Skip to main content

Crazy, Busy days...

So the last week has been crazy.

Between babysitting,websites uploads, hmwk for real estate exam, my online politics course (pre-req for Grad School), play rehearsals 5 nights a week, and trying to train for a 5K... I've been pretty busy.

I have been failing a little at keeping up with my meds. I haven't been doing all 4 in the morning and have been doing 2 instead of 3 in the evenings. I think its crazy that people say "Wow, how do you do it all". I don't. simply one area of my life tends to get left behind a bit. Yes, sadly that is therapies this time. I'm refusing to skip my entire morning meds or evening meds when I'm rushed though, since that's when I tend to continue skipping.

Sunday, Wednesday, Friday and today i will have done them ALL! YAY!  But Tuesday and Thursday I skipped 3 each day.  I'm not perfect, nobody is, but I am honest. I can tell the difference in my breathing. Plus, the air around my place was really hard to breathe in yesterday (sadly, a 12 unit apt complex across the street was on fire and firefighters fought it for 4 hours, before all the fire was out).

I'm going to have to start jogging in the morning instead of night, with our Hairspray performances starting Thursday night! I'm sooo nervous I won't be ready for the 5K, my jogging/walking hasn't improved much in the last 2 weeks (probably due to lack of therapies and being tired when getting home from rehearsals).

But I will just keep with it and try my best. That's all I can do! And we will see what happens!

ps. In Hairspray I tap dance in jail ---------> here is a glimpse! Its kinda of amusing, but intense at the same time. LOL (if you are new to my blog, I'm in teal)



Comments

Popular posts from this blog

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...

Planning ahead (yay, for being organized).

Organization: it is a great thing! I'm doing another CF Walk in October! It's on the 6th at 9am. Why am I posting this now? In the past I wasn't organized. I would end up asking a couple friends to walk it with me. I didn't fundraise much, but I want that to change! I've had people tell me they would have walked if they knew about it. I'm blogging now, being more active on CF communities online, and there is no reason why I shouldn't invite others to do the walk. Everyone knows I have CF, why did I never invite more people?? No clue. So here I am inviting everyone to come and walk with my team! Here is the link the Facebook Event: Cheriz's CF walk FB event Also a link directly to my GreatStrides Walk page is on the upper lefthand side of the blog! I want to start to be more active in fundraising walks (along with 5ks). I'm planning on doing 2-3 CF walks a yr, and the ALS/PLS Walk every year! If you want to cheer me on at my first 5k i...

Why I Hope this Hospital Stay is Different

Typically, I've been very stable as an adult. I'm very lucky for that stability. However, 2018 started out nowhere near where I wanted. I was admitted mid March for a virus. We aren't sure what virus I had (every test came back negative). However, I had a consistent fever over 102 the entire 5 days I was in the hospital. Once I was fever free for 24 hours and I started eating better, they let me return home. I was excited to leave and get back to my everyday life. But, considering now a month later (and re-admitted), I think I should of just done a two week tune-up last month while I was in already. Live and learn. As you know (I'm sure) I have been trying to get my lung function back up to around 55-60%. 60% is my goal and it really is the highest my lung function can get, due to all the permanent scarring. I started Orkambi in October 2016. At that time it was the newest gene-modifier drug on market for CF patients (with my mutations).  After going on Orkambi I droppe...