Oh Where, Oh Where could my Vitamin D be? O Where, O Where Can it Be?

Where did the Vitamin D go?

I had my quarterly CF appointment, which is usually just refered to as "Clinic". It was a great, but a weird appt. I found out my DNA Mutations. There are 44 common Mutations and I was tested for those only at this time. I found out I have two copies of the Delta F508. (for news on updates on drug research for mutations check out www.cff.org!)

Not only did I found out my mutations, but Dr. B thinks my joint/hives problem is Arthritis related to my CF, so I think that may be figured out finally!!!!

AND BEST OF ALL... I gained 5 lbs and now weigh 101 lbs! I also brought my FEV1 up to 57% from 54% and all of this in the last 3 months!

The only problem was my lack of Vitamin D, apparently Dr. B's script was for enough Vitamin D for a Cow! But after two weeks of taking this much I still had NO vitamin D in my system... Dr. B goes " where is it going?" I'm going to take the huge dose of Vitamin D again for two weeks and get retested...Hopefully it will solve itself, the mystery continues...

and in the next few weeks I will start walking/jogging regularly...we'll see how that goes/ and how long that lasts...lol

Today's BIG Appointment

I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Post- Surgery Appointment

Post Surgery Appt: As you prolly know, I had Laparoscopic Triple Hernia Surgery last Tuesday. Here was a picture of me devouring a piece of bread so I could go home afterward the surgery (4 hours post surgery and 20 mins post waking up from recovery). I was ready to go home! Today I had my post surgery check up. He said everything in the surgery went well and besides the finding the 3rd hernia there were no surprises. He pointed out where the staples/stitches (they are holding the mesh in place) are in me. I have two on each side at the end of the mesh (so 4 on top) and two down farther in my groin. Apparently, I just have one huge piece of mesh that runs the width and length of my whole abdomen/groin area. Bahaha. I am Inspector Gadget after all. He said a few more weeks before I can lift stuff or exercise. Also, he said the area where the staples are will hurt when bending or twisting. However, I only notice really when I twist or turn too fast. Overall, it was a nice appoint...

The Stork Came!

It finally happened!!! The Stork came to our house!! We had 3 kids placed with us (on August 4th) Friday afternoon. Luckily, Andrew was able to take off Friday-Monday (Aug 4th-7th) to be home as we all adjust the first few days. He then worked 8th-12th, but we needed him back home more until the kiddos started school. So took a full second week off, because it was really rough ! Big thanks to Culvers & Phil for allowing us time we needed. I love having kids in the house, but it's a lot of appointments for these kiddos at first. . For privacy reasons, I will never use their names or post pictures of them. I have made fake names for these posts. When they called I was a little nervous to take 3 kids at once, especially since I have Cystic Fibrosis. We had agreed on only 2 originally. But, the lady explained the 3 of them really needed somewhere. Most foster parent's don't take sibling groups and it is really rare to find one that will take three, so our hearts wanted to ...

Cheriz: My life with Cystic Fibrosis

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