Cheriz: My life with Cystic Fibrosis

It finally happened!!! The Stork came to our house!! We had 3 kids placed with us (on August 4th) Friday afternoon. Luckily, Andrew was able to take off Friday-Monday (Aug 4th-7th) to be home as we all adjust the first few days. He then worked 8th-12th, but we needed him back home more until the kiddos started school. So took a full second week off, because it was really rough ! Big thanks to Culvers & Phil for allowing us time we needed. I love having kids in the house, but it's a lot of appointments for these kiddos at first. . For privacy reasons, I will never use their names or post pictures of them.  I have made fake names for these posts. When they called I was a little nervous to take 3 kids at once, especially since I have Cystic Fibrosis. We had agreed on only 2 originally. But, the lady explained the 3 of them really needed somewhere. Most foster parent's don't take sibling groups and it is really rare to find one that will take three, so our hearts wanted to ...

Gaining weight? Losing Weight? Who doesn't struggle with weight some way or another? Well a big part of Cystic Fibrosis is a struggle with nutrition and weight. I have always struggled to gain weight, I was 45 lbs in 7th grade, and only in the last 5 months has my doctor/care team started feeling satisfied with my weight. whew, only took me 32 years! Slowly over the last year I have been gaining 1-2 lbs between clinic appointments. At my last appointment (just in July) my weight was 110 lbs. Which is pretty much the highest it has ever been. In 2012, I hit 109 briefly. (see side-by side picture)  However, the goal is now around 115-120 (to have a few pounds extra for when I get sick). Doc K suggested I started taking a med to increase my appetite (non-steriod). I agreed, I usually always agree to what my doctors suggest. Doc said he hoped I reach my goal by my next appointment in September. However, after only 1 week on the med I had gained 6.5 pounds (116.5).  He cut my dose down ...