Skip to main content

Golf for a Cure & Other Fundraisers

Fundraisers & More:

 Yesterday was a great day! Andrew and I attended the Suzanna Lee Memorial Silver Cup Challenge, Golf Outing for the Cystic Fibrosis Foundation. It is one of the Peoria CFF Chapter's yearly events and this year was the Golf Outing's 15th year!

Everyone arrives around 11am for the grilled outdoor lunch before Tee time starts at noon. The Golfers are out for 4 hours golfing, some of the holes have competitions at them (like longest putt). During the golfing volunteers help set up the banquet dinner hall. There are over 100 silent auctions, chocolate fountain, hors d'oeuvres, followed by the dinner served between 5:30-6:30pm.

Andrew loved golfing and I enjoyed helping set up the silent auctions. I was the speaker this year and was very honored to the speaking about my life with Cystic Fibrosis. The Golf Outing was started 15 years ago in memory of Suzanna Lee (a girl who went to my CF Clinic and was from Peoria). Her parents host it every year and it raises a lot of the money for the CF Foundation!

I've uploaded my speech to YouTube here and I will be posting the Golf Outing Album in the next few days on my CF Facebook Awareness Page, make sure to check it out!

Now that the Golf Outing is over, it is time for me to hardcore focus on the Princeton CF Walk! We still need a few more teams to sign up. We lost 2 big teams from last year ( do to moving, etc). I'm excited for their new chapters in their lives, but we could use some help in reaching our Goal Amount! We have brought in around $5,000 so far online, but at this time last year we had raised over $10,000. We raised $23,000 last year and this year we are projected to only raise around $8,000-$10,000 this year!

Some ways you can help is donate, share, or join us walking and form your own team! Also, hosting a secondary supplemental fundraiser is very helpful. My uncles host a dessert party every year. They make some dessert, get some wine, and ask friends to bring checks made to the CF Foundation. They raised $375 in the past! My Aunt makes homemade Jam and sells it in her town & through me on Facebook, she raised almost $300 last year.  Here is the link to her Facebook event she made for it this year!

Also, contests work: For example: I will shave my beard off for $1,000! Really anything could be made into a fundraiser, so please consider doing one and help us out! I have some great ideas for next year to change it up & raise more, but we need to succeed this year in order for us to remain a CF official Great Strides Walk site!

Here is the online link to the CF Princeton Walk registration & info page: http://fightcf.cff.org/PrincetonGS

If you can help or want to start a team in Princeton please let me know! I can help you :-)

Thank you!!!!

Labels:

Comments

Post a Comment

Popular posts from this blog

End of Summer -Updates!

Wow, I can't believe it's been a year since we moved our blog to www.MoreThanDNA.org! A lot has happened in that year. My husband and I became Foster Parents to some amazing kiddos and still have one of those kiddos living with us. We have loved having "Shoes" with us and can't believe how much he has grown and learned in the year!I'm so proud of him! We have court next week, so prayers that it goes okay (and doesn't get continued again- that just drags it out longer for the kids). He is now 39 months old and starting Pre-K this month! Other big changes include: Some renovation to our home (complete Bath rehab & updated plumbing throughout), I started a new gene-targeting medication (symdeko) that is helping to keep me stable these last 3 months, and I got an AffloVest! I'm loving my new portable vest! Also, career wise...we both switched jobs! Andrew also started Seminary this summer to get a Masters Degree in Divinity. He has always wanted to be ...
6 comments
Read more

Why I Hope this Hospital Stay is Different

Typically, I've been very stable as an adult. I'm very lucky for that stability. However, 2018 started out nowhere near where I wanted. I was admitted mid March for a virus. We aren't sure what virus I had (every test came back negative). However, I had a consistent fever over 102 the entire 5 days I was in the hospital. Once I was fever free for 24 hours and I started eating better, they let me return home. I was excited to leave and get back to my everyday life. But, considering now a month later (and re-admitted), I think I should of just done a two week tune-up last month while I was in already. Live and learn. As you know (I'm sure) I have been trying to get my lung function back up to around 55-60%. 60% is my goal and it really is the highest my lung function can get, due to all the permanent scarring. I started Orkambi in October 2016. At that time it was the newest gene-modifier drug on market for CF patients (with my mutations).  After going on Orkambi I droppe...
2 comments
Read more

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...
Post a Comment
Read more