Skip to main content

Help me PRINCETON!

Princeton Walk:

It's official, My hometown will be hosting it's first GreatStrides walk ( Walk for Cystic Fibrosis)!!! I've done 6 walks: 3 in Peoria, IL, 2 in Champaign, IL, and 1 in Hollowayville, IL in the past couple years.

However on
 JUNE 28, 2014!!!!!!!!!

I'm so excited to have Princeton have a Walk! My hometown has always been supportive and helped encourage me. My teachers understood when I missed classes, my friends understood when I did my nebulizers while hanging out,, and my family has always been there for me!

What everyone needs to know about the walk:

THIS IS A TRIAL WALK. If we have a good enough turn out at the Walk, it will become a permanent walk site! Which I would love very VERY MUCH!! Please help me make this a reality!

Since this is the FIRST WALK! Before it can become a Walk Site with its own online registration and fundraising pages, we have show them we can bring enough people to the walk!

The Foundation Said:  For this year's Walk will register under TEAM PRINCETON at the Tuscola, IL Walk Site. City of Princeton's Walk Site! Click Here!  (make sure to "join a team"- search for Princeton and scroll down to join the team) Facebook, call or email me if you have questions!

 This allows me to keep tab on the number of people signed up, while allowing everyone who signs up to have an online fundraising website. Registering early, helps me to see about how many people are attending. (helps with food, T-Shirts Counts, etc). So PLEASE consider registering early.  You do not need to walk at the Tuscola Site, just Princetons.

We are justing using their site to sign up for online purposes!

So don't forget sign up UNDER TEAM PRINCETON at the TUSCOLA walk. If you need help, just ask. I can sign you up and help you with it!

Here is a picture of my Team Last year! Thank you to everyone who has ever walked with me and I hope to see you all next year in PRINCETON!

SIGN UP OR DONATE BY CLICKING ON THIS LINK: City of Princeton Walk Teams Registration Page! (make sure to "join a team"- TEAM PRINCETON)




Let's make this walk site a permanent location and have an amazing turn out.Help me spread word. :-)

YAY- HAPPY REGISTERING... I hope.... :-)
Labels:

Comments

  1. AnonymousNovember 13, 2013 at 12:56 PM

    I think Doctor Steve should come walk too

    ReplyDelete

Post a Comment

Popular posts from this blog

Clinical Trial, lung function test, and Crohn's diease

Clinical Trial, Clinic Today:   Clinical Trial 9am: Today, I went back to Dr. B's office for the clinical trial evaluation and start of trial. My last evaluation was a mess and I was not too happy with it ( Read about the first trial evaluation mess here! ) Luckily, we doubled today with my CF Clinic. It was a long day 9am-2pm in the office. BUT, good news is I'M ON THE TRIAL! It's not a new drug. I'm just doing the two meds like I always have (unless I get the placebo). I love being a part of clinical trials! The thought of helping drugs be approved that can help our health or even get approved by insurance easier! In the past I did a Clinical Trial for enzymes (that was a horrible clinical trial). I had to collect my stool in buckets and mail it to the lab...EW. But, it was to help us digest food better. AND now I'm on Zenpep, which is a fairly new enzyme and it does wonders for me! I did clinical trials also for Pulmozyme and Tobi too! So excited to get involv...
Post a Comment
Read more

A Simple Hug

I'm a hugging type person. In fact, I have a couple friends that aren't big on hugs or any kind of public displays of affection. However, they usually bring the bubble barrier (as I call it) down to hug me good bye. I'm also super extroverted and LOVE to hang out with friends.... Therefore, not being able to see my friends (with CF) in person drive me nuts. A lot of people (in society) don't realize that people with CF cannot be around each other. This is due to the bacteria we colonize in our lungs. It doesn't affect non-CF individuals. But, as we come in close proximity with other people with CF those bugs spread and continue to damage our lungs faster. We fight off the bacteria with antibiotics, but when I was younger we didn't have many options for antibiotics (especially nebulized). This meant we could not eradicate the bacteria and were stuck with it in our lungs for the rest of our life. The more bacteria we culture, the faster our lungs are damaged, t...
2 comments
Read more

Would 20 big Macs help?

Big Macs huh? I've had a couple customers at work mention things like " you're so skinny, you probably could eat anything. and still look that way."  Which I always just respond " yep, I guess I'm lucky" But I always think... Lucky.. lucky. yep I'm lucky I'm struggling to stay above 90 lbs right now. I have a stomach tube in me, have had it for 12 years and will have it for the rest of my life. I'm supposed to eat at least 4,000 calories a day. But I also have to fit in exercise to keep my lungs active, plus make up for all the calories that I burn. I get easily tired and if my weight drops suddenly it usually means I'm sick again. But since I'm skinny, yep I guess I'm lucky (rolls eyes). I hate telling people that I'm lucky. I'm not lucky when it comes to weight. Here are some phrases I hear that drive me nuts: - I'm lucky cuz I can't gain weight - you need to eat to put some meat on those bones...     ...
Post a Comment
Read more