2018: A glance over the year

This was the first FULL year we had kiddos in our home. We became fosterparents in 2017. We loved sharing memories and moments with all the kiddos we had in our home this year! Celebrating birthdays, holidays, and other big events!

2018 started a little rocky health wise. I was admitted multiple times between Jan-April. However, I started a new medication this year that was a bit of a game changer so far for me. Since starting symdeko I haven't been on IVs or been in the hospital (8 months as of this week!). That's a record since 2011! I'm so happy I am finally stable, considering I was running out of antibiotic options that would work. I went from thinking I was running out of meds and nearing lung transplant list time, to having some of the healthiest and happiest months of my life.

Andrew started Seminary school at Wartburg for his Masters in Divinity, we have been blessed by our church & congregation family helping us cover the cost (so we can stay away from student loans). Andrew will finish schooling in 3 years and at that point we hope to find a church in our local area. Pastor asked Andrew to give the message that day. It was an amazing way to start this journey and celebrate the moment with family, friends, and church family.

I changed companies, still doing Real Estate. I had my best year ever in Real Estate- thanks to the help of my co-workers and mentors! <3

Lots of happy and exciting moments: a couple trips to Galena, trip to St. Louis. I was given an award in Feb and named "Realtor of the Year 2017" by the Women's Council of Realtors. Andrew MCed multiple CF events locally (awards nights and CF Education Nights). I was honored to be 1 of 3 panelists at the National Cystic Fibrosis Volunteer Leadership Conference and was honored to share my story with the entire CF Community.

I took on more roles within the CFF and have been very focused on my fundraising! My family, friends, and teammates raised $11,865 this year for the CF Foundation and we still have a couple checks coming in the mail for end of year donations! WHOOHOO- proud and appreciate all of you!

Andrew and I appreciate all the support and love everyone has shown us with CF fundraising, Fostering, and with my CF. Happy New Year everyone.

and as far as new year resolutions go... I just want to continue to have a happy life with family, friends, and love <3

What's your NY Resolutions?

Comments

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs... and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th. I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

My Dad Deserves More Than 1 Day!

Happy Fathers' Day to ALL the Fathers out there! I wanted to post a list to why I'm sooo thankful for my dad (its faster, bit more fun, and I gotta get ready for my Dad's Cookout still)!!! Top 15 (10 isn't enough..lol) reasons Dad should get more than a day of celebration: 15. He loves meeting people, making friends, and is quite social. 14. When something goes wrong, he is the person that can say the right thing to make me smile :-) 13. Is always honest. 12. Few yrs ago, he gave me HIS car, (so i could get back and forth to work/play practices) He rode his bike to work and back (he enjoys it too tho) 11. Best Sense of Humor! 10. He never complains, ever! 9. Growing up my Dad worked 6am-3pm at one job and 4:30-10pm at another. 8. Dad still managed to go to 99.9% of my performances 7. He is the least judgemental person ever, he talks to & helps everyone! 6. He is a pro at making doctors, insurance companies, & hospitals do ...

Today's BIG Appointment

I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Cheriz: My life with Cystic Fibrosis

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