2018: A glance over the year

This was the first FULL year we had kiddos in our home. We became fosterparents in 2017. We loved sharing memories and moments with all the kiddos we had in our home this year! Celebrating birthdays, holidays, and other big events!

2018 started a little rocky health wise. I was admitted multiple times between Jan-April. However, I started a new medication this year that was a bit of a game changer so far for me. Since starting symdeko I haven't been on IVs or been in the hospital (8 months as of this week!). That's a record since 2011! I'm so happy I am finally stable, considering I was running out of antibiotic options that would work. I went from thinking I was running out of meds and nearing lung transplant list time, to having some of the healthiest and happiest months of my life.

Andrew started Seminary school at Wartburg for his Masters in Divinity, we have been blessed by our church & congregation family helping us cover the cost (so we can stay away from student loans). Andrew will finish schooling in 3 years and at that point we hope to find a church in our local area. Pastor asked Andrew to give the message that day. It was an amazing way to start this journey and celebrate the moment with family, friends, and church family.

I changed companies, still doing Real Estate. I had my best year ever in Real Estate- thanks to the help of my co-workers and mentors! <3

Lots of happy and exciting moments: a couple trips to Galena, trip to St. Louis. I was given an award in Feb and named "Realtor of the Year 2017" by the Women's Council of Realtors. Andrew MCed multiple CF events locally (awards nights and CF Education Nights). I was honored to be 1 of 3 panelists at the National Cystic Fibrosis Volunteer Leadership Conference and was honored to share my story with the entire CF Community.

I took on more roles within the CFF and have been very focused on my fundraising! My family, friends, and teammates raised $11,865 this year for the CF Foundation and we still have a couple checks coming in the mail for end of year donations! WHOOHOO- proud and appreciate all of you!

Andrew and I appreciate all the support and love everyone has shown us with CF fundraising, Fostering, and with my CF. Happy New Year everyone.

and as far as new year resolutions go... I just want to continue to have a happy life with family, friends, and love <3

What's your NY Resolutions?

Comments

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs... and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th. I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

Calling All Who Care!

Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART! First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

A Hospital at Home

Coming home from the hospital takes a balance..... Wait.... Did I just say home from the hospital??? That's right! I get to leave Wednesday the 18th, after 8 days in the hospital. It was a logistical thing. I have a super important court date on for "Shoes (our AMAZING foster son) soon." So Doc knew before he admitted me that I would be leaving by that day... So what does this mean for me and my health??? Well, I need to make sure I continue the same treatment schedule I would in the hospital. So 4 sets of nebs a day. 8am, noon, 4pm, 8pm. Which means I finish my course of IVs at home. I will be on IV's at least until 27th (so 1.5 weeks left). I came into the hospital on Tuesday the 10th, but we didn't realize until Friday the 13th that my Psuedomonas is resistant to all of the antibiotic options for IVs except one med. So on the 13th we switched to Avycaz, which is a newer, hard hitting antibiotic that was brought to market less than 3 years ago. We were hoping I...

Cheriz: My life with Cystic Fibrosis

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