Skip to main content

Ordering my Portable Vest

I was lucky enough to try on both the Monarch and AffloVest (portable therapy vests) while I was in the hospital. Luckily, since those two hospital stays I have been doing fairly well healthwise. I caught one virus that knocked me down for a bit, but my immune system fought it off with meds at home. No hospital or IVs this time, whew. I have needed to be healthy lately, considering I have been super busy between work, "Shoes' Appointments (our FosterSon), and trying to plan the Princeton CF Walk.

I'm super glad I am so busy with work. I have three closings over the next 3 weeks, YAY!  While I love working and being busy with life, it really has made me realize I need a portable vest. It's hard to get "Shoes" up and ready, while I do meds, and get my work stuff packed up too. So I am beyond thrilled I got to trial both vests.  I think both work really well and both would be effective. However, I really lean personally towards AffloVest in particular.

Each one is programmable with oscillating modules. The main reason I decided to go with the AffloVest is because the Monarch was painful for me to wear. They say it is "one size fits all" and then you adjust it's straps a little. However, 2 oscillating discs in the back dug into my shoulder blades. It may be my tiny size and the fact I have a bit of a spinal deformity, but it hurt while it was on and left marks on my shoulder blades. The Rep told me to just shove a washcloth in there... My other big negative to Monarch is the weight. It is 13 lbs!!!! That may not seem like much but to someone 100 lbs that's over 10% of my body weight. When the Rep said it was lightweight and I disagreed. She replied "Sitting you wouldn't notice...."  HELLO!!!! I'm getting this vest so I don't HAVE TO SIT! The AffloVest weighs around 8 lbs, which isn't as much, but still wish it was 1 or 2 lbs lighter. AffloVest was quieter, which helps If I'm doing it at work or if my kiddo(s) are napping. I do think the Hill-Rom Monarch Vest has some neat options (like if you have a port on one side, you can turn off one specific disc and keep the rest oscillating).  Also the Monarch has different colors you can order (no purple). AffloVest only comes in the blue. A negative to the AffloVest is when the shoulder straps are adjusted for a tiny person the leftover strap just sticks up. I told the AffloVest Rep they should make it so they snap down and aren't in the way. Afflovest buckles like the regular vest, whereas Monarch zips. The zipper makes it a little less bulky in the front, but I struggle with zippers. I have struggles with some fine motor abilities and still can't tie a shoe the normal way. So the reason I deicided on AffloVest is due to my tiny size (weight and fit), and other problems I have due to my Cerebral Palsy  (Zipper and Shoulder blade pain). These reasons won't apply to everyone.

I think both are great options, you just need to find the one that works better for you. I'm beyond excited to receive my AffloVest. They are putting it through insurance now. I need to send my measurements this week. Hopefully I will have in in the next 30 days! A portable vest will make my life a lot easier. Especially since "Shoes" is still terrified of my vest. I only do it when he isn't home or when he is already asleep. I'm not sure if it is the noise or tubes that are attached that scare him, maybe both. But, I'm hopeful the portable won't be as scary for him. Poor little guy. He is such a cutie. He just turned three on Sunday and he got a lot of neat new outdoor toys! So I can't wait to have the portable vest and be able to take him outside during it! Being stuck in one spot is a lot more difficult now that I'm a (Foster)Mom.

I will keep everyone updated on when I get it. And don't forget Princeton CF Walk at City County Park June 30th- if you come you will get to meet "Shoes"!!! You don't want to miss out on all the fun this year! :-) <3

Comments

  1. Hope vest works out ok. Read up on both of them online. The one you are getting does seem to be the better of the two. Although I did not understand everything all the papers on them were saying. Have requested June 30th off work so I can be at walk. Glad Shoes had a Happy Birthday. See you all on the 30th. Take care until then

    ReplyDelete

Post a Comment

Popular posts from this blog

Leaving on an Airplane, don't know when I'll be..oh, wait I return on Sunday!

VACATION YAY! Tomorrow I head to my uncles' and stay there, then Thursday morning, EARLY in the morning, we are headed to the airport! We are flying into Buffalo, NY and spending Thursday at Niagara Falls! Friday and Saturday I have no clue what we are doing! I know there is a surprise for me. But I'm not sure what it is. All I know is I'm soo excited to go! Last Fall I went to Las Vegas with my friend Amanda! It was soo much fun and had been like decade..seriously 10+ years...since I had been on vacation (well more than wknd trips to see friends who live within a 10 hr drive, hee hee Kym!) When I get back from my trip this weekend, I will post about it too! I just have to pack a little more when I go places and make sure to do my meds. On top of the regular, clothes, etc that most people pack  I will also pack: therapy machine 5 nebulizer cups  28 vials of medicine for my nebulizers over 150 pills I will take during the wknd 16 cans of stomach...

Tech-savvy Thursday- new look!

New Look: Getting Tech-Savvy: Since, I'm getting more involved in blogging, I decided it was time to give my blog a makeover! eMake-overs are always fun, whether you getting a new hair style, or outfit at the mall. However, I've been researching a lot about blogs and social networking. And I thought it may be time to update my blog's look.      I think I like my new one (at the top) a lot better than the old one (pictured on right). What do you think? I wanted my blog to feel more personal and I wanted to make it more tech-savy. I kept the black/purple color scheme. But made the purple the main color instead (and made it a softer purple). I then started looking up how to make my own buttons, widgets, etc. It isn't too hard to find tutorials for anything these days, between google, pinterest, and forums, you can pretty much find instructions for anything. I used a simple code and photobucket to make my own buttons: I think my new Tw...

Daily Compliance & Arthritis (video too)

The Big Topic: (let download for video below) Lots of people in the CF community talk about being compliant with their meds. It's really important, trust me I've seen the difference. I know some CFers keep track of the number of days in a row they stay compliant, but I don't keep track exactly. Why? It upsets me too much when I miss one and have to start over. I'm very competitive (which is funny, considering I've never been in sports). But more than competitive, I'm really tough on myself.  So instead of counting days, I just do all the meds I can actually do. So since my hospitalization in January I can say I've done all the meds I could do. Why can't I do all my meds. Lots of reasons. If I'm visiting someone, one spills & I forget to bring extra. If the insurance or pharmacy hold up my refill an extra day or two (causing me to lose 1 or 2 days worth of that med). So as long as I physically have the medication I do the med. That's...