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Showing posts from May, 2016

Big Decisions

Change is Always Difficult: Lots has been happening lately and some big decisions need to be made soon.  But first I will share some great news! Last week we hosted a fundraiser at a local restaurant, where we were guest-servers for the night. We had a door prize and a few raffles, and raised an amazing $2,120 that night! Thank you to everyone that helped us. Our servers, volunteers, customers, and the Right Spice for letting us serve there! The total for the event goes to the  Princeton Great Strides Walk and all goes to the CF Foundation . After the night, we all sat down and enjoyed a nice dinner to relax and celebrate! It was a lot of fun and I can't wait to do it again next year! I'm hoping to do one more fundrasier in the fall to supplement the Princeton Walk. A lot people don't realize we can fundraise all year round, that the site is up until the end of December. Also, I have two contracts in escrow right now, but the BIG thing on my mind is: CF Clinic. I...

Eyes of My Blog

Wow, Mind Blowing! Wow, I looked at my Blog and my Blog's Facebook Awareness Page and couldn't believe my eyes! My blog has over 130,000 views on it and the Facebook page is close to 500 likes! I just can't believe this many people are following my story & the CF Community's Mission to Cure CF! It's great to see so many people want to learn and get involved. I've met people on twitter and social media platforms I have never met in real life (and who I may add have no personal connection to CF, but still donate & even attend Great Strides Walks where they live). It's unbelievable the love and support people can give! I'm just so happy and never could of imagined this when I wrote my first blog post... And in honor of that let's take a happy trip down memory lane, seeing big events that have been recorded in the blog, including some of my best posts! Also, it's interesting to see how much CF has affected my life just in these past...

Promises, Commitments, Challenges

Wowzer: I feel my life has been so busy in the last month or so that I can barely keep up with my blog. I discussed some great news in my last post! I was really nervous with my decrease in lung function this year. I wasn't completely sure a hospital stay or 2-3 weeks of IV meds would help (even with steroids). In 2015, I struggled and barely saw an increase after the IVs. So deep down I am always nervous. I was beyond relieved that I'm closing the gap in numbers and increasing. I'd love to continue the climb. So I have been pushing harder than ever. However, it's exhausting and I'm not completely succeeding at it. I have been keeping on top of the my meds. I have been doing all 3 sets of nebulizers, at least 2 (30 minute) vests. I've been walking a lot, because my  job has gotten quite a bit busier with it being warm out. I currently have 1 client house hunting, 1 working on getting approved, 1 contract in escrow, and a few other clients that are preparing ...

My Champaign Walk days

Great Strides in Champaign: While it did rain a bit way early in the morning, by the time we had to head to the walk it wasn't too bad. Actually the rain may have cooled the air down a bit, which made the Great Strides very pleasant. The Champaign Walk is a 5K, with informational CF booths, Balloon Creations, DJ, and more! Picture: My Team (minus Nancy, she is in other photos though :-) ) I always have a team of 3-6 or so (in the last few years). This year we had a solid team of 5 that raised $300 all together! So proud! I will be posting pictures in an album on  Cheriz's CF Facebook Awareness Page  (once I get them all). I really pushed myself this year and did the whole walk! For the last 3 years I haven't been able to do more than half. So that made me extremely happy! I had a great team that helped push me and we all talked the whole time so it kept my mind off of how hard it was to walk it. LOL They rocked on Saturday, Andrew helped set up and tear down, plus r...