Skip to main content

Golf for a Cure & Other Fundraisers

Fundraisers & More:

 Yesterday was a great day! Andrew and I attended the Suzanna Lee Memorial Silver Cup Challenge, Golf Outing for the Cystic Fibrosis Foundation. It is one of the Peoria CFF Chapter's yearly events and this year was the Golf Outing's 15th year!

Everyone arrives around 11am for the grilled outdoor lunch before Tee time starts at noon. The Golfers are out for 4 hours golfing, some of the holes have competitions at them (like longest putt). During the golfing volunteers help set up the banquet dinner hall. There are over 100 silent auctions, chocolate fountain, hors d'oeuvres, followed by the dinner served between 5:30-6:30pm.

Andrew loved golfing and I enjoyed helping set up the silent auctions. I was the speaker this year and was very honored to the speaking about my life with Cystic Fibrosis. The Golf Outing was started 15 years ago in memory of Suzanna Lee (a girl who went to my CF Clinic and was from Peoria). Her parents host it every year and it raises a lot of the money for the CF Foundation!

I've uploaded my speech to YouTube here and I will be posting the Golf Outing Album in the next few days on my CF Facebook Awareness Page, make sure to check it out!

Now that the Golf Outing is over, it is time for me to hardcore focus on the Princeton CF Walk! We still need a few more teams to sign up. We lost 2 big teams from last year ( do to moving, etc). I'm excited for their new chapters in their lives, but we could use some help in reaching our Goal Amount! We have brought in around $5,000 so far online, but at this time last year we had raised over $10,000. We raised $23,000 last year and this year we are projected to only raise around $8,000-$10,000 this year!

Some ways you can help is donate, share, or join us walking and form your own team! Also, hosting a secondary supplemental fundraiser is very helpful. My uncles host a dessert party every year. They make some dessert, get some wine, and ask friends to bring checks made to the CF Foundation. They raised $375 in the past! My Aunt makes homemade Jam and sells it in her town & through me on Facebook, she raised almost $300 last year.  Here is the link to her Facebook event she made for it this year!

Also, contests work: For example: I will shave my beard off for $1,000! Really anything could be made into a fundraiser, so please consider doing one and help us out! I have some great ideas for next year to change it up & raise more, but we need to succeed this year in order for us to remain a CF official Great Strides Walk site!

Here is the online link to the CF Princeton Walk registration & info page: http://fightcf.cff.org/PrincetonGS

If you can help or want to start a team in Princeton please let me know! I can help you :-)

Thank you!!!!

Labels:

Comments

Post a Comment

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more