Skip to main content

Crazy, Busy days...

So the last week has been crazy.

Between babysitting,websites uploads, hmwk for real estate exam, my online politics course (pre-req for Grad School), play rehearsals 5 nights a week, and trying to train for a 5K... I've been pretty busy.

I have been failing a little at keeping up with my meds. I haven't been doing all 4 in the morning and have been doing 2 instead of 3 in the evenings. I think its crazy that people say "Wow, how do you do it all". I don't. simply one area of my life tends to get left behind a bit. Yes, sadly that is therapies this time. I'm refusing to skip my entire morning meds or evening meds when I'm rushed though, since that's when I tend to continue skipping.

Sunday, Wednesday, Friday and today i will have done them ALL! YAY!  But Tuesday and Thursday I skipped 3 each day.  I'm not perfect, nobody is, but I am honest. I can tell the difference in my breathing. Plus, the air around my place was really hard to breathe in yesterday (sadly, a 12 unit apt complex across the street was on fire and firefighters fought it for 4 hours, before all the fire was out).

I'm going to have to start jogging in the morning instead of night, with our Hairspray performances starting Thursday night! I'm sooo nervous I won't be ready for the 5K, my jogging/walking hasn't improved much in the last 2 weeks (probably due to lack of therapies and being tired when getting home from rehearsals).

But I will just keep with it and try my best. That's all I can do! And we will see what happens!

ps. In Hairspray I tap dance in jail ---------> here is a glimpse! Its kinda of amusing, but intense at the same time. LOL (if you are new to my blog, I'm in teal)



Comments

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...