Hospitalization and Worries

Hi everyone!

Sorry, we haven't had a chance to blog much since we got some foster kiddos! If you are new, make sure you check out the last few posts.  Trying to make sure the kiddos make it to all their appointments and are learning as much as they can is very important. So yes, I put 100% of myself into working hard for my kids.

What did that mean? Well... I did all my nebs and oral pills, but honestly struggled to do my vest, exercise, eat, or sleep much over the last 2 months.

No vest, no sleep, no exercise, and honestly only eating 1 meal a day... I knew I'd take a toll on my body. But, I knew for the first 2 months I had to do what was needed. Both or safety reasons for my kiddos and me! I had clinic at the beginning of September... Weight was down from 116 to 112 and lung function down from 60 to 40. However, I pleasantly supported by my whole care team in my decision to stand by the kids. However, we needed a game plan to make sure I didn't jeopardize my health. I have a history of allergies to Keflex, Bactrim, Levaquin. However, I wasn't ready to be admitted without seeking out all my options. Doc said since my allergy to levaquin was minor and when I was really young, we could try oral Cipro. I took my first dose and waited in clinic a bit ( I also took Benadryl with them). I had a follow-up two weeks later...yes down to 110 lbs and 36% can't wait any longer. I set admission date for one week from them (because Andrew was gone for a few days for work conference and I had to watch the kids).

By the time Thursday the 5th came... I was beyond ready for the hospital.  Fast forward to today, Monday the 9th... Still struggling with breathing and daily activities. I get out of breath showering. I'm constantly waking up at night coughing. There was talk for the last few days that my port my have an infection.. Although, I never thought it did. However, I had fevers around 103.5 - 102.9 for over 2+ days straight and doctors thought that might be the culprit. Luckily, I'm more running 99.3-100.0 now, so we are heading the right way as far as fevers.. We did talk about possible port replacement down the road, mine is overdue (over 20 years old). However, I am hoping to schedule that post hospital when I have my full health at the time. Right now.. my latest lung function tests were between 28-36%... I still don't have my appetite back and I'm super tired every day.. However, in the 6 hours of sleep I got last night I was woken up 7 times for vitals, blood draws, meds, etc...

Before I was admitted I had 5 days to get all laundry done, snack and med charts made for the afterschool babysitters. I made sure to have all the Foster Care paperwork caught up, etc. Hopefully, my organization has helped Andrew and the kids (and sitters). For now there isn't much of an update. I just want to get back to 60% and 115 lbs! I want to come home to Andrew and the kiddos. It broke my heart seeing them cry when they left me here or hearing them tell me "Love you" <3

I just hope I can fully bounce back and that I can do it fairly fast!!!