Oh Where, Oh Where could my Vitamin D be? O Where, O Where Can it Be?

Where did the Vitamin D go?

I had my quarterly CF appointment, which is usually just refered to as "Clinic". It was a great, but a weird appt. I found out my DNA Mutations. There are 44 common Mutations and I was tested for those only at this time. I found out I have two copies of the Delta F508. (for news on updates on drug research for mutations check out www.cff.org!)

Not only did I found out my mutations, but Dr. B thinks my joint/hives problem is Arthritis related to my CF, so I think that may be figured out finally!!!!

AND BEST OF ALL... I gained 5 lbs and now weigh 101 lbs! I also brought my FEV1 up to 57% from 54% and all of this in the last 3 months!

The only problem was my lack of Vitamin D, apparently Dr. B's script was for enough Vitamin D for a Cow! But after two weeks of taking this much I still had NO vitamin D in my system... Dr. B goes " where is it going?" I'm going to take the huge dose of Vitamin D again for two weeks and get retested...Hopefully it will solve itself, the mystery continues...

and in the next few weeks I will start walking/jogging regularly...we'll see how that goes/ and how long that lasts...lol

Today's BIG Appointment

I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Calling All Who Care!

Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART! First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

Time for a Change!

I have been blogging at www.cheriz.org since 2012. So an amazing 5 years! I found my forever career, my husband, my first & forever home! I said good-bye to my Stomach Tube & had some mjor medical transitions! However, CF affects a lot more than myself now. It affects Andrew, soon we will have kids in the house. To call my blog Cheriz- just doesn't make sense anymore. Coming up with a new name was super hard! However, my new blog is More Than DNA! ( MoreThanDNA.org ) Why did I name it that? Because I am MORE than my CF (or mutated DNA that makes up my CF). My family also will not have shared DNA. Any kids in our house (whether we adopt or foster children or not) will be considered our family & we don't think it matters that they won't have shared DNA. DNA does not define our family or us as an individual. We are more than our DNA! I have posted my first blog post at the new site! But I'm working on moving a lot my archives from this blog over. So it...

Cheriz: My life with Cystic Fibrosis

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