Skip to main content

Ordering my Portable Vest

I was lucky enough to try on both the Monarch and AffloVest (portable therapy vests) while I was in the hospital. Luckily, since those two hospital stays I have been doing fairly well healthwise. I caught one virus that knocked me down for a bit, but my immune system fought it off with meds at home. No hospital or IVs this time, whew. I have needed to be healthy lately, considering I have been super busy between work, "Shoes' Appointments (our FosterSon), and trying to plan the Princeton CF Walk.

I'm super glad I am so busy with work. I have three closings over the next 3 weeks, YAY!  While I love working and being busy with life, it really has made me realize I need a portable vest. It's hard to get "Shoes" up and ready, while I do meds, and get my work stuff packed up too. So I am beyond thrilled I got to trial both vests.  I think both work really well and both would be effective. However, I really lean personally towards AffloVest in particular.

Each one is programmable with oscillating modules. The main reason I decided to go with the AffloVest is because the Monarch was painful for me to wear. They say it is "one size fits all" and then you adjust it's straps a little. However, 2 oscillating discs in the back dug into my shoulder blades. It may be my tiny size and the fact I have a bit of a spinal deformity, but it hurt while it was on and left marks on my shoulder blades. The Rep told me to just shove a washcloth in there... My other big negative to Monarch is the weight. It is 13 lbs!!!! That may not seem like much but to someone 100 lbs that's over 10% of my body weight. When the Rep said it was lightweight and I disagreed. She replied "Sitting you wouldn't notice...."  HELLO!!!! I'm getting this vest so I don't HAVE TO SIT! The AffloVest weighs around 8 lbs, which isn't as much, but still wish it was 1 or 2 lbs lighter. AffloVest was quieter, which helps If I'm doing it at work or if my kiddo(s) are napping. I do think the Hill-Rom Monarch Vest has some neat options (like if you have a port on one side, you can turn off one specific disc and keep the rest oscillating).  Also the Monarch has different colors you can order (no purple). AffloVest only comes in the blue. A negative to the AffloVest is when the shoulder straps are adjusted for a tiny person the leftover strap just sticks up. I told the AffloVest Rep they should make it so they snap down and aren't in the way. Afflovest buckles like the regular vest, whereas Monarch zips. The zipper makes it a little less bulky in the front, but I struggle with zippers. I have struggles with some fine motor abilities and still can't tie a shoe the normal way. So the reason I deicided on AffloVest is due to my tiny size (weight and fit), and other problems I have due to my Cerebral Palsy  (Zipper and Shoulder blade pain). These reasons won't apply to everyone.

I think both are great options, you just need to find the one that works better for you. I'm beyond excited to receive my AffloVest. They are putting it through insurance now. I need to send my measurements this week. Hopefully I will have in in the next 30 days! A portable vest will make my life a lot easier. Especially since "Shoes" is still terrified of my vest. I only do it when he isn't home or when he is already asleep. I'm not sure if it is the noise or tubes that are attached that scare him, maybe both. But, I'm hopeful the portable won't be as scary for him. Poor little guy. He is such a cutie. He just turned three on Sunday and he got a lot of neat new outdoor toys! So I can't wait to have the portable vest and be able to take him outside during it! Being stuck in one spot is a lot more difficult now that I'm a (Foster)Mom.

I will keep everyone updated on when I get it. And don't forget Princeton CF Walk at City County Park June 30th- if you come you will get to meet "Shoes"!!! You don't want to miss out on all the fun this year! :-) <3

Comments

  1. Hope vest works out ok. Read up on both of them online. The one you are getting does seem to be the better of the two. Although I did not understand everything all the papers on them were saying. Have requested June 30th off work so I can be at walk. Glad Shoes had a Happy Birthday. See you all on the 30th. Take care until then

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

Time for a Change!

I have been blogging at www.cheriz.org since 2012. So an amazing 5 years! I found my forever career, my husband, my first & forever home! I said good-bye to my Stomach Tube & had some mjor medical transitions!  However, CF affects a lot more than myself now. It affects Andrew, soon we will have kids in the house. To call my blog Cheriz- just doesn't make sense anymore. Coming up with a new name was super hard! However, my new blog is More Than DNA! ( MoreThanDNA.org ) Why did I name it that? Because I am MORE than my CF (or mutated DNA that makes up my CF). My family also will not have shared DNA. Any kids in our house (whether we adopt or foster children or not) will be considered our family & we don't think it matters that they won't have shared DNA. DNA does not define our family or us as an individual. We are more than our DNA! I have posted my first blog post at the new site! But I'm working on moving a lot my archives from this blog over. So it...