Cheriz: My life with Cystic Fibrosis

Secondary Medical Problems: Well, it's been a while since I blogged. Something EXCITING though is we moved into our new home just under a month ago. By moved in... I mean Andrew and I started living there without our furniture. We finally got our furniture and our INTERNET a few days ago.  We had to do some work in it first, before we moved everything over.  I also had 3 Real Estate closings in the last month, plus other medical problems. t has been a busy time (with no internet), so sorry about the gap.  :-) Update: Basically I'm just waiting for everything. I'm waiting for my eye surgery on September 14th. I'm waiting for insurance to pre-authorize, approve, and move forward with the Orkambi.  I'll wait until after my surgery to start Orkambi, since the side effects can be pretty horrible. But I will discuss my going on Orkambi once I have the "thumbs up" from insurance. I'm excited to get my eye fixed finally and I'm very excited to see i...

Getting my Health Back: I was at my healthiest in 2012. I was walking every day and jogging some parts of that. I was in a musical where we had dance rehearsal at least 2x a week. And I did a 5K where I pushed the hardest I could, finishing in 42 minutes. Well, I did another 5k last Saturday (on my mom’s birthday) and power walked the entire thing finishing in 53 minutes.  ( Picture to right: Ada & I at the 5K) I knew I couldn’t jog, since my hips now like to pop out of place and it is too hard on my joints. My arthritis has gotten a lot worse in the last four years. While I know I will never will get back to level of health I had in 2012 (due to normal progression of my disease), I think looking at how I achieved that level, will help me to reach the best health I can today. I had a steady hourly job that allowed me to schedule out my day. Routine is what has always worked best for me, which is why I struggled in college and with jobs where hours changed a lot. In...