Cheriz: My life with Cystic Fibrosis

Every New Year's I post a yearly review of everything that took place. It is surprising to see how much has happened and how much of a roller coaster ride life can be. I'm ending this year with not-so-great doctor's visit with my lung function back in the 30s, but I truly believe in 2017 it will all get better. My lung function, health, and life in general. I am doing a lot of outpatient tests right now to see what it is going on in my lungs ( I had some stuff show up on my last CT scan). So in January I have another appointment to get a plan together. Whether it be an admission or home IVs, or something else. One day at a time, but for now let's look back on this year! Here is 2016: January & February Fighting Insurance for Colistin because my lung function was low, which is why I had to cancel my eye surgery. March I was the guest speaker at the Annual CF Meeting & honored to receive an award "2015 Great Strides Partner of the ...

THANK YOU to everyone who has donated, sponsored, and participated in one of my CF events!  WHY do I do them?  I want to see CF cured and the CF Foundation is pushing to CURE CF too! Your donations really do go toward research for a CURE. Did you know the CF Foundation is the only non-profit to financially support (in some way) all CF research for a CURE!!!!! Did you know I take over 4 different types of nebulizers a day and my most important ones weren't discovered until after I was 5 years old?  Did you know I had lots of trouble with my first couple brands of enzymes, I'm now on a newer brand? I take over 50 pills a day and very few of them existed in the 80s. In fact, the CF Gene wasn't even discovered or understood until after I was born!  When I was born I was told I wouldn't live to be a teenager, but as I got older new advancements in medicine (for CF) kept coming to market. These drugs (along with the dedicated work from my parents) kept me ...

I have my follow up appointment on December 20th. Until then I'm just going to keep up with 4 sets of nebulizer treatments a day. Do my IPV machine once a day and the vest twice. Hopefully, I can start incorporating some more exercise into my daily routine. I did get some exercise over the weekend!! Haha. This Saturday was my work/company's annual Christmas Party. Maloof throws the Emerald Ball every year and this is my 2nd year attending (since I have been a Realtor for 1 full year now)! I LOVED dancing the night away! Well, as much as my 40% lung function would let me. Andrew and I love to dance though. We met in show choir and it may be my favorite thing to do! So I really look forward to this event all year! I wish I could of danced more, but hopefully I can get my lung function back to where it needs to be. It was nice to see I could still dance & enjoy the Ball. It was a busy day though!!! I spent most of Saturday (before the party) with my mom at the Richwoo...