Skip to main content

Oh Where, Oh Where could my Vitamin D be? O Where, O Where Can it Be?

Where did the Vitamin D go?

I had my quarterly CF appointment, which is usually just refered to as "Clinic". It was a great, but a weird appt. I found out my DNA Mutations. There are 44 common Mutations and I was tested for those only at this time. I found out I have two copies of the Delta F508. (for news on updates on drug research for mutations check out www.cff.org!)

Not only did I found out my mutations, but Dr. B thinks my joint/hives problem is Arthritis related to my CF, so I think that may be figured out finally!!!!

AND BEST OF ALL... I gained 5 lbs and now weigh 101 lbs! I also brought my FEV1 up to 57% from 54% and all of this in the last 3 months!

The only problem was my lack of Vitamin D, apparently Dr. B's script was for enough Vitamin D for a Cow! But after two weeks of taking this much  I still had NO vitamin D in my system... Dr. B goes " where is it going?" I'm going to take the huge dose of Vitamin D again for two weeks and get retested...Hopefully it will solve itself, the mystery continues...

and in the next few weeks I will start walking/jogging regularly...we'll see how that goes/ and how long that lasts...lol
Labels:

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Packing it on and figuring it out!

Packing it on and figuring it out. I used the same pronoun to represent two different objects. It seems wrong to do that, but it leaves some mystery... did it work? are you curious? As you might have guessed the first "it" refers to my weight. Yep, I'm gaining weight. 105 lbs. yay! I'm sooo excited to show/tell Dr. B next week! Although, I do think its all in my legs. Now that I have been walking/jogging every night, I have noticed my legs have gotten quite a bit thicker (this is a good thing). I'm don't think my legs fall in the "chicken legs" category anymore. Now!                                                              ...
1 comment
Read more

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...
Post a Comment
Read more