain meds in 2003 (when we found out I was deathly allergic to morphine) to last me a lifetime.

I'm ashamed I failed at taking care of myself that last fews days due to my liver issues, but it's the truth. I need to keep reminding myself that by not getting up and dealing with the pain, my CF is winning 1 battle with me. AND i refuse to let that happen.

I will be stronger next time. I do better each time and have been learning how to deal with stuff while living on my own.  I thought all those years I had roomates I was totally independent, but its a lie. My roommate, Stacey, helped me a lot. <3 you Stacey!

Live and Learn. I have more to learn, but each day I learn more and more.

(Below: pic of spots earlier yesterday/beginning stage spots)
Labels:

Comments

Post a Comment

Popular posts from this blog

Craft Show and Work.

Craft Show This Saturday is the Craft Show! Mom and I will be selling our stuff there! It's at Liberty Village in Princeton from 11am-2pm! Please come and see all the booths! There will be 20 booths, kid's bouncy houses, games, prizes, raffles, etc. Proceeds from raffles, etc help give the residents of Liberty Village Christmas gifts and a Chirstmas Celebration! I'm excited to do this craft show, I remember going to them when I was younger! I loved it! Mom would take me along and I really enjoyed spending the day with her and looking at all the crafts! Mom is selling lots of hats, some purses, pouches, a couple blankets, teddy bears, etc. I will be doing my usual picture frames, notecards, etc. I will also be selling Michelle's My Bubble Products! To see some products: A Few of Mom's products -> Click Here!     Michelle's My Bubble products -> Click Here!      My mom said she is going to set aside a portion of her profits to ...
Post a Comment
Read more

Tech-savvy Thursday- new look!

New Look: Getting Tech-Savvy: Since, I'm getting more involved in blogging, I decided it was time to give my blog a makeover! eMake-overs are always fun, whether you getting a new hair style, or outfit at the mall. However, I've been researching a lot about blogs and social networking. And I thought it may be time to update my blog's look.      I think I like my new one (at the top) a lot better than the old one (pictured on right). What do you think? I wanted my blog to feel more personal and I wanted to make it more tech-savy. I kept the black/purple color scheme. But made the purple the main color instead (and made it a softer purple). I then started looking up how to make my own buttons, widgets, etc. It isn't too hard to find tutorials for anything these days, between google, pinterest, and forums, you can pretty much find instructions for anything. I used a simple code and photobucket to make my own buttons: I think my new Tw...
2 comments
Read more

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...
Post a Comment
Read more